Topic: Hiker/Walker/Mover's Club June 29 to July 5th, 2008
kam
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posted
Recap of week 35
Akinwolf
Tuesday-Me and Rocky 3 miles today. Moved some cut down trees in the yard and pulled a few weeds. Couldn't start the lawnmower or the weed eater (residual problem with healing right arm).
Wednesday-Another 3 miles for me and Rocky. Whew!!! It's hot down here. In the 90's even around 10:00 a.m.
Andie: Did not hear from Andie this week. I think she is just trying to work and get through the summer. Miss you.
Bob: Miss you too. Guess you are still resting from hitting the 100 mile mark. Sheesh.
Cathy
Last we heard from Cathy she is in search of getting the supplies for the IV. Her area is also having thunder storms so it helps cut down the disappointment of not being able to get out and walk right now.
And she has an appointment in NY MOnday. Looking forward to hearing how that goes and how you did. Praynig and hoping all goes smoothly and positively.
Don
Miss you Don. Hope you are able to access Lymenet soon.
KAM
Mon am: 2 hr outing in pc
Tues am: outing in power chair est 30 min Water Therapy est 30 min(drove myself)
Tues pm: 5 min in forest...rest....5 min out. It was too much.
Wed drove 8 miles out of town in search of water.
Walked 5 min est to stream. Tough going physically.
Also stopped at two stores on the way. Parked right in front of women's store. Walked to entrance and asked if they had swim suits. Nada.
That in itself wore me out.
Wed pm: 40 min outing in pc...not all on the road..stopped at feed store and vet.
Thurs pm: est 40 min outing in pc.
Fri am: 1 1/2 hr outing in car/30 min slouching wtih feet up at dog park/got gas/drove around a little/tried stopping at yard sale but too difficult to be on feet
Sat am: 1 hr outing in PC
Lou Lou
June 25th: 4 miles for me yesterday! That's right . . . 4 miles!!
WOW. That must feel great Lou!
June 27th: 1.5 miles yesterday and one hour weights.
1.5 miles this morning and one hour weights.
Sore and tired . . . but HEALTHY!!
TuTu
1.0 mile on Tuesday ..
and 1.50 miles on Thursday!!
Been walking on my brother's treadmill. Like the natural way better.. but I'll take what I can get!!
Good for you...even getting your exercise while you are out of state.
[ 29. June 2008, 06:50 PM: Message edited by: kam ]
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kam
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And the week's March on as we march towards better health. If you are interested in adding exercise or movement to your program to regain health this is a great place to be. Please join us.
Recap of week 10 for group 2
Awesome Ali
June 22: OK. Finally yesterday I had a shift from depression to a much better frame of mind. I started to set limits with my soon to be estranged husband.
I stood today 8 times and almost jumped out of the wheelchair a few time. Will lie on stomach an hour tonight. Glad to be back. Aliyah
June 28: Rode the theracycle yesterday. 2MPH for about 35 minutes. About 1 mile. Then I crashed. Not the bike. My body.
Welcome back Ali...setting those limits with people or ourselves is tricky when the health is low...good for you.
Justag
Did not hear from Justag this week. Hope all is well Justag.
Larkspur:
June 23rd: My pedometer read 2.22 miles today when I got home from my walk!
If anyone happens to believe in special meanings when you encounter a particular number sequence:
"222-Newly planted ideas are beginning to grow into reality. Keep nurturing them, and soon they will push through the soil so you can see evidence of your manifestation.
In other words, don't quit five minutes before the miracle. Your manifestation is soon going to be evident to you, so keep up the good work! Keep holding positive thoughts, keep affirming, and continue visualizing."
June 24: 2 miles today for me...
MTree
June 22: I did walk....1.75 today up at the beach
To add on to my week from Sunday.......... Monday I did a mile...
Tuesday...1 mile during the day....by myself.....then when Dh came home another mile.... .........so 2 miles for Tuesday....
Today Wednesday.....decided to just go sit at the beach....which was big for me....the driving.... ..... no walking tonight... Thursday...26th...1.75..miles Friday... ...not a great day for walking... Saturday....out and about day...visited mom in PA... Dh and I took her to Home Depot...Barnes and Nobles....no walking other then shopping..
Sorry to hear about the cat. They so eaasily become part of us and live in our hearts forever.
Lou B
Haven't heard from Lou B lately. Hope you did not over do it Lou.
