posted
Hi! I'm new here and I'm desperate to help my husband understand what I'm going through. We have dated since I was 15 and I am now 23 and we have been married for a year now. I have been symptomatic since middle school, and I took at turn for the worse 5 years ago before being diagnosed with Lyme in January of 2006.
Even though he has been with me through it all, I still don't think he comprehends what it is like to have a chronic illness. Now that we are married, I see my health issues taking a toll on our relationship and I think if he could understand a little more, things would improve a bit. He is a wonderful man but I don't think he will be able to support me in the way I need right now if he doesn't fully know what Lyme is doing to me right now.
I am looking for anything that would explain/portray what it is like to have lyme disease.........your favorite articles, youtube videos, etc. Thanks! I look forward to exploring and getting to know the boards more!
Posts: 46 | From Texas | Registered: Apr 2008
| IP: Logged |
posted
If you have a good local support group, I recommend taking your husband. Mine came with me to a couple sessions when I lived in California and got to see the range of symptoms people had. Of course, there's a wide variety of people in a support group, so you might want to test the waters before bringing him, in case it could hurt your cause.
Even so, it's hard. Make sure you constantly communicate. It's taken me 3 years to get my husband to fully understand that when I don't eat what he cooks, it's not a reflection of his efforts, but of my disease. And he still grumbles, but he mostly "gets it".
Posts: 168 | From Delaware | Registered: Aug 2005
| IP: Logged |
what has helped for me and my husband is.... him reading on LymeNet....picking things out for him to read....or he just reads on his own...
him coming with me to doctor appoinments....helps a lot....
and constantly trying to communicate with each other....your both going through this....and doing it together is better then doing it alone for each of you.
also read what Trish said...."Dear Husband" by Bejoy....its here somewhere in General....
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
| IP: Logged |
This "letter to normals" is circulated in fibromyalgia circles but the symptoms are often identical because chronic lyme can turn into fibromyalgia. Just substitute "lyme" in place of "fibromyalgia" http://www.fmscommunity.org/lettertonormals.htm
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
bettyg
Unregistered
posted
look in my newbie package to you; copy it to MS WORD, and then use EDIT, FIND, and type in
lymedad, hit enter, and it will bring his up followed by dar's toy story, and the links tutu had; they are all there together.
you tube; go to top of medical to my post LYME VIDEOS COMPILED; look thru them; excellent and many short ones there.
play UNDER OUR SKIN for him.
play MARIA'S...canadian young woman; getting tired ready to log off.
IP: Logged |
posted
thank y'all so much for your responses! I really appreciate it. Happy Sunday to you all.
Posts: 46 | From Texas | Registered: Apr 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[hi]](graemlins/hi.gif)
![[Roll Eyes]](rolleyes.gif)
for each of you.![[Smile]](smile.gif)
mtree
![[sleepy]](graemlins/sleepy.gif)
Printer-friendly view of this topic