posted
Hi. First a little background: I started having weird symptoms in the Spring of 2000. I put myself into a constant state of panic thinking
I had all these horrible diseases (MS, ALS). Some of the symptoms were muscle twitching, a feeling like my foot was asleep and I couldn't wake it up, hot sensations on the tops of my thighs, and several other little things that I can't even remember.
In early 2001, I found an LLMD in Alabama and got tested. It was positive. I was on Zithromax and Flagyl from April-December. But I never really got sick.
Th dr. even commented on that....why I didn't get sick, both before and during abx tx. I never felt bad and did all my usualy workouts during that time. Anyway, by the end of tx, most, if not all the stuff was gone.
Throughout these last 8 years, I've had some of the same little things come and go, but never stay more than a week, if that. I even went back to him at one point to talk about it and he said he didn't think it was Lyme.
Now to the present: On Feb 8th, after my morning shower, I notced that my scalp felt more sensitive; not painful, just maybe slightly burning and just more sensitive.
That night, it went into my face and felt like I had gotten some sun, which I hadn't. These feelings come and go, sometimes no scalp or face involvement, sometimes both, sometimes the cheeks, sometimes the lips, and so on.
No rash. No itching. Over the past year or so, I've noticed that sometimes it seems like I can't type well, meaning I easily mispell words...or will be thinking 2 words in sentence but type one of the words twice...and then sometimes I get tongue tied.
SOOOOOO.. could this be Lyme still??? I had convinced myself earlier today it was MS. Oh, back at the beginning of all this, I had a brain MRI which was normal.
I've had MRI's of the spine since then due to a herniated disc and nothing was said about MS lesions, though I'm not sure if they went up any further than the lumbat area.
The only reason I haven't already gone back to see the dr is $$$. I'm trying to get some credit cards paid off and I don't want the added debt. Thoughts?
Also, to answer a few questions, I did see an LLMD and was on 2 abx for 9 months.
Posts: 45 | From Crestview, Fl U.S | Registered: Feb 2004
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Also, the burning, which is mild, seems to get worse when I read or talk about medical stuff.
I've always suffered from anxiety so an nurse I spoke to today thinks that's what it is, especially since Dec., I've been under some pretty serious stress.
Posts: 45 | From Crestview, Fl U.S | Registered: Feb 2004
| IP: Logged |
Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hey Kim,
Lyme CAUSES anxiety. I started getting panic attacks around the time I got sick. Please if you think something is wrong, do not settle for an anxiety diagnosis.
The doc's tried the same thing with my brother.
If you got better while on abx, then it had to be Lyme or a bacterial infection. Not everyone herx's. If you are able to detox well, you may never herx.
Please find an LLMD. I wish I had done this years ago. It's not worth wasting your life feeling yucky.
posted
I've had panic attacks and anxiety ever since I can remember. IF I was bitten, I have no idea when it was. I also have MVP but I fit the profile. I don't feel bad at all. I'm just aggravated that I may have to go back and spend more $$ on abx. I don't like taking them anyway. Also, a couple of years ago, I had to take 2 round of Prednisone and symptoms did return. Maybe the burning is more like a hypersensitivity.
Posts: 45 | From Crestview, Fl U.S | Registered: Feb 2004
| IP: Logged |
bettyg
Unregistered
posted
kimberly, i'm copying all these replies here from your 1st post that was 1 long, solid block text that we couldn't read.
i'm going to put a note on your other IDENTICAL post to delete that one, so ALL REPLIES are on this one.
our boards are very busy, and we are confused enough that we are sure we answered that post, and our comments are not.
*******************
feelfit Frequent Contributor (1K+ posts) Member # 12770
1 posted 18-02-2009 07:25 PM
Quote Hi Kimberly,
Haven't met you yet, so WELCOME! I read your post all the way through and it seems to me that you may be having a lyme relapse.
This is vey common (unfortunately) especially when you were either diagnosed late, or undertreated.
Your doctor used one abx for 7 months.....Is he a doctor who is Lyme literate? If not, your best bet will be to go to the seeking a doctor section AND POST FOR A DOCTOR IN YOUR AREA.
Your symptoms sound like neuropathy of some sort, I definately would not let this go without further investigation.
Best, Feelfit Posts: 1467 | From Michigan | Registered: Aug 2007 | IP: Logged | Report this post to a Moderator
Lymetoo Honored Contributor (25K+ posts) Member # 743
Icon 1 posted 18-02-2009 07:41 PM
Reply With Quote breaking this up for those who can't read it .. like ME
quote:Originally posted by kimberlyhughes:
Hi. First a little background: I started having weird symptoms in the Spring of 2000. I put myself into a constant state of panic thinking I had all these horrible diseases (MS, ALS).
Some of the symptoms were muscle twitching, a feeling like my foot was asleep and I couldn't wake it up, hot sensations on the tops of my thighs, and several other little things that I can't even remember.
In early 2001, I found an LLMD in Alabama and got tested. It was positive. I was on Zithromax and Flagyl from April-December. But I never really got sick.
Th dr. even commented on that....why I didn't get sick, both before and during abx tx. I never felt bad and did all my usualy workouts during that time.
Anyway, by the end of tx, most, if not all the stuff was gone. Throughout these last 8 years, I've had some of the same little things come and go, but never stay more than a week, if that.
I even went back to him at one point to talk about it and he said he didn't think it was Lyme.
Now to the present: On Feb 8th, after my morning shower, I notced that my scalp felt more sensitive; not painful, just maybe slightly burning and just more sensitive.
That night, it went into my face and felt like I had gotten some sun, which I hadn't. These feelings come and go, sometimes no scalp or face involvement, sometimes both, sometimes the cheeks, sometimes the lips, and so on.
No rash. No itching. Over the past year or so, I've noticed that sometimes it seems like I can't type well, meaning I easily mispell words...
or will be thinking 2 words in sentence but type one of the words twice...and then sometimes I get tongue tied. SOOOOOO.. could this be Lyme still???
I had convinced myself earlier today it was MS. Oh, back at the beginning of all this, I had a brain MRI which was normal.
I've had MRI's of the spine since then due to a herniated disc and nothing was said about MS lesions, though I'm not sure if they went up any further than the lumbat area.
The only reason I haven't already gone back to see the dr is $$$. I'm trying to get some credit cards paid off and I don't want the added debt. Thoughts?
-------------------- Do not take this as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
- oops! Lymetutu Have you read 90 Minutes in Heaven? Posts: 38558 | From Texas TuTu | Registered: Feb 2001 | IP: Logged | Report this post to a Moderator
Lymetoo Honored Contributor (25K+ posts) Member # 743
Icon 1 posted 18-02-2009 07:46 PM
Reply With Quote Your symptoms don't seem very serious, but since you had a positive test, I would find an LLMD and be re-evaluated.
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