posted
I am writing on behalf of the group of Lyme patients who have come here from Canada for treatment.
You can find their story online and u tube. I recently had the pleasure of meeting these very special people who have been refused
treatment by their government and have traveled to the US for help. Despite their own personal struggles with this disease they have fought to
bring public attention to the horrible injustice that is occurring in Canada,in the hopes they said, that others might someday get treatment for
this awful disease. I was so touched by one story in particular that I just had to reach out to the community and share it with you in the hopes that
someone out there might be able to help. One of these young women is so terribly ill at this point that she had to be escorted by a doctor on the
plane ride over. She is literally on deaths door and is still being refused treatment in her condition. Her loving family had to charter a
private plane to get her here even though they do not have the financial means to do so. I am not related to this case and I know that we all have
struggled in the face of this horrible disease, but the lengths that this family has gone to save their beautiful daughter, and the selflessness
that all of these people have shown touched me so deeply. The family will likely be in the Bay Area for several months while their daughter undergoes
treatment. As I said the funds are not there for this trip, the hotel room etc. If anyone can offer a room or any other assistance or if you have some
ideas for getting support together for this family please contact me.
I am not collecting money. Please do not go
through the website for this but contact me directly.
[ 31. May 2008, 07:09 PM: Message edited by: bluebird163 ]
Posts: 10 | From marin | Registered: May 2008
| IP: Logged |
bettyg
Unregistered
posted
welcome bluebird, glad you found us.
you mentioned canada; i'm pretty sure this is about MARIA. read this board for OTHER INFO ABOUT HER FROM CANADIANS, ETC. we've been following her case for a long time!! her video is shown in my post in support, LYME VIDEO COLLECTIONS.
while there, please watch the link on ALEX HERMSTAD, 14, IOWA, dying also!! she's on ventilator/paralyzed.
unfortunately i could read only a copy lines since majority of us here have neuro lyme and can't comprehend/read LONG SOLID BLOCK TEXT.
so please break it up, and instructions are below.
WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
**********************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Bluebird...
Do you mean Tampa Bay- Chesapeake Bay- San Franscico Bay?
posted
Can you give me more info about this girl and her situation?
I live in San Francisco. Though I don't think I can directly help, I have lived in SF for many years and know a lot of people in the area. If I could get more info about this girl and the family's specific needs, I will send an email out to everyone I know in the SF bay area asking for a spare room, etc.
Posts: 408 | From California | Registered: Apr 2008
| IP: Logged |
We've been following Marie's story for quite some time. There are some threads here on Lymenet about her situation.
For people who would like more information, I recommend that you look at the following links to posts here on Lymenet. These threads include the original YouTube video on Marie that Jay (Marie's father did), links to updates on their story and how to contact them to offer assistance of any kind, and links to news pieces and news videos of Marie's flight to Canada last week for treatment:
Lymenet Medical Section Forum Post Titled, "Update on Marie McQuhae 5/26/08"
And just to clear up, we've been asked by Jay McQuhae and also the McQuhae family spokesperson to contact the Save Marie Campaign at [email protected] for information on how to contribute or help Marie and her family.
A Trust fund has been set up by the McQuhae's which is dedicated to Marie's medical care. And donations (well monetary, anyway) should be done through this vehicle according to the McQuhae's.
Bluebird, I'm confused, are you collecting money for them too?
Sorry if I might have misread your post or missed anything pertinent. I have problems reading messages that are all in one solid block of text. Darn Lyme has made reading those types of posts challenging.
Fuzzy
Posts: 503 | From Maryland | Registered: Oct 2007
| IP: Logged |
lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Breaking this up for those of us who can't read it as posted.
I am writing on behalf of the group of Lyme patients who have come here from Canada for treatment. You can find their story online and u tube.
I recently had the pleasure of meeting this very special people who have been refused treatment by their government and have traveled to the US for help.
Despite their own personal struggles with this disease they have fought to bring public attention to the horrible injustice that is occurring in Canada, in the hopes they said, that others might someday get treatment for this awful disease.
I was so touched by one story in particular that I just had to reach out to the community and share it with you in the hopes that someone out there might be able to help.
One of these young women is so terribly ill at this point that she had to be escorted by a doctor on the plane ride over.
She is literally on deaths door and is still being refused treatment in her condition.
Her loving family had to charter a private plane to get her here even though they do not have the financial means to do so.
I am not related to this case and I know that we all have struggled in the face of this horrible disease, but the lengths that this family has gone to save their beautiful daughter, and the selflessness that all of these people have shown touched me so deeply.
The family will likely be in the Bay Area for several months while their daughter undergoes treatment.
As I said the funds are not there for this trip, the hotel room etc.
If anyone can offer a room or any other assistance or if you have some ideas for getting support together for this family please contact me.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
| IP: Logged |
posted
To be clearer, this is about trying to find somewhere for them to stay and get some help while living in the SF Bay Area -- not about fund raising since they already have a web site for that
Posts: 27 | From San Francisco, Ca | Registered: Apr 2007
| IP: Logged |
bettyg
Unregistered
posted
god bless you lymednva for breaking up her 1st post which she didn't do for all us neuro lymies!!
have you folks tried RONALD MCDONALD HOUSES ???
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anywhere in the Bay Area. They would prefer two bed
rooms. And need someplace quiet.
[ 31. May 2008, 07:06 PM: Message edited by: bluebird163 ]
Posts: 10 | From marin | Registered: May 2008
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
#1 I would call the Ronald McDonald House of the hospital closest to her LLMD. Ask the director if they know of a Homes for Hospitals program, or other program for people who have to travel for their medical care.
There is another name for this program, but the Ronald McDonald House will know of the programs available in your area. This program is specifically for the patient and family undergoing treatment or testing on an outpatient basis.
These programs provide free lodging for the patient and their companion or caregiver(s).
I'll try to find a name, but the Ronald McDonald House director should know what program I'm referring to.
I used the Homes for Hospitals program when I took a family member to the Philadelphia area for several LLMD appointments. They are very flexible and may be able to provide extended housing.
These are certified homes and the applicants must have a character reference from a physician, dentist, social worker, or other professional.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
See the Free Medical Lodging Resources post at:
hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
I forgot to add that a patient traveling for a LLMD appointment qualifies to stay at the Ronald McDonald House. I think you have to be at least 2 hours away from your home to qualify to stay at the RMcDH.
But, a room is not guarranteed to be available at the RMcDH. You can be a guarranteed lodging through the National Association of Hospital Hospitality Houses program.
I plan to use this plan again when I travel for our LLMD appointments.
Hope this helps you Marie! We're praying for your recovery.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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