posted
Hi everyone, I am new to this site,but not new to Lyme Disease. I was diagnosed 1/08 using igenex labs. (CDC positive) I have been very sick for about 7 years now. My Doc. told me I had FM and CFS before I found out It was really lyme disease. I struggle with my full time job. I can hardly function at work. I just feel exhausted and cant do anything else, but just go to work and then im sick and depressed. I have made improvements with antibiotics, but do not feel like I am better. The more I push myself the worse I feel. Does anyone else feel like this, or am I just being a baby? I feel my LLMD thinks I should be better by now, but I dont want to say I feel better If I dont. Id like to try for disability, even if its just for a year or so. Any advise? Thanks
Posts: 45 | From michigan | Registered: Jun 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Our Lyme support group had a Disabilty (ssd &ssi) speciality lawyer. I'm in CT but will PM you his email maybe he can refer a name to you in your state.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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bettyg
Unregistered
posted
welcome sandi,
YOU need your llmd's support in his medical documentation why you PHYSICALLY can NOT WORK:
why you can't all day: ************************
sit use your hands climb crawl lift bend walk, etc.
and how long you can do each of above in 1-2 hrs. or 30 minutes or NOT at all.
so ask them for help.
also, sandi, please break up your long, solid block text which we neuro lymies can't comprehend/read well ok.
instructions below...
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!
**********************
Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.
We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!
Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.
We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!
So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there! Betty *******************************************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i know people who have been successful at getting ssdi with a fibro dx...with lyme dx it's harder.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Thanks to everyone who replyed, I dident think this would be easy. I see him again on 7/16, mabey I will work up enough courage to ask him by then. thanks again, sandie
Posts: 45 | From michigan | Registered: Jun 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I simply asked my doctor. I think he was waiting for me to figure out that I really couldn't work, despite my best efforts!
I would suggest you get in contact with a local or nearby support group and ask about SSDI attorneys who have been successful in winning cases of those with Lyme, CFS, FM.
I won mine based on my neuropsych testing which showed my cognitive sills were severely impacted by my condition.
My LLMD as written letters stating I am completely and permanently disabled.
Of course, I am older and have been ill most of my life, so that may not be true for those younger and who caught it earlier.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
This link, at the top of this forum, offers advice:
posted
WOW!! Thanks for all the great info everyone. There is alot to sift through, you guys are awesome!! thanks so much Posts: 45 | From michigan | Registered: Jun 2008
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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