posted
hello, ive posted on the board a bunch of times.. i'm 24.. was previously really healthy.. ran 3-10 miles a day.. started having strong lyme symptoms july 31st and started treatment, (incorrect tx dose, but tx) on August 25th.. my cd 57 tests results indicated i had a 40.. and my dr said i've had lyme for minimum 6 months... i also have babesia.. im now on the correct doxy dose and on arteminisin and plaquenil... the reason im writing this is because i'm beyond frightened... why do people die? am i going to die from this? i have this awful brain fog at times, im really hot, don't have much energy, have heart palpitations at times.. and i felt better for a brief period of time, but now things seem to be going down hill again... is this fatal? why???
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
aawww honey your not going to die. Just feels like it sometimes. I am so sorry you are sick with this.
The symptoms from Lyme are sometimes explained as waxing and waning, kinda like a rollercoaster ride.
You just have to ride it out. Like skylord said, you will be getting what is referred to as a herxheimer reaction when the bacteria starts dying off(feels like a really bad flu)
Try and give yourself positive messages like "okay, I'm not gonna die, I have to relax" The people here are very supportive and kind so post when you need help.
Feel Better,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Dying from lyme is pretty rare....unless you've had it for years and years untreated.
FEELING like you're dying from Lyme is common though!!!
Hang in there!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Lymetoo,
When you say "years and years", how many years are we talking here? I think I had it at least 5 years before getting diagnosed. Dying from this disease is a fear of mine as well.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
While people do in fact die from lyme, especially if combined with babesia, you are definitely gonna be okay, since you've started treating! I got through lyme and basesia without dying-- Though when it was bad it sometimes seemed even worse than dying!
Babesia can, in fact, be fatal even without Lyme, especially to people without a spleen.
(I have no spleen, and I was really sick until I did multiple artimisimin/atovaquone treatments.-- but I'm "still kicking!") I wish you constant improvement! Daves
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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bettyg
Unregistered
posted
It is sometimes difficult for us to comprehend large blocks of text, and because I wanted you to get more answers, I broke this one up for you. Please do this in the future ok. thanks
quote:Originally posted by hezzer926:
hello, ive posted on the board a bunch of times..
i'm 24.. was previously really healthy.. ran 3-10 miles a day..
started having strong lyme symptoms july 31st and started treatment,
(incorrect tx dose, but tx) on August 25th..
my cd 57 tests results indicated i had a 40..
and my dr said i've had lyme for minimum 6 months...
i also have babesia..
im now on the correct doxy dose and on arteminisin and plaquenil...
the reason im writing this is because i'm beyond frightened... why do people die? am i going to die from this?
i have this awful brain fog at times, im really hot, don't have much energy, have heart palpitations at times..
and i felt better for a brief period of time, but now things seem to be going down hill again... is this fatal? why???
the person who probably knows this the best is melanie rebers who has lymememorial.org site. obits are there, etc.
to my knowledge some causes are: kidney failure, congestive heart failure are the 2 that come to my mind; perhaps pneumonia/double when your lungs are not functioning well.
i'm NOT giving up until they close the coffin lid on me!
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Yes, how many years is too long really? I've been sick for 12 years, was just diagnosed, so no treatment. I remember having the feeling like I'm dying constantly syndrome back in highschool after I got sick, and I have that now again.
I think after hearing that Leslie died, it just scared me, as reality set it.
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Do we know what Leslie died from? Maybe she had other illnesses not ever mentioned!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
that is also why i was scared.. because i didn't realize how serious it really was.. in terms of feelng awful, yes but it seems that alot of people die from it, and hearing about leslie is what originally really freaked me out
Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008
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I had heart palpitations and chest pains on the left side of my chest before I got treatment.
The only treatment I've received was doxycycline, and I've had no heart symptoms since.
-------------------- Grant that I may not so much seek to be consoled as to console; to be understood, as to understand; to be loved, as to love Posts: 61 | From Atlanta, GA | Registered: Nov 2008
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