posted
Subject: My Story. Still not sure if Lyme or not...
First thank you for reading this.
My name is Sean L. and I am 35 years Old. I am the president of a successful internet company. I have a beautiful wife and 3 great kids. The reason I am starting with this statement is because for a year now people have been telling me that all of my pain is coming from stress and or Fibromalagia. However, as I just mentioned, I have no reason to be under any stress and things in life were going smooth and everything was going well. I just could not accept the fact that my life is diving in a downward spiral because of my own doing. It has to be something else.
The symptoms:
For over a year now my symptoms have been getting worst and worst. Started with muscle pain behind the left shoulder blade ( around Feb ) and a few months later spread to my left shoulder blade. Continued to my mid back and finally lower back as well. Continuous muscle spasm all over for over a year. About 3 months ago my symptoms have leaped into a whole new level. Continued with daily serious neck tension, headache and the worst of all, ringing in my head ( especially in the morning when I wake up ). My back and neck feel ( and sound ) like they are made of rice crispies. They make a crunchy noise which make me feel as if I am 75. I am mostly tired and sick of feeling sick. If you look at me from the outside all is looking well, I look fine and do everything I am supposed to. However inside I am a mess, I spend most of my day worrying about my unknown disease and the fact that things are getting worst, much worst.
The whole thing started around Jan/Feb of 08 when I came back from a cruise to Mexico. The strange thing is that I got the bulls eye spots on my legs around June ( about 6 months after I started with the symptoms ).
Its hard for me to concentrate on work and find my self talking to other people trying to find out if anyone is feeling as bad as I do... and they don't.
What have I done:
I had complete blood work ( no Lyme testing ), MRI of the back, MRI of brain ( which felt horrible by the way ), Neurological testing and much more. Had spent over $25,000.00 in co payments to Blue cross and still have a clean bill of health.
I just wanted to post this and let you all know that I thank you for sharing your information and stories as I find it comforting to know that help is out there.
Tomorrow I am going to see a Lyme disease literate Dr in Agoura Hillsm CA thanks to a referral from this forum. He told me he will do a special blood test and will send it to a special lab in Palo Alto.
I will report back with the findings as I hope my story will help someone.
I wanted to ask if anyone knows if I do have Lyme disease, will the symptoms and damage I have is irreversible or may one day be cured and hope for to feel 100% again ?
Thanks again for reading this and stay healthy,
Sean L. - Agoura Hills, CA.
-------------------- Ringing ears Headaches Stiff Neck Upper/Lower muscle pain Crtsyal like noise from neck/back heart palpitation Cracking joints
posted
Yes, this sounds like the symptoms of Lyme disease. The good news is that you may have been infected fairly recently so have a chance to treat and feel better. Your LLMD will guide you in this.
In the meantime, you can read on lymenet and learn about the things we do to treat Lyme.
Posts: 13171 | From San Francisco | Registered: May 2006
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i would say a definte possibilty. However do not put all of yoru faith in this "new" test. There is no good test to determine LYME. What you need is a good doctor who knows tests are helpful but not the end all.
I say this because my life and sypmtoms were similar and yet over 2 years i tested negative 10 times using every test and inclduing spinal tap. Many on here will tell you the same.
I only turned positive after 2 months of abx prescribed by a bright ILADS LLMD who had a hunch.
I had PCR, Western Blot, ELISA and C-6 Peptide.
Keep the faith....you know yourself better than anyone.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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posted
You can get treatment regardless of blood work if you have a LLMD that is convinced it is Lyme. I went to 30 docs and wasted a lot of money and time i should of went to a LLMD right from the get go.
After 16 months of treatment i went to where i could hardly walk to walking without pain. pcr and petitde 6 is the lastest stuff now and they can help avoid a really big nightmare.Lyme can affect everybody different so don't be fooled it sounds like you have Lyme
Good Luck and Prayers Help a lot so i will pray for you too!
Posts: 128 | From web | Registered: Dec 2008
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posted
Thank you all for this. I saw Dr. G of thousand oaks which is a literate in Lyme. He will run all blood work on Monday and send it in to a spcial lab that specializes in lyme testing in palto alto.
Will update when I know and I thank you so much for the support,
Sean.
-------------------- Ringing ears Headaches Stiff Neck Upper/Lower muscle pain Crtsyal like noise from neck/back heart palpitation Cracking joints
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