[ 30. June 2008, 10:06 AM: Message edited by: kam ]
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kam
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From Scott's article in Public Health Alert
E = EXERCISE.
"E" was an evolution of Teitelbaum's previous "SHIN" protocol.
Dr. Teitelbaum observed that those patients that did the best with their recovery were those that incorporated an "exercise as able" component into their protocol.
Each component of the "SHINE" protocol is a key to improving a patient's state of well-being.
None of these components can be overlooked. The following are some important points of each of the components of the "SHINE" protocol.
And later we have the Big E again...in SHINE
E - A well-rounded treatment protocol should incorporate exercise.
"Exercise as able" is the recommendation of Dr. Teitelbaum. He suggests walking can be a very powerful option.
Do only what you can do. 5 minutes of walking daily is a great place to start.
When your energy production ramps up as one continues on the SHINE protocol, exercise can be increased.
It is important to remember that early on in treatment, the body has limited energy and over-exercising can be counter-productive and cause the patient to crash.
Chronic illness such as Chronic Fatigue, Fibromyalgia, Lyme disease and others are the body's way of protecting itself and taking one out of the game in order to limit further damage in the face of overwhelming stress.
Dr. Teitelbaum himself suffered from Chronic Fatigue Syndrome in the mid-70's and went from medical school to sleeping on park benches as a result of his illness.
Thank you Scott and Dr. T and all those others who have walked the path before us and are now helping us walk it.
Kudo's to you.
[ 29. June 2008, 06:56 PM: Message edited by: kam ]
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kam
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Sun am: 1 hr outing est in pc after 2 excedrin
noon: drove Rosie to dog park and walked in, slouched with feet up, walked out when the guy who talks alot came in.
Brain still can not be in the presents of a non stop talker and be able to walk out.
Car overheated on way back. Not the first time, but brain was working well enough this time to put two and two together.
Noticed the smell when I was driving around last week and knew something wasn't right...but brain was not working well enough to catch on.
So, waiting until it cools down ...most likely when it gets dark...and then will see about putting water in the radiator.
Wondering about coolant too. Think I have the problem when I turn air on.
Note; dog park is about 5 min away so it is not good it is getting that hot that fast.
Not good also that the brain and body are so limited on what it can do.
Trying to do what I can first before I take it to a mechanic.
[ 29. June 2008, 07:01 PM: Message edited by: kam ]
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Leaving for the inlaws Monday. Will have to walk on the county road??? Love you guys!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
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Hurray! We got our first monsoon today. The temp dropped about 20 degrees.
Went out to toilet Rosie in my power chair and had to come back in. Got in the car to take her to the dog park instead.
it was still coming down too heavy for the dog park.
So, waited it out. Clear now. Deed done.
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kam
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Mon am: est 20 min around the block in pc 1 1/2 hr to grocery store via pc and sr van.
Mon pm: 1 hr outing in pc (car is caput)
Wish I was on my feet instead but thankful that I am able to get out and do my own shopping now for the most part.
thankful to be out of house too. High 90's today so far.
[ 30. June 2008, 08:45 PM: Message edited by: kam ]
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Sunday....up at the beach walkin....1.75 Monday....did some outside work...planting flowers...screamed when a nasty spider decided to join me....
mtree
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kam
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Mtree...that beach walk sounds wonderful
The spider not.
Working in the garden yes.
TuTu..hope you have a safe and pleasant walk on those country roads.
[ 01. July 2008, 11:58 AM: Message edited by: kam ]
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lou4656
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2 miles yesterday in 32 minutes. Huge improvement over when I first started when it would take me an hour to walk 2 miles.
I'll try to get last week's summary up later this afternoon. Sorry it is taking me so long to get the summaries done.
My plate is just a bit full these days. The one thing I've noticed about getting well is that everyone needs something from you. You no longer have much free time.
Which is fine with me. I'll take a full healthy plate any day!!
There's a full healthy plate waiting for all of you. Keep moving!
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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kam
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2 miles in 32 min. Pretty Cool Lou.
No worries on the summaries.
YOu come first and your health.
It must feel great to be able to do things again, but let me know if you figure out how to stay within your limits and pace yourself.
Rosie tells me when my brain is being weird. She just refuses to go. It doesn't happen often now, but I am thankful for her.
Tues am: 30 min est around the block sort of.
7 two min exercises in water therapy.
Very weak now and low functioning. Talk to doc soon.
Guessing I need to get back on some supplements I stopped when I started on the Cowden.
