LymeNet Flash: Nicole's 1st appt. with LLMD in Missouri

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»	LymeNet Flash » Questions and Discussion » General Support » Nicole's 1st appt. with LLMD in Missouri

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Topic: Nicole's 1st appt. with LLMD in Missouri

Nicoles Mom
Member
Member # 14408

posted

Nicole and I just got back from her appointment with the LLMD in Missouri.

It was a huge success and relief.

Nicole's emotional state has gone from imminent suicide to hope.

She has been diagnosed with probable Borreliosis and co-infections plus Candida.

She is on an antibiotic treatment plan plus lots of supportive therapies.

Dr. C has ordered a bunch of tests.

Her local doc says he will support this treatment plan.

Nicole also got a new pain med that is helping much more then the old.

Dr. C said her pain is probably nerve pain that masks itself as muscle pain.

Her old pain med is for muscle pain so was not doing anything.

She got immediate relief - not total, but much more than with the old - from the new meds.

This is also making it easier for her to hang in there.

If every moment of her life is not excruciating she can survive long enough to see the treatment through.

The trip was really hard on her.

Getting ready to go, the plane ride, renting a car, getting to the hotel the day before just wiped her out.

The next morning (our appointment was at 7:30 AM) she was in such excruciating pain she didn't think she could go to the appointment.

She just sobbed. She couldn't even put on her own socks.

It was too painful for me to dress her, so I simply managed to put on her socks and shoes and took her in her jammies.

She was so humiliated.

But Dr. C was great.

One of the first things he said was ``I know you are sick and I can help you.''

This caused a new round of tears, but this time from joy and hope.

She said it was the first time in years that a doc really believed she is as sick as she is.

And the first time in even more years that a doc said he could help her and gave her hope for a normal life.

I could not have done this without all you guys.

You have been so supportive and helpful I can not even believe it.

Thank you all for starting us on the road back to a normal, livable life.

Sincerely - Dara

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

hshbmom
Frequent Contributor (1K+ posts)
Member # 9478

posted

Hi Dara,

I'm so happy to hear your good news.

I know how encouraging this must be for both of you.

Did you think to ask about school?

Posts: 1672 | From AL/WV/OH | Registered: Jun 2006 | IP: Logged |

Draba
Member
Member # 14589

posted

Yes!!!!!!

That is so great!!!!!!! I'm glad to hear that Nicole is finally on the way to getting better!!!!

-Draba

--------------------
Really tired of being sick. Wanting to go to college and have a life. Really happy that I have a puppy.

Posts: 66 | From My room | Registered: Feb 2008 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

Thanks for the great news. [Smile]

Hope is something we all need. I am so glad your daughter has hope again.

It isn't an easy road. One filled with detours and pot holes...

But to get better, you have to go down this road.

Best news is....you don't have to travel alone.

We are here anytime you need some help or support.

Thank God for our LLMD's. So glad for your daughter and you.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

KLewis
Member
Member # 14420

posted

Aw Dara,
Isn't Dr. C great? My first visit with him was on 1/31 and for the first time in a while, I felt hope! After the nurse brought us in to the room, I just started bawling. My hubby didn't know what to do or why. Poor guy. I was actually having a not so bad day that day, maybe that was part of it. I just had this terrible fear that he would look at me and say, "You are not sick...nope, not you...you are fine...it's all in your head!" Of course he did not say that and I'm now trying to sort thru the different antibiotics and finding one that will work for me but praise the Lord, I am finally on the way!!! You're daughter will be too!!

I am so grateful to the folks here for helping me get help. Dr. C was an answer to prayer for us.

Blessings,
Kimberly in MO

Posts: 41 | From Brookfield, MO | Registered: Jan 2008 | IP: Logged |

bettyg
Unregistered

posted

dara, halleluah; another happy customer!!! [group hug]

i'm so glad you both got the hope you needed to turn your daughter's life around again, and that you were there for her physically as well as supportively!!

today is the beginning of remission around the next curves for her! so happy you posted about your visit. it makes us feel good who send pms to you of names!! [group hug]

IP: Logged |

Meg
Honored Contributor (10K+ posts)
Member # 22

posted

NM,
That was amazingly quick! I'm so glad Dr C saw you on such short notice.

Give her a hug from me! [group hug]

--------------------
Success Stories---Treatment Guidelines

Posts: 10010 | From somewhERE OVER THE Rainbow | Registered: Oct 2000 | IP: Logged |

heiwalove
Frequent Contributor (1K+ posts)
Member # 6467

posted

i'm so happy for you!! hope is an amazing thing. thank goodness for our LLMDs. [Smile]

--------------------
http://www.myspace.com/violinexplosion

Posts: 1848 | From seattle, wa | Registered: Nov 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Finally a billion pounds have been lifted from your shoulders. I cried tears of joy reading your post.

Another little one made it to help because their mom was the BEST!

Way to go mom! Hang in there! We are here for you both. Just holler.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Wow, he's just amazing. Look at what hope has brought her!!!

