mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
evergreen: I remember those cigarette and boob job threads. I was shocked, too. Welcome.
Celestia: So glad you found us - we are here at lymenet and also at lymezone dot org. We were very worried about folks finding us - so glad you did!
Posts: 1761 | From USA | Registered: May 2006
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Just noticed you were here and wanted to say hello. So glad you found us. Thanks for the nice comments about all the Lymies good work at prohelpless... I pm'd you! Hope you get it.
Hugs, LAML
PS PROHELPLESS JUST BANNED SWEET ERICACFIDS YESTERDAY FOR TRYING TO HELP SOMEONE!!!! CAN YOU BELIEVE THAT??????
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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posted
I got the BAN too.........for what? For posting about being a good samaritan and helping others.
I give up....I hope the others over there can find their way to this site. It's a total shame that this is happening and I get the feeling someone is trying to hide something over there.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
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Ericacfids is the sweetest poster I know and she helped so many.
What a shame!!! I will say this though, these nut jobs over at prohelpless will have to answer to a higher power as they will be held responsible both morally and ethically for keeping people from finding out what is possibly wrong with them.
They will be punished one way or another. Karma has an interesting way of going around.
These nut job psyche/K posters and nut job moderators are keeping people from finding out if they have Lyme. How mean and evil would you have to be to stoop this low????
Believe you me, these moderators at prohelpless and wacked out posters are living with the guilt and shame. The problem is they live with it and are proud of it. They are truly that evil, mean, corrupt and hateful.
We were trying to help people find out if they "had" something, they are trying to "keep" people from finding out if they have something. They can spin it anyway they want, but it's very obvious.
We must keep up the good work by spreading all the nasty little details of this DD, until every person gets it.
DIE LYME DIE
I tend to believe in Karma and believe what they have done will be rewarded with a huge punishment!!!!!
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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posted
Thanks for finding me guys! LAML and PJ pm'ed me about Lymezone as well and I have applied. Thanks!
I haven't been banned from PH yet, but that's probably only because I haven't been diagnosed yet. I keep expecting it as anytime I post about anything re: Lyme on the main fibro board, those posts just "poof" disappear.
Anyway... headed home to Texas to check on my dad for Father's Day.
Have a nice weekend and Happy Father's Day to all the Father's out there!
-C
Posts: 19 | From Mississippi | Registered: May 2008
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posted
One of the senior members there baffles me. She has had severe FM and CFIDS for 15 years and was on morphine a long time ago for pain. She posts her latest "therapies" or attempts to improve her health in great detail and seems to want to be the group guru.
I asked her repeatedly if she had ever considered an Igenex test for lyme or for a western blot test . She was repeatedly evasive or basically in denial that lyme could be a possibility , despite the fact that many of us were getting strong positive DXes with lyme at Fibro Fatigue Centers . I was puzzled that she wanted to be viewed as the expert of CFIDS /FM but would not consider a KNOWN disease as a possibility .
Basically they became rather nazi like in the moderation , and it was not attached to reasonable standards .
posted
CFS is just a description of symptoms, not a "thing" as Bb infection is. CFS is also a diagnosis of exclusion.
That means is NOT possible to say that one doesn't have Lyme because he/she has CFS.
But it IS possible to say that one doesn't have CFS if he/she really has Lyme.
The resistance of the CFS community is sad, since so many of us here were once diagnosed with CFS and only got better with antibiotics from an LLMD. Which, limecarnitas, almost no CFS doctor prescribes - at least not the ones visited in the past by many people on this board. I saw two very prominent CFS doctors and the subject never came up. All they offered were useless treatments that got me nowhere. Unless they've changed their tune in recent years?
Posts: 621 | From US | Registered: Jun 2006
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posted
I know quite a few more have been banned recently as I keep in contact with them. Banned for NOT violating rules either but because several members there are chronic complainers and report ever single post they don't agree with.
PH is not what they appear to be and I found little to no support there for my Lyme Disease.
Posts: 261 | From NW Pa ~ Crawford County | Registered: Oct 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Well I think I was the latest one to be banned from PH. Just found out today! Still don't know what I did wrong.
I was diagnosed with FM over 2 years ago, just got my Lyme diagnoses 6 weeks ago.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I have not yet been banned from PH, but do not post much anymore since I get blasted whenever I put the word Lyme in a post.
It's all about the $$$ there, and I had recently ordered some supplements. Probably that's why I'm still ther. Some of the posts have been deleted though.
My guess is that in the near future they will be coming up with supplements for Lyme. And as for the other board mentioned, they are completely crazy there, will bbe asking soon for them to remove me.
I learn so much on this board, thank you!
Posts: 847 | From upstateNY | Registered: Dec 2007
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It would do no good to tell you who is running that board, because they think the only way to win against this disease is if you are totally in their camp and only their camp.
This so called Lyme board has even sided with the ppl who have been cruel to Lymies at Pro-Puke and they also try to act as if none of this cruelty has been going on, even though they themselves had to ban someone for harrassment who followed us to that site.
Even one of their administrators has called pro-puke names and yet the other administrator is pretending to be mad that we call them Pro-puke just to make us look bad. They are very hypocritical and say one thing and do the same thing themselves. I wonder if these two Administrators are even on the same page.
They have decided to choose sides with pro-puke. They can spin it however they want, but everyone knows of pro-pukes reputation and all the many ppl who have been banned there for speaking their mind about Lyme Disease over the years. It's pure censorship.
This so called Lyme board as recently as this week made fun of a member who takes some meds to survive daily life because she has to support a family alone and could never survive on SSDI alone. This so called board basically implied that this member was a druggie. It was the most mean, hateful thing I think I have ever read on a board to date. And what's more sad is that it was done from one Lymie to another just to further the appearance of their camp "C" stance and to take credibility away from this person.
Well, that backfired on them too!!!
I don't think it's even worth mentioning who runs the board there, because I don't think we should pay them any attention and besides, the posting frequency at that board has become non- existent now anyway because all the really active members are no longer there or are no longer posting, because they are disgusted.
I am happy that we can agree to disagree here.
I would hope that that other board would come to their senses and make a public apology on their site. This was beyond anything that I have ever seen. I fear if they don't do this ASAP then their site will be doomed for life.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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posted
I got banned from prohealth too and all I did was try to help lymies get diagnosed.
Even had help from my buddy frankenstein a few times. I went back a while ago and counted about 40 people who we helped get diagnosed. And about a dozen more are seriously looking into lyme so we helped a few-pj
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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