posted
I have been on a roller coaster ride for 1.5 years with my CFS/EBV and not getting any better, actually getting worse over here. I got in with an LLMD (due to a cancellation) very quickly.
I am mostly nervous about leaving something out. I have a 3-page sheet of info about my history/symptoms as well as my doctor's reports over the past 1.5 years. I also have my printout from my pharmacy of the timeline of the 22 antiobitics I have taken in the past 1.5 years. I keep telling the doctors that I basically cannot get out of bed without antibiotics, ironically Biaxin and Clindamyacin are my 'drugs of choice' to treat my CFS. Looking back *now* it is all starting to come together. Anyway... I *think* I have my ducks in a row with all of this paperwork but I can't be certain.
I am also worried about laying out this amount of money (it is a LOT for us to afford) if I get the same response from her as I got for the past 1.5 years. Basically CFS/EBV, just deal with it. I need my life back and I will be really really upset if I pay all this money and this is just another regular visit, no different than most of the other 10 doctor's I've seen. I hope it is different and there are answers for me. Please keep your fingers crossed for me.
I just got two + bands on Quest 3 weeks ago so I know I am most fortunate to be getting in with an LLMD so soon, I just want this to be the end of the line, where she says "A-HA! Yes, I can help you regain your life" I am in my 30s and need a life again.
Gotta get ready to leave. So nervous. Wish me luck!!!!!
-------------------- Junegal Posts: 18 | From East Coast | Registered: May 2008
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cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Good luck to you. I know it can be nerve racking, going to your first appointment, but if it's like most of us, it's a RELIEF to finally find a doctor that UNDERSTANDS our symptoms.
Please keep us posted on how it goes.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Wow. Two positive bands with Quest!
I only got one from them and I have Lyme.
Good luck with your appt. There is always tons to take in.
Let us know how it goes, okay?
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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