posted
WOW - I am very impressed. I love the presentation, narration, visuals...can't wait to see the entire movie!!! Well done!!! -p
Posts: 641 | From So. CA | Registered: May 2008
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posted
Some are saying this movie won't be good because it may discredit our efforts. It really makes you want to scream how they may label us crazy, and all these people making movies are just out for the hype and making money? It's seems these post doctors have a lot of clout and our few Lyme docs are labeled as quacks it's so disgusting. I hope they are wrong the lady that wrote the book mystery unknown is saying that this movie may have a reverse affect.
Peace
Posts: 128 | From web | Registered: Dec 2008
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posted
I am glad that someone is speaking out. How can asking for the truth hurt us any more than we already are? They don't listen to us, don't want to treat us and ignore us. I have been told not to say anything about doctors by name, it must be wonderful to be so cherished that no matter what you do to people no one will tell you you are wrong. Its time to face the fact that our human doctors are not trained in these diseases and the longer we sit back and take it the longer it will take to fix the system that would gladdly stand by and let us die!
Posts: 5 | From iowa | Registered: Dec 2008
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posted
Yes i agree with you the more noise we can make the merrier. We can't just sit back and do nothing , i have been writing everyone and posted links to cnn ect. where we could leave a message and tell them what we are going through? Maybe if enough of us write them they will give us some coverage? i don't know anymore but i been making web sites for everyone thats needs me too for nothing, because we have to get the word out about what really going on.
Johnny lymies.ning.com
Posts: 128 | From web | Registered: Dec 2008
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posted
And isn't there a Hollywood movie in the works? What is it, Lyme Life?
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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posted
You know that Dr. Oz from the Oprah show talked about Lyme on his show and that they want as many people as possible to send in their stories? I have the link and can get it to you later this evening, if you need it.
Posts: 5 | From iowa | Registered: Dec 2008
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posted
Dr. Oz is already intrigued with under our skin i wonder what he will say about this movie? I hope he got my emails i sent him a couple already.
Posts: 128 | From web | Registered: Dec 2008
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posted
The movie is interesting but I do not think it is good for the cause to start creating conspiracy theories. The general public is already skeptical enough when you tell a person what Lyme has done to you. We do not want the public to think people with Lyme think they are sick because the government dropped a germ bomb back in the 50's. It removes the credibility of the disease in many people's minds; people will think people with chronic Lyme are just ``crazy people''. We need to fight this with facts, research, and awareness of what it really does.
[ 13. January 2009, 11:43 AM: Message edited by: LLYME ]
Posts: 92 | From Virginia | Registered: Jan 2009
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quote:Originally posted by LLYME: The movie is interesting but I do not think it is good for the cause to start creating conspiracy theories. The general public is already special enough when you tell a person what Lyme has done to you. We do not want the public to think people with Lyme think they are sick because the government dropped a germ bomb back in the 50's. It removes the credibility of the disease in many people's minds; people will think people with chronic Lyme are just ``crazy people''. We need to fight this with facts, research, and awareness of what it really does.
I agree with you. This is the type of stuff that gets up labeled as "Lyme Wacko's" and the like...
Posts: 371 | From CT | Registered: Jun 2008
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posted
I hear what you are saying but on the other hand I want to see what the CDC and IDSA can do to counter act the claims in the movie. Already because of under our skin they are having a meeting to try and tweak the guide lines, have no idea how it's going to turn out.
posted
LLyme, I responded to you in another thread but copying my post here for the benefit of others interested in this topic: ---
Hi. I'd like to give you my take on this. Six years ago a woman very sick with Lyme told me Lyme was the result of a biological weapons programme. I asked her how she knew this. She said she was told by "American doctors".
My first thought was, "come on, this is ridiculous." However, a few more things came to my attention that started to make me wonder.
One of them was learning that Dr Dorothy Carey, of the Institute for Virology and Environmental Microbiology in the UK (now renamed Centre for Ecology and Hydrology and with personnel still heavily involved in Lyme), whose research on Lyme is published in medical journals, had quietly admitted to people in the Lyme movement here that all her work on tick-borne disease had been classified.
The implication being that what was published was either false, or considered insignificant enough to reveal.
I have spent over five years now researching the relation of Lyme disease to biological warfare. My conclusion is that Lyme certainly is a biowarfare issue.
This is the reason people do not get diagnosed and this is the reason that people do not get treated.
I don't agree with Adam that the "power elite are waging war on us". Much of the world's power elite resides in the US, or at least relies on the US as its economic power base. I don't believe they set out to destroy their own power base.
Also, from what I understand some of the areas worst hit in the US, such as the Hamptons, are exactly the sort of areas where the wealthiest and most powerful people live.
What I do find credible is that the US (and British and other NATO countries') military, in the drive to develop the most fearsome arsenal of bioweapons, experimented with borrelia.
It is possible that the Lyme epidemic is the result of bungled military testing, or accidental release direct from biowarfare facilities. Michael Carroll, in his book "Lab 257", documents the appalling biocontainment standards that prevailed for decades at Plum Island, which is a stone's throw from Lyme CT.
Carroll desribes holes in the roof of facilities studying the most dangerous microbes on earth, because the management tried to save money and cut corners on maintenance.
Another possibility is that Lyme was actually used against the US, for example, by the USSR during the Cold War. It may be that the US government considered it best to cover up what happened, particularly so if they felt it might induce panic in the American population, and ***especially*** if the organism in question was still of ongoing interest to the military.
