posted
For those of you that don't know me, everyone in my family of 4 has Lyme to varying degrees. My daughter also has RMSF.
Today my daughter (20) freaked out and raged at me, and attacked me, and of course we had a big cat-fight. Ugly, ugly scene.
She has just started treatment, but has had delusional thoughts, etc., for some time. I am desperately trying to get her the help she needs, but she really does not realize how sick she actually is.
She is constantly starting and stopping lexapro, which I don't think is helping the situation.
But at this moment I am ready to just throw in the towel on this thing. I am having such a difficult time myself and this is the last thing I need right now.... an angry hostile abusive adult in my life.
Can zith be making her herx this bad? We were going to start doxy, but she refuses to stay out of the tanning beds.
I'm really at my wits end today.
Maybe I just need you to pray.
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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posted
I did not do well on Lexapro, but Zoloft has helped me to be more calm and not get angry.
Posts: 365 | From Sylvania | Registered: Aug 2008
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posted
The zith could be doing it -- that's one that is used specifically for Bart treatment and Bart can also casue some pretty big rage. Just a thought...
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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bettyg
Unregistered
posted
bunny, i'm so sorry to read this.
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I take zoloft and Abilify. The Abilify really helps with my Lyme rage. WOuldn't do much if it was a herx though.
I hope things get better soon!
Melissa
Posts: 3905 | From USA | Registered: May 2007
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I'm so sorry your family is going through this. We have four of the six in my family with variable stages of lyme and co's.
I've read so much about "lyme rage" but am blessed to say that so far none of us have encountered it to the degree you have, but we've had some daughters with some HUGE HUGE mood swings.
I mean they will flip out over things they would have NEVER cared about before.
As someone else said, I know that Bart messes with your moods and brain and although I have one daughter on Cipro for bart and the other on zith and mepron for babs, they BOTH can lose it and even start crying for no reason.
Come to think of it, I too can cry at the drop of a hat one day and feel grounded the next.
It's a scary disease and having a complete family infected is nightmarish since no one is feeling well enough to put up with the crap.
I'm so sorry you are going through this. But yes, herxing can definitely come out in all different forms.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
One of my daughters took Lexapro for a while. She doesn't have Lyme. If we forgot to give it to her, she would rage and be violent. This was after missing one dose. I wonder if that could be the problem for your daughter.
When we determined that she didn't need the Lexapro any longer, we tapered her off very slowly. Much slower than I've seen recommended. Even then, the first few weeks after a dose reduction were rough but not nearly as bad as just skipping a single dose.
Posts: 984 | From US | Registered: Dec 2007
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posted
I had horrid lyme rages . . . as an adult you would think would know better. When I was in that mental state, NOTHING mattered. I was just so angry that I even felt that way, that I would act worse to try to get others to understand how miserable I was.
I agree that the SSRI's may be setting her off. They disagreed w/me totally. I eventually settled on neurontin and lamictal. I've been told they are a different class of drugs, anti-phsychotics.
I take a much lower that recommended dose that has been customized for me over time. Your gut instincts are telling you something, but I'm not sure if it's becuz she's missing doses or it's the wrong med.
I really hope you can get it sorted out soon . . . it is a long process so the only thing I can say is if you have any patience, left, try to spread it out. It is truly rough.
Do you have any anti-anxiety meds you can give her for the short term? Maybe that could help during episodes. If she can't take them, maybe you can. Kidding of course :-).
take care, Curley
Posts: 982 | From Florida | Registered: Feb 2002
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I have taken Lamictal for quite some time. It is a mood stabalizer. It is great.....I would be very irrational at times and I did a complete turn around on it.
One thing to keep in mind, you need to be on a good B Complex vitamin while on Lamictal because it affects your body's absorption of Vit. B
It could be a Herx though. Rage is common in Bartonella, and Zithromax treats Bartonella to a certain extent, so maybe that is dying off some. Or it could be Lyme, but consider Bart as well.
Posts: 4590 | From Midwest | Registered: Jun 2008
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
The psych meds can be part of the problem as well as the bacteria,or the abx, or the die off and the toxins. It is hard to pinpoint the issue, but we lived with the rages for a long time.
We have had tremendous success with ability...But when times were horrible, I had a bottle of valium in my pocket for emergencies. It saved lives or damage many times.
I have two damaged knees from being kicked by Doc Martin boots and have been slashed at by diabetic lancets and had a long metal cylinder swung at me along with numerous threats.
I think Bart is a big player in this.
But do not forget to look into other neuro toxins. Mold and heavy metals and other toxins can also be players.
Posts: 2360 | From SE PA | Registered: Mar 2004
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posted
My husband took Lexapro before we knew about the lyme and it was terrifying!!! He acted so strange and some what beligerant. He was totally in the dark about it. He said he felt normal, didn't realize he was acting strange. It took a major family intervention. Best of luck to you
Quote for the day: "The harder you fall, the higher you bounce"
-------------------- abbyjo Posts: 257 | From Southern CA. | Registered: Jun 2008
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posted
Thank you all for your input. I never considered the SSRI's effect on it's own.
I think sometimes I blame Lyme too much.
I guess we can only go up from here.
Bunny
-------------------- 4 strong winds that blow lonely, 7 seas that run high.
All those things that don't change Come what may. Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
And . . .
Some people can't process out certain chemicals or toxins such as specific meds, molds, new carpet, scented products, etc. Porphyria is one condition that has many symptoms. Sometimes, for some, rage may be part of a porphryia attack.
Porphyria can have many types and can be genetic or acquired from chemical poisoning. Porphyrins are normally in everyone as a process of metabolism. However, when EXCESS porphryins build up, that presents problems.
[ 03. September 2008, 10:38 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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toby67
Unregistered
posted
i can absolutely relate to your daughter... i've been kind, calm and laid back my whole life until my first zithro/mepron herx... seems i fly from violent rages to hopeless crying spells all the time now - and I take my hostility out all over my great hubby. maybe if she read some of the bartonella posts, those really made me realize it really is the disease causing these moods.
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