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My young children (age 2 and 3) got Lyme, Ehlichia, Babesia and Bartonella this past summer ('08) in New York. They have been on antibiotics for the Lyme since Oct. 20th. I am going to begin mepron or something else to treat the co-infections this week assuming I can find a doc. I am writing because I am entirely overwhelmed and depressed by everything I am reading on the web and am hoping someone who caught Lyme and co-infections relatively early and met with success can write me. My kids were being treated (at least for the Lyme) within 3-5 months of the tick bite. I need to know that there is a good chance that we will not necessarily be looking at a lifetime or a minimum or many years of disability and severe illness. Well, if it is true that is. I am also going to post to ask parents for feedback about using Mepron on such young kids, but if you have that info and can help me decide what to do that would be great. It certainly seems that it is riskier to do nothing to treat the co-infections than to take the risk of using Mepron. Also...did any of you also find that you tested positive for EVERYTHING? My infectious disease doc says this is 100% unlikely and that Igenex is a joke. (help!) Thank you so much for any help you can give. Beth
Posts: 22 | From Los Angeles | Registered: Nov 2008
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posted
I don't have experience with young kids, Mepron or all the co-infections. Our situation is a little different.
I can appreciate you being overwhelmed and scared. We certainly were but things are much better.
Our daughter got Lyme when she was 10. It was diagnosed 6 years later, after years of problems, hospitalizations and 40 docs... She had severe congitive changes. It was a nightmare.
She's been on ABX for 13 months and is remarkably better.
My husband and I also have chronic Lyme. It's a family affair.
Every case is different, treatments for one work better for another... But hang in there. Learn as much as you can, advocate for your kids. They will get better.
My best.
Posts: 79 | From Rhode Island | Registered: Jun 2008
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posted
Our child is almost all better, but only tested positive for lyme. We suspect that he was initially infected about a year before he was diagnosed, due to a progression of health issues.
If the bite occured a year prior to his dx, his first symptom was encopresis, (he had no sensation of impending bm's, which ultimately lasted for 2 YEARS), then about a month later, a 9 day bout with severe diarhea.
A case of strep throat, then the falling asleep at the lunch table in preschool... Also, his behavior became increasingly difficult.
Finally, last summer, he ran a high fever (105) for 9 days, then developed a pink rash on his chest, more rashes formed, and within a couple days the rashes had the central clearing of a typical bullseye rash. In all, he had over 20 of these rashes, on his chest, stomach, arms, legs, back, genitals and face.
He tested cdc positive for lyme, was very sick for several months. Too tired to walk, joint pain in his knees and ankles, headaches, night sweats, stomach pain (which started before abx), OCD-like symptoms, impulsive/aggressive behaviors, he'd make threatening comments, and temporal lobe absence seizures.
His current sxs are night sweats (roughly 50% of the time) and the seizures, which according to his last EEG, are getting weaker/further apart.
All of the other symptoms are gone. (thank God!!) Through the course of his tx, he tested positive (cdc positive) 3 times, with the most recent positive test in June of this year.
So yes, you can get your child back!! For more positive stories, there is a 'success stories' sticky. I haven't posted there yet, as we aren't quite 100%, but will when we finally get there.
Take care, hoping for the best for you and your children. kp
PS: Regarding mepron... some have no problem with it, some have a tough time. We got lucky, no problem with it. As per our child, it tastes VERY yucky. We use one of the oral syringes, to shoot it in real quick, then he follows it immediately with a shot of Nesquick, chocolate milk. (you have to take it with fat).
Good luck again, kp
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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