In other words, a frank admission of what had happened would mean that scientists all over the world would avidly study the pathogen, and perhaps that would have conflicted with military goals at the time.
That may still be the case.
I agree with you that we need an approach based on fact.
On my website www.lyme-rage.info I have documented quite a number of facts, all of which point to the conclusion that Lyme is a biowarfare issue, and that this is what is obstructing progress and even diagnosis for most sufferers.
I have documented evidence, for example, that the Japanese war criminals of Unit 71 had a special interest in developing spirochetes as weapons during WW2. In particular they were interested in the L-form, which they found well suited to weaponisation and aerial dissemination.
These are facts, not conspiracy theories. Please do not discourage people from discussing them, reporting on them, and seeking to learn more.
Here in the UK the families of soldiers who died or became sick permanently after undergoing exposure to what they were told was the "common cold virus" during volunteer experiments recently won a class action.
As was revealed in court, their loved ones were not exposed to the cold virus. They were exposed to nerve gas. This was finally admitted by the Ministry of Defence after decades of denial.
It was only admitted because the lawyers were able to present incontrovertible factual evidence.
Had those families taken the view that they should not pursue the idea that weapons research was the cause of their loved ones' demise, the disabled victims would have ended their days in pain, with no compensation and never knowing just what had caused their decades of suffering.
And those who died from the exposure would have left families never knowing the truth.
We finally have what those families did not have, during long decades of pain and bewilderment - the internet. Let's use it to network together, research the facts and share our findings. Then hopefully we wont have to wait decades more for an end to our nightmare.
Elena Cook
--------------------
-------------------- Justice will be ours. Posts: 786 | From UK | Registered: Oct 2007
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posted
Yes I saw the clip of Plumb island and if you draw a straight line across the sound from plumb there is old Lyme CT. (coincidence maybe?)Eventually the Big lie will come out but i don't know when, my own brother in law is sick and refuse to believe He has Lyme.They can't keep the lid on it too much longer because the infection rate is climbing, not to mention the ones that slipped through the cracks.
posted
So is autism, CFS, ADD, Gulf War illness, etc, etc all a product of secret biowarfare stuff too? The fact that the govt has miserably failed us with Lyme disease does not make this a biowarfare bug. Look at the other things they have bungled too.
Concentrate on the real problems in diagnosis and treatment and the corruption in IDSA, govt failure to handle correctly, forget about the conspiracy stuff that will only make the public think we are wackos. Actually some of us are, the ones that never stop pushing this view, regardless of how much harm it does us in public opinion. I resent this constant pushing of conspiracy theory. It hurts me and all lymies.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
OOOOkay....So, the Roswell incedent was a weather balloon?? Yeah, about that........Not. and the list goes on and on and on............
Posts: 145 | From Paris, Tn. | Registered: Dec 2008
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We NEED people digging, I ALREADY have been accused of wearing a tinfoil hat, I do not care if it is said so again.
This is bigger than just lyme, many people suffer from a dead-end diagnosis like fibromyalgia or chronic fatigue. Young people are getting sick in record numbers - this stuff has to get researched by MOTIVATED parties.
Go get 'em Andalusian Dogs, don't afraid of anything.
please show subject title after move, UNDER THE EIGHT BALL.
just click on pencil, 3rd box to right of your name to open up subject line & add this CRUCIAL info there. we do NOT have time to read all posts ok; we pick & chose based on subject heading. thx
is this about LYME disease or not?
watched latest trailer; it is so garbled, you can't understand anythign and volume will not go up!
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
I'm wondering how the rest of the world got involved if this is a conspiracy?
I got my LD in Germany in 1992 and I know it's prevalent all over the world.
I've also read that spirochetes have been found in dead mice or some other animal that somehow hadn't decayed (can't remember story exactly) in a museum that had collections that went back to 1800s.
I've always thought that lyme probably existed for decades, but the culprit wasn't found and identified until the Lyme CT epidemic.
Just wondering...
I too think the conspiracy theory can hurt our cause.
The film clip reminded me of scenes from Lost dealing with the Dharma initiative. Kind of far out there.
Posts: 1302 | From USA | Registered: Dec 2002
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bettyg
Unregistered
posted
marz, lyme has been round over 100 years; it just wasn't given a name way back then.
too bad johnny disappeared completely from this board!!
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Bettyg,
I remember reading on another forum a few weeks ago that Johnny was going to be gone for awhile. I believe it was his sister who lives in FL has terminal cancer and he was going there to be with her.
Not sure when he will be back, probably could get ahold of him by pm though.
posted
I believe it is fine for those who wish to pursue the "germ warefare conspiracy theory" to do that.
My focus is on getting appropriate diagnostic and treatment guidelines so people will stop living with this tremendously difficult illness and dying from its effects. Education and forcing the truth to come out is key.
One focus is not exclusive of the other.
The fact that spirochetes have existed for a long time, does not discount the possibility that this bacteria may have been used as a base to create something more deadly for warfare use.
Regardless, although the origin is irrelevant to me, I do not mind others researching the different theories of its origin.
That's what America is all about.
-------------------- Wishing You Showers Of Blessings! Lyme since Fall 1983 = Diagnosed Summer 2008 IV Rocephin 7 weeks Stopped due to drug fever Now doxycycline "For I know the plans I have for you...plans to give you hope and a future." Jeremiah 29:11 Posts: 430 | From Sunny South | Registered: Jul 2008
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