Little better with crying stuff on half teh levaquin. May try the whole thing again tomorrow. Just needed a crying break.
Posts: 422 | From CT | Registered: Oct 2007
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CD57
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posted
I switched from mino to doxy and feel anxious and edgy today....ugh!
Posts: 3528 | From US | Registered: Apr 2007
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posted
Yeah that is what doryx does to me also. I hate not being able to go in the sun. I have not felt this bad for a few months, I just hope I am not getting worse.
Posts: 422 | From CT | Registered: Oct 2007
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sixgoofykids
Honored Contributor (10K+ posts)
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posted
Doxy is tough. I've been herxing like crazy since switching from mino to doryx a week and a half ago. I'm kind of surprised I feel this bad because I was feeling pretty good before the change.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Hey Six I cannot stand not being able to go in the sun on doryx. Still feel like crud...this is so getting old.
Posts: 422 | From CT | Registered: Oct 2007
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CD57
Frequent Contributor (1K+ posts)
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posted
Anyone else get a little tachycardia? I had this pretty bad last year during herxes, but then it disappeared...now its back, but not as bad....
Posts: 3528 | From US | Registered: Apr 2007
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posted
Yes I have it every time I change my meds or up a dose of doryx. It was very bad when I first started taking the levaquin also..not sure why.
Posts: 422 | From CT | Registered: Oct 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
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posted
Does anyone think 250mg of levaquin is enough? I only weigh barely 100lbs now.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Hi I would ask the LLMD or pharmacist that question. I will tell you 500 is killing me and I weigh about 133.
Posts: 422 | From CT | Registered: Oct 2007
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CD57
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posted
How are you all doing? I am having a lot of neuro stuff going on: edgy/irritable, disorganized, depressed, doubting my doc and whether this treatment is working, word finding, memory, etc etc. I'm almost a month into Levaquin+mino+Bicillin 3x/week. I felt immediately better on my second day of Levaquin, just huge. Now all the symptoms seem to have come back.
Is this a herx or am I not responding?
Posts: 3528 | From US | Registered: Apr 2007
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sixgoofykids
Honored Contributor (10K+ posts)
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posted
Sounds like a herx. First you felt better, then worse. That's what happens to me with a drug that works.
If I'm not herxing from changing meds, I'm catching another cold .... I've felt crummy all month.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
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posted
nothing new with me, i thought my bladder was better, but now on ovulation and everything is flared.
doubting my bart diagnosis. I just dont see much improvement.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Hi I stopped the levaquin..told I had levaquin insanity..LOL. It was making me really depressed and nuts. What do you know about Rifampin?
Posts: 422 | From CT | Registered: Oct 2007
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CD57
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posted
Monica, what does Levaquin insanity mean?
Posts: 3528 | From US | Registered: Apr 2007
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posted
Hi I was just really really depressed and crying non-stop and thinking horrible thoughts. It stopped within 12 hours of stopping levaquin. Trust me I still cry and always depressed but not like three days ago.
Posts: 422 | From CT | Registered: Oct 2007
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cantgiveupyet
Frequent Contributor (1K+ posts)
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sorry to hear that Monica, that sounds horrible. Im glad that it stopped once you quit the leva.
Anyone seeing any improvements...
Interesting about the macrolide/fluro combos, it seems LLMD are often all over the place with how to treat this bug. sigh.
i took zmax at onset , and had a horrid reaction, all symptoms increased and dr thought allergy. thing is after about 12 days the dizziness went away...so it was either waxing and waning, yeast or it killed something.
I just wish I could be one of the ones getting better.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Hi all! I was diagnosed with Bart by Fry labs and that was the only infection I was able to find so far.
So I'm taking Zithro and mycobutin for two months now. At first I had herxes every 3 days and symptoms were fluctuating a LOT - it was very stormy.
Now everything seems to have calmed down and I hardly ever herx anymore but I don't feel ANY better at all than before I started!
I wonder if it's normal or if abx stopped working.
Could Bart develop resistance already? Did someone have it happen like this?
Posts: 59 | From Boston | Registered: May 2008
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CD57
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posted
what is Mycobutin? everyone is different. no telling what is happening, but you haven't been on that combo very long.
Posts: 3528 | From US | Registered: Apr 2007
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mycobutin I think is the same as rifabutin (a brand name I guess).
I've searched around and it does seem that some people herx a lot in beginning, go back to ground 0 and slowly make their way up.
Anyway - looking for a LLMD who actually knows about Fry labs right now... Appears to be trickier than I thought.
Just don't want to hear another lecture as to how I really need an antibody test to prove anything and how my symptoms are not related to whatever the slide shows (I have classic fatigue, muscle twitches, feverish feeling, chills etc...)
Posts: 59 | From Boston | Registered: May 2008
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CD57
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Member # 11749
posted
hello, how are people doing? I am having a tough day. I posted elsewhere re: flaring cognitive/mood/psych symptoms, plus twitches, insomnia, hand tremors. ugh. It seems to vary by the HOUR how I feel! anyone else? I get this scary gloom-and-doom feeling like I'm not going to make it.
Posts: 3528 | From US | Registered: Apr 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Up--how are the bart buddies?
Posts: 3528 | From US | Registered: Apr 2007
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cantgiveupyet
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horrible tonite- thought i was making progress, but no it seems it was just a fluke.
growing tired of it.
how are you?
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I'm here too. Good luck to all. Taking levaquin (half dose 250 mgs) with 200 mgs of mino. Went through a bad patch the first two weeks but have settled down a bit. Will probably need to bump it up to 500 mgs soon.
God I hate this so much!
Is pulsing levaquin or taking it daily?
After the doctor stopped my IV Rocephin after only 4 1/2 months. I didn't know how well I was until He stopped treatment. After about a week bam everything was back. Joint pain, Burning, hard to breat etc. He treated Canadida for 2 weeks. I started Lev 500mg and Rif 300mg 2x a day on May 11. It right away made my body burn more. It had a deep burning in my joints, muscles, etc. Causes stomache upset for about 18 days or so. Called the Doctor on 5th day to see if that was normal. The told me to stop meds but I continued and the next day I started feeling a little better. An have continued. My doc said 21 days he does that with everything. Had a refill so filled it. I also an taking Fluconazole 200mg at the same time. The only thing when I first started I was up for two days. Then slept and then up for another 24 to 36 hours. It has given me the energy to sit up instead of laying down all the time. I am concerned that he's not treating me for any length of time for Bart. For Babs he had me do a 21 day round. That doesn't seem to be long enough. Has any one been on this same treatment?? Isn't 21 days way to short??
Thanks for listening.
-------------------- Theresa Posts: 16 | From Florida | Registered: Jun 2007
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