Wasn't sure which things I could mix with the cowden herbs.
When the stomach started bloating again, I finally figured out I needed to get back on probiotics.
Also started back on the isocort this am.
Started back on the vit c and b earlier.
But, not sure about some of the other stuff yet so waiting on doc's advice.
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tdtid
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Back from seeing Dr. R yesterday. Since he's in the city, I did get in some slow motion walking. I was dropped out in front of the office when getting there, but walked the four blocks back to the parking garage, so hey....can that count for some walking.
Appointment went well. Going to go the port route and right now I'm in waiting mode as he sees about insurance approval to get it in and then I guess the insurance battles can start, but atleast I should be on the right path, even if much is out of pocket.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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lou4656
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LAST WEEK (followed by grand totals beginning 4/27/2008)
Kam -- 8 hours, 10 minutes this week! A great week, Kam! (GRAND TOTAL = 51 hours, 40 minutes plus water therapy)
LouLou -- 7 miles plus 2 hours weights. 20 miles to go to catch Bob!(GRAND TOTAL = 80 miles, 15.5 hours weights)
Andie -- We really miss you. (GRAND TOTAL = 1.5 miles)
Akin -- 6 miles! WOW! And an offer to make us blackberry cobbler! YUMMY!(GRAND TOTAL = 36 miles)
Don -- Heard that Don was having problems with the computer posting messages. If you can see this Don, we miss you! Hope you can post here soon.
TuTu -- 2.5 miles! Doing the Texas 2-step!(GRAND TOTAL = 35 miles)
Cathy -- is waiting to meet with her new LLMD in NY. We are waiting to hear the good news from her. Please keep Cathy in your prayers. (GRAND TOTAL = 2 hours 10 minutes & 1.75 miles)
Larkspur -- 4.22! The newly planted ideas are beginning to grow into reality! Beautiful! (GRAND TOTAL = 16 hours & 7 minutes plus 8 miles)
Tracy -- Join us when you can, Tracy! (GRAND TOTAL = 16.5 miles)
Awesome Ali -- Ali had a fabulous week! Her depression is lifting She stood 8 times, was on her stomach for an hour, 30 plus minutes on theracycle and in the standing frame for 30 minutes. 2.5 miles total! Congrats! (GRAND TOTAL = 17.5 miles cycling)
LouB -- Gone again this week. probably busy! (Grand total = 2 miles treadmill, 15 minutes rowing machine and 3 miles bike)
Bob -- Bob . . . oh Bob! Where are you? (GRAND TOTAL = 100 miles)
Justag -- Justag was here, and gone. Come back, JT! (Grand total 7 hours)
Here are our grand totals for the group:
For those measuring in mileage: 350.7 miles For those measuring in time: 103.5 hours
Two huge accomplishments this week. Kam has broken the 50 hour mark, and those using time as their exercise measurement have broken the 100 hour mark. Congrats to you, Kam. You are our inspiration!
I know there more Lymies out there that are ready to start incorporating exercise into your treatment. We are here to encourage and support anyone that wants to add exercise as part of their healing.
So, please join in!
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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lou4656
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Kam, I stay within my limits (usually) by listening to my body and my spirit.
I know when I have overdone it . . . and I generally know when I am in the process of doing too much. My body hurts and my inner voice says STOP!!
But last Friday, my trainer had me pressing too much leg weights. I told her that it hurt, and she kept urging me on. I could hardly walk on Saturday and Sunday.
This will not happen again.
On days when I do not do weights, I am trying to really push myself for 30 minutes. Then, if I have energy left, I continue walking, but at a slower, more relaxed pace.
But remember my progress has been gradual. So my stamina can adjust to the increased demand I am putting on it.
I am trying to use the turtle approach vs. the hare approach to exercise.
But most importantly, pay attention to your body. And listen to your inner voice. Your inner voice will never betray you.
Hope this helps, Kam.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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aklnwlf
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Tuesday-Me and Rocky 3 miles and now will be on the lookout for spiders too!!!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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kam
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Lyme: The Great Turtle Race
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Wooo HOOOO!! Been Texas Two-Steppin' down the county road today.
2.0 miles!
I may not be able to post for another week. Not sure. You know we South Texans don't have computers...
[my father in law refuses to get one!] He's 81, so he's excused!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lou4656
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3 miles today!
We'll miss you TuTu, if you can't get online.
