posted
Pretty common!!! And since you've read my story, you know my answer is ME!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I was misdiagnosed with everything under the sun for five years, but yes, yes, yes....Fibromyalgia was one that definitely stood out as one they were certain I had.
Sadly, they don't know what causes fibro, don't have any fix for it and yet they have no problem giving you that as a CLINICAL diagnosis.
I had a doctor that felt that anyone diagnosed with fibro should definitely get checked for lyme PROPERLY.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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bettyg
Unregistered
posted
1st dx was MONO/EPSTEIN BARR VIRUS followed by fibro and the REST to follow......
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posted
I was misdx'd with possible ms first, but brain mri showed no lesions,then got the dx of fibro. Then more strange "auto immune" dx's. My first bite was abt 20 yrs ago, but it looked like a big bruise so I wasn't treated then.
2 yrs ago I got another bite, looked similar to the bruise.I pushed the rhuemmy to do the wb and had 6-7 bands pos.
I would say fibro is a common mis dx.
-------------------- Take Care, DakotasMom01 Posts: 371 | From NJ | Registered: Dec 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Yes, I was misdiagnosed with CFS and fibro for 20 years. Quack, quack.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Yep. It was mentioned...sort of. SEcond visit into primary doctor's office.
he gave me a piece of paper about fibro..stating learn to live with it...nothing you can do about it..don't try and get disability.
..told him i did not have the 4 symtpoms listed.
..he said you have the fatigue don't you, then walked out of the office
..sent his nurse in to tell me not to come back for 6 months.
..told her i needed to find out what this was and get back to work
..later saw a specialist in fibro who said he didn't know what i had but i did not have fibro and to let him know when i found out
...had several come down sick at work, same time, same symptoms...one was dx with fibro brought on by stress at work
she got workmen's comp and disability from work
5 years later finally got in to see a doctor through workmen's comp who gave her lyrica
said it has improved quality of life
she is not interested in looking into lyme disease and is ok with fibro dx
other had all ready been dx with fibro and then was dx with cfs ...
...she also is not willing to look into lyme disease
she too was approved for disability at work
both seem to be able to do more than i am able to
workmen's comp is helping her out with chiro visits and massage therapy I think and antidepressants and visit to shrink
i think when it comes to things attacking the inside of the body we all have a lot to learn
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
How about myofascial pain syndrome? I was told I had myofascial pain syndrome or Fibro. I think they're almost the same thing. I do have myofascial pain. It is a symptom however, not a dx.
If someone doesn't know about the fascia in the body I'd be happy to explain it or provide a link.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
I think it's a political plot to tell us we have fibro. That way, we don't get to find out we have Lyme.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
I was told in 1979 I could have Lyme Disease...but not treatments or tests then at all.
Then I was dxd in 2001 with Lyme Disease and sent to a Rheumatologist...he told me I did NOT have Lyme Disease and was a classic case of Fibromyalgia.
Then I went to Infectious Disease Doctor in 2001 and he treated me with doxy for 6 weeks and iv rocephin for 3 weeks and on my follow up visit he had my iv removed and fired me.
I have since been told it is not Lyme, it is your anxiety. Do you want a med for depression? Are you getting behavioral health help? It is just old age...LOL Everyone has something has also been told to me.
It is a lonely, devastating and expensive disease to get...dang tick! Right now I am suffering from upper leg pain and swollen leg down to my toes...maybe it is from the 6-8 bottles of water I drink everyday!!! LOL Will find out when I go to my regular Duck Doc tomorrow. Here come more blood tests..I am sure...ouch!
Hugs, Perplexed Posts: 324 | From Lexington, KY, USA | Registered: Dec 2001
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Perplexed,
Sounds like you need to get to a LLMD!
Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
CFS, Fibro and Myofascial Pain Syndrome should not be considered a dx. They are a syndrome which are a group of symptoms! A label they put on a bunch of SYMPTOMS that they don't understand and don't know the cause.
Posts: 2541 | From Northeast | Registered: Jan 2008
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