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Disappearing a disease: when guidelines are biased, patients suffer By Pamela Weintraub on February 05, 2009 in Psychology Today
You can skew the evidence in your treatment guidelines, but you can't stop the march of science. You can try to disappear a disease --but in the face of a burgeoning epidemic with ever more people sick, can you ultimately succeed?
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Thank you. I was wondering how I was going to get my doctor to read the book. I'll take this article to him. It presents some good scientific information that will no doubt give him some impetus to read the book. In fact, I'll give the article to several other doctors as well.
The book is such an important piece of work. Not only did it help me understand more about what I need to do for treatment but it explains so well all of the important issues.
It really is a masterpiece!
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Pam - Excellent article, and thanks again for your excellent book, "Cure Unknown". My shrink has borrowed my copy and is now reading it. He thinks he himself may have chronic Lyme of 20 years' duration. He borrowed my DVD "Under Our Skin", has watched it, and so has my cardiologist. Just trying to educate my little corner of the world here. My shrink is starting to think that some of his very disabled patients previously labelled with fibromyalgia or chronic fatigue syndrome, or idiopathic neuritis may in fact have chronic Lyme.
You are right that eventually science will prevail. It is however taking a godawful long time to happen. It will happen when more and more docs themselves, and their spouses, and their children, come down with this devastating illness. I believe that the dialogue has now become so rancorous that IDSA is just digging in its heels rather than admit that their guidelines and protocols have caused needless suffering of tens of thousands of patients.
I will copy your article and send it to my docs. -Paul
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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bettyg
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i broke it all up for us neuro folks; and left my comments there.
9 comments there and i noticed 2 lymenetters: lou and texas dar!!
DID YOU COMMENT? please do!! IT HELPS HER RATINGS THERE by keeping her articles up on top!
Well done Pam! You touched on so many important points, and I am appauled at the new panel of 14 people with NO LLMDS, LYME LITERATE MDS, who treat us CHRONIC DISEASE!!
Also, they added the stipulation of $10,000 after the 1st publication of the criteria; now not one dr. can earn more than $10,000 for treating any lyme patients.
That excluded those treating 1 lyme patient per week in 1 year!! HOG WASH!
Pam, thanks again for your thought provoking article, and I continue looking forward to each one you search out and EXPOSE for what it is! HOG WASH!
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betty
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