Kam -- I saw one of those turtles once. They are beautiful. If I was a turtle in a race, I would want to look like that one.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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kam
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Tues pm: 1 hr outing in pc with some listening and talking included.
Kind of felt sick a couple of times and had to get going and end conversation. But, able to hold a conversation for short period of time. Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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Wed am: around the block in power chair. est 20 to 30 min. Hope to check later.
Wed pm: outing in power chair. time ?
Thurs am: outing to dog park. over did it..down for rest of day so far. inflamed brain thing
Fri am: around the block outing ni power chair est 30 min
Got to do a better job of listening to body and spirit like Lou
[ 04. July 2008, 10:38 AM: Message edited by: kam ]
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kam
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HUMP DAY. It is down hill from here gals and guys
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Hi all - just checking in to say I haven't been up to walking the last few days
Hopefully I'll catch up to everyone soon!
I made this about a year ago - it just seemed to capture how I'm feeling today.
Thought I'd share this and maybe provide some inspiration on our journeys
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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kam
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Larkspur....I LIKE IT!
Thanks for taking the time to post it.
I haven't been able to walk either. I sure miss it.
It is good to read about Lou, Akingwolf and Rocky, TuTu and Mtree out there walking.
Wondering how Bob, and LouB and Andie, and Don, and Ali, and Justtag are doing. Did I miss anyone?
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lou4656
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2.25 miles for me this morning.
Happy 4th of July to everyone tomorrow.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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kam
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This is an outstanding performance by grammar through high school kids.
One of the fathers recorded it, added some graphic enhancements to the recording, and posted it on the web.
The song, of course, is the 'Battle Hymn Of The Republic.
It sends shivers up your spine, it is so fantastic! Enjoy!
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aklnwlf
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On Wednesday-Me and Rocky another 3! Then had family come over for movie/chili night. So wore out though looks like no walking today.
Hey everyone, happy fourth. Will be busy tomorrow so probably no walking but will be having fun!!!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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kam
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More from this issue of the Public Health Alert's article written by Scott...
Where do you stand on the Vitamin D debate?
Vitamin D deficiency is a significant concern. For many people, Vitamin D must be supplemented in order to support immune function, avoid osteoporosis, and control pain. I often find that Vitamin D restriction can lead to horrific outcomes.
It can be helpful to perform a D 25 and D 1,25 level and if the ratio of D 1,25 to D 25 is greater than 2, there may be an infectious origin and appropriate treatment may be necessary. I generally recommend 2000-4000 units a day if a patient has decreased bone density or 1000-2000 units a day otherwise.
Going for walks and exposing yourself to sunlight are important activities to support the body's ability to generate Vitamin D. Avoid sunburn, not sunshine.
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kam
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Fri am: able to drive myself to grocery store and use electric cart at store to get groceries. it was a struggle and I would not want to have to do this each time.
But, so thankful I was able as the senior van is closed for the next 3 days and I was to sick to go as scheduled yesterday.
Fri afternoon...around the block outing in pc...storm in the distance heading this way.
[ 04. July 2008, 06:46 PM: Message edited by: kam ]
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kam
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Sat am: 5 min walk into forest. rest on rock. 5 min walk out. I was there but not there kind of body and brain feeling.
They also tore up one of the better, newer paved roads on the way to the trialhead. Dirt now. Not sure what is going on. I guess time will tell. Lots of dirt moving equipment in the area.
Car still trying to tell me something too. It shut off again. Just got it back from mechanics.
Guess they did not check the timing or that problem. They did fix the broken hose problem but said others were getting ready to go also. Very old.
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kam
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Summary of week 36 (I think I have this wrong. It seemed like we were past this and into months now) Numbers and my brain are still not working yet.
Akinwolf
On Wednesday-Me and Rocky another 3! Then had family come over for movie/chili night. So wore out though looks like no walking today.
Hey everyone, happy fourth. Will be busy tomorrow so probably no walking but will be having fun!!!
Andie:
Looking forward to when you can get out and go for walks again. MIss you.
Bob:
How are you doing? Busy summer?
Cathy
July 1: Back from seeing Dr. R yesterday. Since he's in the city, I did get in some slow motion walking. I was dropped out in front of the office when getting there, but walked the four blocks back to the parking garage, so hey....can that count for some walking.
Appointment went well. Going to go the port route and right now I'm in waiting mode as he sees about insurance approval to get it in and then I guess the insurance battles can start, but atleast I should be on the right path, even if much is out of pocket.
