My Story: I was 14 when I started high school in September of 2005. I had just gotten my braces on, was a goalie on the soccer team and I was getting top grades, straight As.
However, on December 16, 2005, I was in the middle of watching a movie with my friend when I got a very painful headache.
I tried to ignore it but the pain was so bad, so my friend went home and I went to sleep, hoping it would be gone in the morning. It wasn't.
I started figure skating in April 2006 as a way to escape from my pain.
I have gotten pretty good, but it's hard when you have no energy to jump and spin.
It is so therapeutic though, and I love it.
For a year and a half my grades went from As to Cs, I had to quit soccer and we had no idea what was wrong with me.
By chance one day in May, my mom bumped into one of her friends and was telling her about my symptoms.
The friend that was with her interrupted and told her that all of my symptoms sounded like Lyme disease.
So we made an appointment with a doctor whose office was coincidently only 10 minutes away from our house.
She ran a whole bunch of tests in order to rule anything out, and sure enough, I was definitely positive for lyme.
This was in June 2007. I started oral antibiotics and took those for 2 months, but I still wasn't getting better so I had an IV put into my arm on September 11, 2007.
I am now 17 and I am still on IV antibiotics, and still have my headache.
It has not gone away, ever. Not for a second.
I have joint pain, insomnia, neck pain, and some cognitive problems due to brain inflammation, which makes it hard for me to process and recall information, like for school.
I am currently on home instruction because I sleep 20 hours a day.
I used to be hyper all the time and never sleep but I've turned the corner and am now the complete opposite.
I had to stop gymnastics and I skate for only 15 minutes instead of an hour a day.
it's really frustrating.
any teens who want to talk, I would love to talk to you.
I like Buffy the Vampire Slayer, One Tree Hill, Heroes, Kelly Clarkson.. figure skating, gymnastics.. yeah.
nice to meet you all! this place seems really cool.
Lymie since 2005 Live well, love much, laugh often Posts: 17 | From NJ | Registered: Mar 2008
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bettyg
Unregistered
posted
welcome pixie,
i sent you my newbie package of info galore.
YOU'LL HAVE TO GET HOOKED UP WITH "ICESKATER" a former professional iceskater who had to give up skating due to lyme.
she's on hiatus here as she's feeling better and doing what she can before lyme takes her health downward again.
i'll copy this link and send it to her by regular email; she's a close friend of mine!
glad you found us; you will learn alot and have MORAL SUPPORT when needed!
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
HI and welcome to lymenet. I was not able to read what you wrote but was able to watch your video.
So glad you were able to find something you can be a little successful at and take your mind off of lyme for awhile. Good luck with the iceskating.
Good luck with becoming a teacher too. That is still possible.
And because of your own learning obstacles, it will help you be a better teacher. You will understand.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
That OTHER post on this page,,,from Vic,,,she is 17 just the other day,,,
same condition,,,was recently in the quack motel and a coma for quite a while,,,her blog addy is right there in THAT post,,,
you two would make a fine pair,,,friends by sickness,,,not what we would WISH for,,but a circumstance none the less!!
Your story sounds SOOOO familiar,,,all too much so!!
There are others around too so dont run away!!!One used to be here from Alabama,,,forgot the name.
Do you have GOOD family and friend support in this??? OR are they all in denial??(common)
I think we need a teen page or chat spot just for youngens!!Hang in there,,,I THINK you will get tons of responses HERE!! IB still--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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