Been lurking for 2 1/2 years and have learned so much here. THANK YOU!
Needless to say I have Lyme, Babesia and all the wonderful ills that seem to go along with this lifestyle. (Seeing Dr Z in VA)
Two of my children were treated last year and seem to be doing well. That's the good news
The bad news is my 15year old came to me tonight and said "Look Mom, a bullseye!" She had pulled a tick off herself Wed and now she has the rash
I might be able to get our PCP to prescribe 2 weeks doxy, but it's the week-end, so not until Monday. I don't want to take her to the chop shop (hospital).
I'm off to seeking, Dr Z doesn't see kids.
[ 10. May 2008, 04:55 PM: Message edited by: leadmare ]
Posts: 58 | From Virginia | Registered: May 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Welcome
Sorry your daughter just got bit on top of everything else. Good you are getting her help early. The sooner the better.
p.17: Antibiotic Choices & Doses Lyme needs stronger dose of antibiotic than is usually prescribed. Example - Typical Doxycycline dose for Adult is 200 mg per day, but Lyme treatment needs to be 400mg per day. Recommended dose for teens is not given.
p.19: Treatment Categories Early Localized - EM rash, no symptoms Recommends treatment for 6 weeks - minimum
The "walk in clinic" is a good idea, if you have one in your area. Take Dr B's "Guidelines" (above) and see if Dr will prescribe as recommended.
If not, when you see the PCP on Mon, take the "Guidelines" with you. It is important that treatment is strong enough and long enough. If not, the disease will seem to be cured, but will flare up again in the future (months or years later).
You said 2 children were treated last year. Who treated them?
Posts: 4638 | From South Carolina | Registered: Mar 2001
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posted
I agree that more than 200mg would be great if you've got it. I was going the conservative route since it didn't sound like you had that much.
I think most Urgent Care places would treat with that bullseye staring them in the face.... and having a proactive mom staring them in the face!!
Also.. Be sure to take a picture with a coin next to it and maybe a newspaper for a date... and then one with her face in the pic along with the bullseye.. Just in case you ever need it for proof to insurance or to a doctor.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Lymetoo, I wasn't sure about how much Doxy she had on hand. Hope I didn't sound like I was disagreeing with you. You've forgotten more than I'll ever know about TBDs, and besides, I haven't even stayed at the Holiday Inn Express.
Liked your suggestion of Urgent Care (Geneal, too) and just added to that idea. In some places, the "walk in clinic" has worked well. I think it always helps if you have reliable info printed to give them. Has more credibility than a mother making recommendations.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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Cobweb
Unregistered
posted
I assume since you've been here for over two years you know that 2 weeks doxy is like spitting in the ocean as far as treating Lyme Disease.
You may want to ask Dr. Z about specifically seeing her for Lyme. Our LLMD is not a pediatrician, but she treats my daughter for Lyme, as long as we agree to see her regular pediatrician for all other ailments.
Try to get a better picture so whoever sees her doesn't think it's "just a local reaction" to the tick bite. There's a difference.
posted
The two younger ones were treated 4 and 6 months by Dr V in MD. One had 23 ticks and the other had 28! PCP pulled out IDSA guidelines and I went directly to the front desk for a referral to Dr V for a second opinion
I have a feeling that's where we will end up this time. I was hoping there might be someone closer.
I did take more pics with a ruler next to the ring. I did not take one with her face or date, I will do that! I think my camera may do better outside in the light of day. Thanks again.
Yes, I was glad she told me right away when she saw it. She had another bite, but no reaction there at all
The thing that gets me is, they get sprayed down with the DEET before leaving the porch. Reapply often and they are diligent in checking for ticks. Doesn't seem fair.
I guess, I'm feeling a bit frustrated too.
Posts: 58 | From Virginia | Registered: May 2008
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bettyg
Unregistered
posted
welcome; agree 100%; life sucks and is NOT FAIR especially to lyme patients.
i sent you my newbie info; so glad you came out of lurking! my bark is worse than my bite!! lol
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posted
We got up this morning and the Bullseye was totally GONE!
Good thing I took more pictures last night!
Went to Urgent care this morning. The pictures sealed it, luckily. Dr said "Classic Lyme."
Sigh of relief, until treatment discussion. They just wanted to do 200mgs for 10 days. She asked me if I was seeing a ID Doc, I said "No Way."
No more argument, she said "What do you think?" I said, "Last time her PCP gave her 200mgs twice a day."
She said, "for 21 days?" I said "sure" She had to ask her Supervisor. She came back and the Rx was for 28days, her supervisor had told her to write for the longer end
Follow up with PCP for testing. That will give me time to order kits from Igenex
YEAH!
Posts: 58 | From Virginia | Registered: May 2008
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Cobweb
Unregistered
posted
Classic pics-good for you.
And great to have the jump start with Doxy at least for 28 days.
Could I possibly get your permission to send them to me to use in a powerpoint presentation?? NO names would be given unless you wanted.
I now collect rash pics.....plus run a support group. You can email me privately to let me know.
Take care,
Gail
-------------------- Strength does not come from physical capacity. It comes from an indomitable will ~ Gandhi Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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