posted
I've been waiting a long time to make this post, and I'm almost afraid to do it now, for fear that it will jinx things.
But, here goes: after over a year of abx, my son is down to only one symptom, nightsweats.
No more mood swings, joint pain, OCD-like behaviors, threatening comments, feeling too tired to walk, NO MORE POTTY ACCIDENTS (for 17 days now, after 2 YEARS of not being able to feel when he hd to have a BM)no more twitching from the temporal lobe seizures. No more struggling to do the things in school that he was able to do when he was 3 or 4 years old in preschool.
Instead we have our sweet lovable 6 year child back, who is kind and considerate of others (even his little brother, at least most of the time!!)
Who aced his very first spelling test, who within 5 minutes of mommy showing him how to, was able to add large numbers column style (mind you, he tested with an IQ of 98 in January, while still in the height of his lyme symptoms)
Who is finally able to run and play and jump and ride his bike again, after too many months of not being able to keep up with his peers.
I know we are not totally done yet, but for the first time ever, the doc actually talked with us about how treatment winds down (symptom-free, tapering off of meds...)
Thank you God, for giving us our baby back.
and thank you everyone here at lymenet, for answering all my questions over the past year, for teaching me all the things about this illness that the docs never tell you, and for giving me the hope and support that has helped our family get through the worst moments of this illness.
Take care all, kp
ps: don't worry, I'm not going anywhere yet. I still have a husband that has to get better!! and of course, my words of wisdom to share with others, for what it's worth!!
He is one tough little 6 year old...must get that from his mom...
No jinx-ing...just enjoy the moment....even if there are bumps a head...you know now that it is possible for him to get better...especially with what he had to get through and overcome...
Months ago when I first jumped on this web site..one of your posts about your son was one of the first I read.....it just broke me...
I am sooooo happy for you... and for him....GREAT NEWS!!
....enjoy your little boy kp...I can only imagine what he will grow up to be with the strength he has inside him..
You are a terrific mom....and he is lucky to have you by his side...
lots of well wishes to you and your family...
now find a date, get a sitter and come on the 6th!!
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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posted
That is SOOOO wonderful!! Yipppeeeee and hoooorraaaaay!!!!!
About those nightweeats, has he been treated for babesia?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
That is awesome news!!
Thank you for sharing your joy with us!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
YEAH!
Your news is awsome and wonderful!
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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Lymetoo, I LOVE the dancing green guy, very stylin'!
Yes, he is being treated for babs, and that seems to be what has brought him over the biggest humps (the potty and the seizures). The night sweats aren't that bad.
As soon as he falls asleep, his skin gets cold and clammy, and shortly after that his hair starts getting wet. After that, I'm not sure, as I usually head off to end my night at that point.
Once this passes, though, it'll be a month of no symptoms, them weaning off of meds.
Then I get to move this post into the success stories column!!!
take care, and for all of you parents just starting this journey, know that there is hope, and that things will get better.
whoopie to do! wonderful news; glad he is doing so well at school, etc.
little brother is appreciating the better treatment too xox
please copy your story to SUCCESS STORIES now to give other parents hope that their kids can get better and read yours as a MODEL to reach their goal !!
best wishes, and thanks for posting; give your little guy an extra hug/kiss from us ok!
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
That is wonderful. I think my 5 year old is there....almost.
Now having some spatial orientation issues which may or may not be Lyme vs. developmental.
Sending prayers for Your family that all will be better soon.
So glad for the great news.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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