posted
I am in a panic! Me and my 18 month old son were both diagnosed with lyme (I also have babesia and erlichia, but my son does not). I know I've had these infections for 5 years as I remember the bulls eye rash and flu during the summer of 2003. I give this disease to my son congenitally or through breastfeeding. I am so scared! Is this for life for us now? Or can we eliminate these infections and never have to worry about them again? Does anyone have anything encouraging that their LLMD told them? Do the experts say this is curable or does it have to be treated for a lifetime? Please help! Why does it seem like no one really agrees? I've read of people saying that chronic lyme is curable and others seem to believe it's not. What's the truth?
Posts: 63 | From Humboldt County | Registered: Jul 2008
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
Nobody seems to know for sure if you can get rid of it entirely. Don't stress too much about that. Many doctors do say that complete cure is possible. The point is you will be able to get better.
The thing is, most people on this site are here because they still are treating lyme. Once people get all better, they just check in once in a great while. So you won't hear much from the cured people, but you'll hear about them.
Once you get good lyme treatment, your immune system will either knock it out entirely, or do a pretty good job keeping it under control.
We do know that many people treat lyme, and then get better and never have to deal with it ever again.
I'm sorry that you and your son have lyme. It's no fun to have or to treat. But you can both get better, now that you know you have it.
So many people never figure out what the problem is, so they can't get better. You know what this is, so you can both get well.
Make sure you find a lyme specialist (LLMD), ok? Regular doctors don't know enough about this, so they don't do a good job helping. You can post in the seeking a doctor section.
Best wishes to you both. Hang in there!
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Thank you for your response and your kind words. You truly have helped to ease my mind a bit. I don't know what I'd do without all of you here on lymenet. You're like family.
Lymer
Posts: 63 | From Humboldt County | Registered: Jul 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Absolutly
With time
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Lymer
Posts: 63 | From Humboldt County | Registered: Jul 2008
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Lymer, lots of people do well with treatment. It might not be curable, strictly speaking, but even without treatment it can go dormant for years at a time and people live normal lives. Eventually it may take its toll but that can be a long time.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
My LLMD says it is very curable. He has researched LD for 30 years, so he should know!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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adamm
Unregistered
posted
It is not known whether or not you can ever completely
eliminate the pathogen, but getting symptom free
and staying that way is very possible.
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posted
I also think it depends on how you define curable.
To me I would consider it "cured" if my body was able to throw this Disease into remission and it stayed there.
Many ppl have seen their symptoms go away completely. Now whether or not the Lyme is still in there somewhere we don't know, but as long as it never comes back out, I would call that cured.
Good luck to you all!!!
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
Yes. A lot of factors come into play for each individual however.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
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