posted
Three years ago I became sick with what I thought was the flu.I became so sick one day I went to the nearest clinic I could find.The Dr after a few question told me she thought I had Lyme.
She ran some tests and it turned out she was right,but I also had rocky mt spotted fever and ehrlicia (sp).She treated with antibiotics.
Everything then seemed fine.Six months later I got sick again and went to my regular DR told him it seemed just like the previous bout with Lyme,so gave another round of antibiotics.
Since that time I have had numerous problems.Joint and muscle pain that comes and goes and moves from one joint to another.
General weakness,unable to do things physically that just a few months before I had no trouble doing.I have had some temporary weakness on left side.
Twice I have not even been able to lift my arms for a short time.twice the left side of my face became numb and lasted several days.my fingers hands and arms tingle for long periods of time.
I have not slept through the night since this started,so I am up a 6am and by noon I am checking the clock to see if its time to go bed yet.
At the present time I have had moderate to sever pain in the left side of my neck.When I mention these things to my Dr he pretty much ignores it when I ask if it could be related to the lyme.
Am I just just feeling the effects of getting old,going crazy,or could it be the Lyme. Sorry for rambling so much,I guess I needed to vent
sorry, but i'm one of the many here who can NOT read long, solid block text with no paragraphs. please break it all up into short paragraphs using my guidelines below. otherwise we scroll on by, sob, since we can't read it.
looking forward to reading your story broken up! then i'll comment but will send you my welcome greeting now!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks! *************** please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
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Maybe you need to vent but you definitely need to see a lyme literate doctor who will take your clinical symptoms seriously.
Betty gave you some great links, but dont get overwhelmed or jump to conclusions. Not everything is lyme -- it could be a lot of things, or just aging, like you say.
If I were you, however, with your symptoms, I would find a good LLMD, organize my symptoms so the doctor can understand, and make an appointment.
good luck
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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posted
Thanks to all.I just found another symptom.I too am no longer able to read anything lengthy,but didnt connect it
Posts: 3 | From Forest,va | Registered: Feb 2009
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
Sadly as others have said, I don't think you were able to get rid of the lyme with your short bouts of antibiotics.
I do hope you will get yourself to a LLMD since a Lyme Specialist will be able to sort this out and get you on a road to recovery. Good luck.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Wow, reading your list of symptoms sounds like what I've been through the past 8 months.
As someone else said, not everything is Lyme. Have you been tested for other things?
That's the reason I keep hanging on to "hoping" I have Lyme, because everything else they've tested for has come back negative, yet I still feel like crap.
I hope you can find a LLMD, just to have someone who can tell you if this is something Lyme-related or if you need to look elsewhere.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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bettyg
Unregistered
posted
gmess, thx for editing; i could read it now! you were touched also by bell's palsy, etc.
check your profile; sending you virginia llmds! **********************************************
please start calling tomorrow to set up appt. and if it's quite awhile to get in, ASK TO BE PLACED ON CANCELLATION LIST TOO!
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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