LymeNet Flash: Is there a light at the end of the tunnel?

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»	LymeNet Flash » Questions and Discussion » General Support » Is there a light at the end of the tunnel?

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Topic: Is there a light at the end of the tunnel?

nu2lyme
Member
Member # 14849

posted

Ok, I have been "fully involved" in this diagnosis for a little over a week and have officially gotten a little depressed and scared. [Frown]

I felt horrible yesterday- dizzy [dizzy]

and achey, headache. I came home from work and slept 4 hours.

I felt pretty good today but came home tonight and got in bed. My legs ache and the thought of having to take another dose of my doxy makes me nauseated.

The problem is that from what I have read from everyone, doxy for 2 weeks isn't enough....

I was never a person to take medicine for anything and now the thought of having to take so much medicine for months or even years, scares the heck out of me.

I look at my children and think of what type of mom I could become, I have already become a mom who is " sick alot".

I am scared........I just want this whole thing to go away..... I sometimes wish that I hadn't gotten the blood work and found out about this.

I know I shouldn't feel that way but I don't do well with things I can't fix ...... [confused]

Sorry for being so depressing, I do appreciate everyone on this site that have posted replies to me..... [Frown]

It is amazing to known that there are so many of us out there. I just wish I could hear some positive outcomes. Does everyone feel bad all the time? [Roll Eyes]

Posts: 27 | From Florida | Registered: Mar 2008 | IP: Logged |

tickled1
Frequent Contributor (1K+ posts)
Member # 14257

posted

Hi there,

I don't feel bad all the time. Actually today I felt almost normal for the first time in a long time.

If you never found out then you couldn't treat it. I know it's a hard thing to come to terms with. I am having a very difficult time with it myself. I just got dx in Dec. but have probably had it for at least 8 yrs.

I am also a mom and know what you mean about worrying about what kind of mom you are. The bottom line though is that you have to treat the Lyme so that you can be there for them for the long haul. I feel like I've missed out on so much with my little girl but I want to be there for her for the long haul so I have to tough this out.

Pretending I don't have it won't make it go away so I have to stare it in the face and fight it. Even as I'm writing this I realize I'm able to write it and give encouragement b/c I'm having a good day. Most of the time I'm the one needing the encouragement. [Wink]

Have you read the "Success Stories" on this site?

Posts: 2541 | From Northeast | Registered: Jan 2008 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Success Stories:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=3;t=015820

I feel great after treating my lyme....well, except for some recent complications somewhat unrelated to lyme.

There is plenty of hope!! [Smile]

Hang in there!!! [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

The trick is to find a good doctor ASAP so you can have better days. I am sorry the last few days have been rough.. but with proper treatment... you should feel better.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Geneal
Frequent Contributor (5K+ posts)
Member # 10375

posted

It is a horrible fact that takes time for your brain to "learn"

That feeling worse on antibiotics instead of better

Means you are killing off something. [Eek!]

I hadn't been to a doctor other than an Ob-Gyn (had two babies) in the last

7-8 years. When I first got really ill I saw 4 different docs in two weeks.

It does take time to feel better. I now have more good than bad days

Other than when I am herxing and I've been treating Lyme and co-infections

For over 18 months now. Don't look that far down the road.

It is overwhelming....I have quality of life back now (on most days).

As Lymetoo says, the only way to get to the other side is to go through it.

Just take one day at a time. Easy to say...hard to do.

There is a "light" at the end of the tunnel...for me remission.

I am a Mom too with two young ones who are also being treated.

I look to the future for them....God willing cured.

It does get better......hang in there.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006 | IP: Logged |

Michele
LymeNet Contributor
Member # 13669

posted

Hi there -

I am also new to lyme - diagnosed last Sept but docs here wouldn't treat me long enough after tick bite/rash. I am now being treated LLMD Dr. C. in MO and he says he has great hopes for a full recovery.

I've been having some rough days lately but have had some good days.

I know what you mean about your children. I have two young ones and sometimes it is hard for them to understand why mom doesn't feel good most days. I am trying to fight through it day by day and pray that some day I will be 100% again.

Hang in there - there is a lot of support on this website.

Take care,
M

Posts: 124 | From Indiana | Registered: Oct 2007 | IP: Logged |

kam
Honored Contributor (10K+ posts)
Member # 3410

posted

YES there is a light at the end of your lyme journey.

REad recently that LLMD's have an 80% to 90% success rate.

Confirmed that with my LLMD

I still find the saying that the idea is to have more good days and less bad days with one step forward and sometimes two steps back while we are healing to be true.

The support here on lymenet has helped me through and will help you too.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002 | IP: Logged |

adamm
Unregistered

posted

Yep, there most certainly is... I personally know three people

who made full recoveries after really having it bad:

an utterly brilliant girl

who was once a severe neuro case, a professional cellist

who for a year was bedridden with no diagnosis who's been doing

absolutely fine for the last decade, and another individual

who's had received he prognosis of death from the duck

before she began treatment.

IP: Logged |

nu2lyme
Member
Member # 14849

posted

Thanks everyone,I appreciate the words of support. [Smile]

I have felt better today but still had to take a nap. [Wink]

I had a heart to heart with my husband and I am going to call and see if I can get an appointment with a LLMD.

I know that it sometimes takes awhile and I hear there is a ARNP here where I live that treats.

Maybe I could get started with her until I can get into see the LLMD.

I will be reading successs stories shortly... [woohoo]

Thank you , thank you, thank you! I can't imagine doing this without people who know what I am feeling..... [bow]

Posts: 27 | From Florida | Registered: Mar 2008 | IP: Logged |

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