(Good Luck. Sure hope all goes well and it helps)
Don
KAM
Sun am: 1 hr outing est in pc after 2 excedrin
noon: drove Rosie to dog park and walked in, slouched with feet up, walked out when the guy who talks alot came in.
Mon am: est 20 min around the block in pc 1 1/2 hr to grocery store via pc and sr van.
Mon pm: 1 hr outing in pc (car is caput)
Tues am: 30 min est around the block sort of.
7 two min exercises in water therapy
Tues pm: 1 hr outing in pc with some listening and talking included.
Wed am: around the block in power chair. est 20 to 30 min. Hope to check later.
Wed pm: outing in power chair. time ?
Thurs am: outing to dog park. over did it..down for rest of day so far. inflamed brain thing
Fri am: around the block outing ni power chair est 30 min
Fri am: able to drive myself to grocery store and use electric cart at store to get groceries. it was a struggle and I would not want to have to do this each time.
Fri pm...around the block outing in pc.
Sat am: 5 min walk into forest. rest on rock. 5 min walk out. I was there but not there kind of body and brain feeling.
Sat afternoon: errand to feed store via power chair 30 min est.
Lou Lou
July 1: 2 miles yesterday in 32 minutes. Huge improvement over when I first started when it would take me an hour to walk 2 miles.
July 3: 2.25 miles for me this morning.
TuTu
June 29th: 1.25 miles today on the treadmill! July 1st: Wooo HOOOO!! Been Texas Two-Steppin' down the county road today.
2.0 miles!
I may not be able to post for another week. Not sure. You know we South Texans don't have computers...
[ 05. July 2008, 05:41 PM: Message edited by: kam ]
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kam
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Summar of week 11 for group 2 (Almost 3 months now)
Awesome Ali
I know the trainers have been there and you have been working. Too exhausted to post??
Justag
Missed you again this week. Hope you are doing OK.
Larkspur:
June 29th: walked 2 miles today
MTree
Not a very good walking week....had a little set back....
Sunday....1.75miles up at the beach.... Monday..... ...planting flowers with an uninvited guest...a spider....
The rest of the week I was out of commission for walking.....hip problems...and my Chiropractor is on vacation till the 9th
Lou B
I know you were working on the site very early this am. How is the exercise program going?
[ 05. July 2008, 02:36 PM: Message edited by: kam ]
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Larkspur....I loved the picture you had up that you made....how do you make that...paper..fabric...?
Not a very good walking week....had a little set back....
Sunday....1.75miles up at the beach.... Monday..... ...planting flowers with an uninvited guest...a spider....
The rest of the week I was out of commission for walking.....hip problems...and my Chiropractor is on vacation till the 9th ....how dare he... Did accomplish other stuff though.......just couldn't do the walking for a long period of time.... Next week hoping it will be better........
Happy 4th weekend everyone.... Even though I was out of commission walking this week....I thought of all of you ...and it encouraged me
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Trying to get back in to excersizing, diagnosed on Wednesday, my back, hips and legs were so sore I could not get out of bed, hand and feet swollen, Need advise, do you all excersize through the aches and pains or do you wait until you feel better and then get some excersize in. not sure how long I have been sick, don;t know how they tell that, just looking for support and ideas at this point, scared as hell. Love to walk, won't be walking in the woods any more.
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kam
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Lianne,
I was not able to get out of the house in a power chair for quite some time.
When I started water therapy, I would throw up and could do very little.
I think the water therapy works the best for me.
It might work for you too.
I also had cycles....I would be able to walk a little for about 3 days in a row and then it would be months before I could again.
WE are all different.
Just do what you can when you can and try to listen to your body and spirit.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
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Thought of you today. I am in more pain than I was yesterday morning.
I think it is because I had the water therapy and also cruised home in my power chair instead of taking the senior van home.
I also helped the housekeeper load my comforters in and out of her car so she could take them to the laundry mat with the large washer's.
I have found that the more I move about the more I have pain and have difficulty moving.
So, for me..working through the pain only makes it worse and I am able to do less.
I need to find the balance and do what I can when I can.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Kam,
I'm with Lymetoo. Listen to your body. Sadly, we need to find that balance since pushing too hards, just takes us back a whole bunch of steps.
It's so frustrating! So much needs to get done but our health comes first. Good luck to you.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Good reminder. And I will try to remember this.
It seems i live in the moment with this so much that i sometimes forget.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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