posted
My son who is 6 was having "ADD-like" problems in school; he is of course Lyme positive. I don't mess around with doctors after having Lyme myself and we flew up and saw Dr. J right away. My daughter is 2 and her test came out indeterminate - so I will have her tested again soon. I'm sure she has it.
My son's problems seem to be mostly neurological. He has slow cognitive processing, poor memory and a deficit in language expression when it is on demand (word recall). We had him tested - and the expert says he has a high intellect and that all of these problems are because of the Lyme (a colleague of Dr. J's). But he also has low muscle tone and tight muscles in his neck. He complained of a few headaches, but he seems to feel pretty good physically. For the most part, he is a silly, giggly 6 year old boy who thinks he is Calvin from Calvin & Hobbes.
Has anyone been through this, or do they know of mothers that have been through this and reached the other end? I am just generally looking for information regarding other people who have had children diagnosed with gestational Lyme. Of course, I am also impatient and want to know "how long" will it take for him to get better. I am being told there is no average time, this is fairly easy to treat in kids = it is typically less severe than regular Lyme and his prognosis is excellent. Is this people's experience with gestational Lyme when it is caught fairly early?
A mom can live with Lyme, but it it much harder to see my kids with a life of Lyme. He is 6 and happy now, but I know he is starting to know he is having problems and the other kids don't think he is "very smart" because he is always last or simple can't finish things.
Please tell me the good and the not so good. Thanks so much. I appreciate it. Posts: 4 | From Atlanta | Registered: Feb 2009
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bettyg
Unregistered
posted
hi georgia, i'll answer this much before logging off tonight!
YES, many moms here with congenital lyme kids!!
GENEAL is 1 of many and will be here tomorrow night as she just started working PT due to bills, and many more as well.
look into my newbie package; i have alot of info there about congenital lyme posts/posters .. so you can learn who they are by going to the table of contents ok.
may i suggest your paragraphs be SHORTER for us neuro lyme folks; i can start them; then i have to quit ... mind can't comprehend/read them.
i sent you info in my welcome letter on how to edit here!
you'll get lots of replies friday and definitely this weekend from those still working!
I am sure my daughter was born with Lyme. Of course her doctor said she would be mentally retarded if she had been born with Lyme.
I knew something was wrong with me, but I had not been diagnosed or treated before she was born. She is now 5. She is beautiful, but she is having a hard time with reading. She turns a lot of her letters backwards, and if you say to her, What does THIS start with, she will say, thissssss, it starts with S.
So, that has been really hard. She is very social and it seems to take her longer to catch on to things.
We are going for treatment in March. I have heard that children recover a lot faster, so that is in our favor.
Good luck to you!!
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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