posted
I have my first appt. scheduled with an LLMD next week. I can not wait to get there. I was diagnosed with MS five years ago and that came into question last year. I am new here about a week and from what I am reading I believe this may be the answer. The past six months have been rough. I must have missed at least five family occasions, pool party, birthdays and today was a wedding. I am sure members of my extended family think I am nuts or a hypochondriac but oh well. I don't expect them to understand since I "look good". It would have been nice to feel good, get dressed up and go out. I am to the point where I am not planning anything from now on. I sent the reply card back in early September hoping I would be good. Just wondering how many social activities people have missed out on because they are sick? I have an invitation to my brothers on Thanksgiving which I am going to tell him to count me out. Most of my family lives over an hour away from me and that makes it difficult.
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Well, I haven't gone to anything in the last year. I am 4 1/2 hours away from my family. But even if I lived next door, I couldn't handle socializing.
I am lucky that my church has an internet service....so I continue to be spiritually "fed".
Stinks.
Lights, noise, crowds, lack of stamina.
Best, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
my hubby has been in treatment for 2 yrs in nov...he can't be around noise, light or a lot of people...it is hard for him to talk sometimes...just the past 2 mts he gets to see the grandkids and at least talk to them..he misses them the most...they know that Pop Pop is real sick and really do understand...the kisses and hugs puts a big smile on hubby face....so just be ready you may have a real bad few months or years in treatment....take care and hang in there
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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