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Originally posted by agrace:


I thought I would post a general message to introduce myself in order to get acquainted with the forum & members.

For the past three years I have been sick, on and off.
I lost a lot of time at work and in college.
I was either told I had the flu and sent home.

Sometimes I 'might' have this or that, and was prescribed antibiotics (which never did anything).

I'd get so sick at times that getting out of bed was impossible.
This past year has been the worst of the worst.
I've had approximately eight ED visits - never with an outcome.

Three of those visits were with in a month span by ambulance because I could not ambulate without excruciating pain, became photo- phobic & stiff with tremors.

I even experienced what was diagnosed as a 'drop down' seizure, in which I recollect nothing, without any hx. of seizures.

Symptoms such as; on & off fevers,
severe joint pain (limbs, shins, toes, ankles, elbows, fingers, neck),
insomnia,
lethargy,
photo-phobia,
tremors,
sore throats on & off,
dehydration,
blurry vision,
severe short term memory problems,
exacerbation of psychiatric issues (depression & anxiety),
seizures,
migraines,
salivation,
weight gain & loss,
many cognitive difficulties
& more odd symptoms I could rattle off to you all.

I was never diagnosed - always told i had a 'potential' seizure or i was dehydrated.

Sometimes the ED MD's looked at me like I was a pain medication seeker.
This has all been very frustrating.

I was seeing a pediatrician, whom I just had to leave due to being much too old for him anymore - who specialized in infectious disease.

I was given many upon many blood tests.
Lyme tests always came back negative.
I saw an allergist & immunologist - all testing normal as could be.

Finally it has become quite obvious my symptoms are that of Lyme disease & not of any of the many diagnosis' I had received through specialty docs.

I'm now playing the waiting game.
My apt. is only two weeks away with a Lyme specialist & I am almost excited.
It seems I am having more bad days or 'flare ups' than good days...& I feel as if I am going crazy at times.

So, that is my story in [very] short.
Thanks to someone my mother met, I have found this site and am grateful.
It feels awful lonely lately.

-agrace.

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Posts: 6947 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged |