posted
I had my first visit with Dr. V in Maryland today.
WhileI'm sure it would have gone well, I can't afford the tests that he requires for treatment, including the Babesia....sorry spelling, test for which he is pretty sure I have.
I'm looking into insurance for those people that need it, like me, but the bottom line is I am single without children. I am not a priority.
I feel like giving in sometimes to the feeling that I am going to die from this and just go with it..
I know that is awful to say, but without hope of treatment, I don't want to live.
Posts: 44 | From Maryland | Registered: Jul 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Don't give up.
We will figure this out.
One way or the other.
Do you think your LLMD can diagnose or even do a "challenge" for co-infections?
Without testing?
Testing for co-infections isn't that accurate either.
There are options but first need to see how your LLMD can help you in your treatment.
I had a Fish by Igenex for babesia. Very expensive.
Very negative.
I am on my 3rd round of babesia treatment as my LLMD diagnosed me based on symptoms.
You should see my babesia herxes.
Am sending you positive thoughts and prayers.
Hang in there.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
My LLMD is treating me for Babesia and did not test me for it. He knows the test are expensive and not accurate. You should talk to your doctor about your situation. Tell him you have to cut corners and see if maybe he will skip some of the test to save you money.
Don't ever give up. There is always hope and always answers.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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adamm
Unregistered
posted
TBI's are all diagnosed clinically. The only way to really determine whether or not you have one is to treat for it and see what happens.
Don't give up, ok --there ARE doctors out there who know this!!!
posted
I also tested negative for co-infections, yet my LLMD says I probably have them. Deperssion, anxiety, that hopeless feeling of doom is part of the disease. Dig deep and find the will to live and fight! There is light at the end of this tunnel. I think I can say that most people here have felt the same way you do at one time or another. If you have insurance, you are entitled (most likely) to at least the min. extent of Lyme treatment - so investigate your insurance options like you mentioned and get as much done as possible now. Your LLMD office should be able to help you in that manner - his office knows who will reimburse and for how long. Get help from your family and visit the "newbie" link under medical questions to explore your options. Best wishes to you, -p
Posts: 641 | From So. CA | Registered: May 2008
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bettyg
Unregistered
posted
miranda,
so sorry to read about this but keep llmds informed of things also.
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
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