posted
Hi my name is Lisa and I am new here. My husband has been sick with Lyme the 8yrs we have been together, but it was just over a year ago that is was confirmed. I am writing for support for my husband and myself. I read on here about so many that are sick and go through what he goes through. My problem is that I work full time, am a full time mom of two young girls and I am a full time wife/caregiver and with all of that it is very overwhelming. I try to do all that I can for him but in my very busy life I get stressed and frustrated. He helps when he can and that is great, but I need to learn how to juggle it all with out freaking out on him. I also go through times that I don't feel well and feel over worked. I really just need some support and help with my husband and his illness. Thanks Lisa
Posts: 5 | From Kansas City Mo | Registered: Oct 2007
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what a wonderful wife/caregiver you are to reach out and get support of your own. Sometimes the one that is sick.....is to sick to reach out for support....
I am the sick one in our marriage....but I know that it is just as difficult for my husband.....in every area of his life....
Is there anything specific you want to know? Is he working?..
you have every right to feel overwhelmed and frustrate.... you both are going through difficult stuff....
you will get great support from this website for you and for your family....
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
Yes we have been to both of the dr in our area and he has been on IV and oral but he has had it for such a long time it has caused other health problems.
Our biggest thing now is getting off of benzo's and it has been hard.
He is very well educated and has tried almost everything, things seem to go well for a while and then boom back down hill again.
I am doing my very best with having two little ones and taking on the heavy load alon is hard.
he as explained it all to me but there are still times that i say the wrong things at the wrong time and he blows up.
I can't seem to get it right and I guess hearing for other's that have the illness or that has a spouse that does and knowing that I am not alone and that he being on the comp. all the time and most of the time detach from the outside world.
He does work but it is from home so that is good for him because i know that is does not feel well most of the time.
he does help with the kids when he can and that is wonderful.
I am not really asking for much just some affection and time away from a comp.
Iknow that it is painful for him to be cuddly and such but it is very hard sometimes i am a women after all.
anyways I will stop rambleing for now.
Thanks for the advice and good luck to all of you.
Posts: 5 | From Kansas City Mo | Registered: Oct 2007
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Thank you for the video and the husband letter. It did help.
Posts: 5 | From Kansas City Mo | Registered: Oct 2007
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bettyg
Unregistered
posted
breaking this solid block text up since we neuro lymies can't read or comprehend without having SHORT paragraphs ....
[QUOTE]Originally posted by Day of the young:
Hi my name is Lisa and I am new here.
My husband has been sick with Lyme the 8yrs we have been together, but it was just over a year ago that is was confirmed.
I am writing for support for my husband and myself. I read on here about so many that are sick and go through what he goes through.
My problem is that I work full time, am a full time mom of two young girls and I am a full time wife/caregiver and with all of that it is very overwhelming.
I try to do all that I can for him but in my very busy life I get stressed and frustrated.
He helps when he can and that is great, but I need to learn how to juggle it all with out freaking out on him.
I also go through times that I don't feel well and feel over worked. I really just need some support and help with my husband and his illness.
Thanks Lisa /QUOTE]
lisa, you have 2 little ones UNDER AGE 5??
do you have any family/close friends nearby who could stop on a regular basis to help you cope?
tell your husband how you feel; you need daily HUGS/kisses and time for him to visit you and NOT be on the computer AFTER HIS WORK IS DONE.
best wishes; tutu gave you some really good links.
have you looked at my newbie package i sent you? all the good support stuff is printed out in there....
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
[
"things seem to go well for a while and then boom back down hill again."
- this is what seemed to be happening with me ...then i found out in addition to the lyme i also have babs...a coinfection has kept me sick.
I would just talk to him and tell him you NEED more of his time and it sounds like your saying he puts the internet before you... who is there for him day in and out in real life.
Maybe you could suggest activities where you could spend time together. Most lymies can sit and watch a movie (although some of us might not get it all )
Netflix is awesome.
I hope things get easier for both you and your husband.
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