I'm so glad I insisted that you call them!!! They get cancellations frequently because so many come from other states and due to weather conditions, etc are often unable to get to their appointments.

God bless your daughter! Tell her to hang in there!! [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Nicoles Mom
Member
Member # 14408

posted

Yes, it's a miracle we got in as quick as we did. We had an initial appointment for 6 weeks from then, but nurse called with a cancellation.

N is really sick to her stomach right now. Throwing up eveything she puts in it.

I had her back off on the meds, take each pill an hour apart with food, that kind of thing.

She is so anxious to start I think she built up the doses too quickly. Dr. C said to go slow to avoid stomach upset.

She did say the B-12 shot really helped her energy level.

So that is 2 things she already feels improved. The pain with the new pain meds and the energy.

Of course, improved energy only means she can get off the couch to go to a friends house and lay on HER couch, but hey! - it's a start!

Her attitude is much improved too, now that she sees a way out of this and believes she can get well.

She joined a gym to use the sauna for detox, Her dad also talked to a personal trainer over there who agreed to put together a slow andf gentle work out program based on Dr. B's guidelines.

This from a girl who two weeks ago couldn't think about walking to the car! Who 3 years ago was a state champion equestrian!

Dara

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

That's encouraging...but so sad for her. How old is your daughter??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

"This from a girl who two weeks ago couldn't think about walking to the car! Who 3 years ago was a state champion equestrian!"

I love it when a plan comes together!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Nicoles Mom
Member
Member # 14408

posted

Lymetutu, she is 20.

Posts: 93 | From Illinois / Ontario | Registered: Jan 2008 | IP: Logged |

ICEiam
LymeNet Contributor
Member # 7519

posted

Dara,

Your post brought tears to my eyes. Thank God you found Lymenet and Dr. C. I have heard only good things about him.

I understand the feelings you and Nicole went through when he said yes, you are sick and I understand. I went through the same thing with My daughter.

It isn't an easy process this fight Nicole has started, but she will get there. Just hang in there. When things get bad there are lots of experienced people here who will come to your aid.

I got a read education here. There was always and still is someone always willing with some suggestions. There is always Lyme chat. The help there is good too.

Take Care,

HUGS,

--------------------
ICEY

Posts: 468 | From Las Vegas NV | Registered: Jun 2005 | IP: Logged |

Wisconsin
Member
Member # 14522

posted

Dara,

You are such a wonderful mother. Sometimes I pray for the children out there who have Lyme, but who don't have pro-active parents. What can possibly save them????

You're the one who God is using to save your daughter's life. I know all of the hours you spend researching and tending your daughter.

I'm learning to be patient and know that this battle is a marathon, not a sprint. We are winning, but it's slow and patience is necessary.

Thank you for posting, I'm soooooo glad you have hope - you should!

Posts: 44 | From Prairie du Sac | Registered: Jan 2008 | IP: Logged |

Boomerang
Frequent Contributor (1K+ posts)
Member # 7979

posted

Dara,

So glad to hear you were able to get your daughter to see Dr. C. He is so kind and caring.

Sending good wishes your way.

Posts: 1366 | From Southeast | Registered: Sep 2005 | IP: Logged |

JR
LymeNet Contributor
Member # 16898

posted

You probably have much good information to share with other parents.

Posts: 365 | From Sylvania | Registered: Aug 2008 | IP: Logged |

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

Dara,

I am ecstatic to read of your daughter's improved emotional outlook and help with pain.

God Bless Dr C, you and Nicole. You are the best mother ever to go to great lengths to help her recover.

Maybe when Nicole feels even better, she will get on lymenet and enjoy the support here too.

Praying for steady improvement for Nicole!!

[woohoo]

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628

posted

Can you PM me so I can know who your primary care doctor is who is being friendly to Dr C's plan? I record the listing for Lyme Friendly doctors as well as LLMD's and other health professionals who work with Lyme patients.

Often it is the "Non-LLMD's" who play a big role in the supportive therapies behind the antibiotics and other supplements. These doctors are in short supply so it helps to have names where a patient can go for Primary Care without having her/his specialist called a quack by the PCP.

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

Posts: 4157 | From Western Massachusetts | Registered: Dec 2004 | IP: Logged |

kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691

posted

Dara,

We just saw Dr. C. for the first time last week. My daughter is 14. We just loved him. He really seems to care about his patients.

Christie

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

Posts: 1470 | From Tennessee | Registered: Dec 2009 | IP: Logged |

just don
Frequent Contributor (1K+ posts)
Member # 1129

posted

IF it matters this thread is 2 years old

--------------------
just don

Posts: 4548 | From Middle of midwest | Registered: May 2001 | IP: Logged |

METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628

posted

Don, thanks for the heads up. I rarely check the dates of when threads start.

I wonder how this mom and daughter are doing?

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

Posts: 4157 | From Western Massachusetts | Registered: Dec 2004 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Glad you liked him, Christie!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

seekhelp
Frequent Contributor (5K+ posts)
Member # 15067

posted

Good luck with your treatment!

Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008 | IP: Logged |

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