posted
I want to create something a doctor or another such callous person can slip over their entire arm that will reproduce my neuropathy symptoms I feel all over my body. I repeat...there is no skin surface that isn' affected. Ouch! Itch!
Pricklies= I would take the arm off of a sweater,,then weave sisal rope in and out up and down.
Itching= what is somthing that everybody just has to scratch? fleas, live of course but hard to control. Some chemical...that's it but which one?
stabbing/pinsnneedles= insert dozens of real sharp needles so when they move they get stabbed
various electric sensations- wire each real needle (solder for good connection) and connect the dozens of wires to a control board. I could select which needle to apply current to, how much, if the electric feeling should be at that one point, or travel from one point to another. If you have enough resistance, one can actually cause heat, burning not just the imaginary stuff I feel. =fresh stinging nettles must have a use somewhere in here.
crawling, like there are bugs wiggling on my skin...of course...flea larvae...nasty little buggers.
With all this time on my hands, not working because the only thing they have figured out to do with me is increase my drugs until the symptoms occurred regularly at work...and the drugs noodle-me-up! and I can't process information...I am loaded.....noooooooddddllllllle I mayactually create one of these devilish devices. I have most of the technical know how and access to many obnoxious bugs......and a really really sick sense of humor.....
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
I'm with ya Barb. I think the potential for a device such as this would be endless. I believe, really believe, that unless someone has lyme/etc. they cannot relate. That includes doctors. They simply do not have a reference point in which to gauge and judge what we, the patients, are experiencing, so they cannot give their collective wisdom a poke and help us get thru this.
I'm a solver by nature (also by profession, I'm a nurse) so I can fully get into your fantasy here. Being a Virgo (not that I'm into astrology, but I've seen enough people who are also September birthdays to make this call) I also believe that fixing something that is "broken" or someething that frustrates you, gives you a sense of purpose, and keeps you (me, we) from giving up. Or becoming hopelessly depressed.
I hope you are able to press on, and keep going to find a resolution to the symptoms you are describing. I remember you from long ago, and I've read your posts on what you're going thru now.
I grew up in L.A., and I know where you describe your location to be now----I hope you find a doctor, hopefully a LLMD, and get some meds going. I know who you described your lyme doctor to be, and well, maybe it's time to find another? I know the one up here where I'm at isn't much better than who you have/had, but worth a shot? If possible. . . also, I've had some PM's from someone in Santa Cruz (you probably know who this is) that there are many LLMD's in her city. Some take insurance. I have not gone down there to check this out personally, but just a nugget to keep in your back pocket for the time you feel you need to make a change in LLMD's.
If you PM me, I may be able to give you further info on the Santa Cruz LLMD's. I would have to contact that person who gave me the info, and I am not sure how online she is right now with her current situation/troubles. take care!
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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posted
Remember the itching powder they sold at joke shops right next to the x-ray specs? Maybe you could slip him some of that. Posts: 102 | From ny | Registered: Feb 2008
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posted
ooh itching powder....hits the spot! Party world ought to have it...
and you think this is a fantasy? HAAAAhahahahahah(evil)
After I find a way to make the copay $20 bucks I need to see my therapist because I owe her a lot of money. I will most certainly build at least a prototype of this device. Hey, you're talking to the woman whose next project is an indoor composter out of kittly litter buckets, a worm composter. Designed it myself. If I ever need to go fish, I'll have plenty!!!
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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posted
come on, use your twisted little lyme brains to think of ways to torture "normal people"....so much fun fantasy
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Sew a layer of a few 'sandburs' inside two pieces of cloth so they cant get out.
Nothing MORE frustrating than getting poked with those and cant find them!! natures humbler!!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
see, I knew there were some really goooooooood bad ideas out there. And I am so good at thinking of them, but your pool of combined repressed vengeance is ripe for the plucking... THANKS
-------------------- Lyme is like the flu. You can get it and recover, but you can always get it again. Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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posted
This might be a little too soft for this post but I decided to post anyways....I tried to write something to help others Understand..and hopefully feel something.
Its a sad reality but you know at the rate this disease is speading its only a matter of time that those fighting against us will be infected or have loved ones infected.
I wouldnt wish this on anyone, not even "them"
BJK
-------------------- BJK
Nothing I write here is medical advice...I'm just another lymie sharing how this disease has affected me personally Posts: 175 | From Central Maine | Registered: Sep 2007
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