posted
I hate this disease. I can't take it anymore. I am sick and tired of being sick. I changed protocols 2 1/2 weeks ago and I think I am herxing beyond belief.
I have too much anxiety and dark thoughts. I haven't had this since starting treatment 5 months ago. I think horrible things about ending it due to I guess bart.
I know the only way to getting better is through, but this seems too hard.
I am supposed to pulse Flagyl next week - nothing else, but Flagyl and I am scared. Everyone says it is rough.
These past couple weeks have been ridiculously hard. My fiance will be away next week when I do the Flagyl. I am scared.
I can't take any more anxiety or suicidal thoughts do to this disease.
Thanks for listening.
Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Kathy,
Flagyl wasn't hard for me. I felt lousy for a few days at the beginning and just laid around (mild herx) and then nothing for the rest of the 2 months I took it.
You never know, you may be pleasantly surprised.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Thanks. I really truly hope so. My LLMD thinks that bart is more my problem. We are hitting that hard right now. I haven't been on any cyst busters yet. I tried plaquenil, but had a bad reaction - muscle weakness. Couldn't tell if it was side effect or herx.
Fingers crossed.
KMM
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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posted
Thanks, Lymetoo. I am on a pulsing protocol after being on a daily protocol. It seems to be tougher. Next week M, W, F Flagyl and just Flagyl.
Kim - Fingers crossed maybe I will be like you and TF have little or no problems.
Flagyl treats lyme I think and not bart. Maybe a break from the bart meds will help some.
Thanks all for the support
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Flagyl was no problem for me. It was actually the easiest for me so far.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Flagyl was a breeze for me too, BUT you never know how you're going to react to any med. Is it possible you could wait until your Fiance comes back in town before starting Flagyl?
That's what I would do, just in case. That way if you do have a strong reaction you have someone to help you get thru it.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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bettyg
Unregistered
posted
best luck w/flagyl!~ wasn't for me; either 4th or 5th day had the worst herx, and it occurred right here online! won't go into my long story, but it was my online lifenet friends who came to my rescue sending out the search parties, and someone calling local police to come and check on my physical condition! xox
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posted
Is there anyone that you could stay with or could stay with you while your fiance is away?
Why does it seem like a majority of us are having a really bad time RIGHT NOW!
It's like the phenomenon where women who spend a lot of time together start to menstruate at the same time!
Well, please, come on here or lymechat at any time if you feel dark thoughts coming on.
Posts: 59 | From stratford, CT | Registered: Feb 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Maybe put off starting flagyl until someone can be with you.
Start small. I took one 250mg once a day, one day a week in the beginning.
I did fine on it once past the initial "headache" from heck stage.
I still take one 750mg flagyl a week to prevent c.diff.
Hang in there. Keep us posted.
Never be too strong to back off or wait
Until you have someone there with you.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Thanks for all the replies. My fiance's trip was canceled, so tomorrow I will start the flagyl. Here's to hoping its okay.
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
That's great news. Let us know how it goes.
Posts: 9931 | From Maryland | Registered: Dec 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
"Why does it seem like a majority of us are having a really bad time RIGHT NOW!"
Last year, I was having pain in my chest. Felt like an elephant was sitting on it. Went to our LLMD and he did all kinds of tests...heart, oxygen fine.
He said Jan-Mar is the worst time for his chronically ill patients because their vitamin D is low.
So, this year, I started supplementing in October. Jan-February has been much better! Got pneumonia, but kicked it much quicker than usual. Otherwise, no elephant on my chest.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
kelmo - I agree Jan-Mar is toughest time. Most elderly pass away during these months - I would add April also. Always thought was due to the cold weather and slower pace of things. venus - good luck. I hope you have an easy time of it and kill off a lot of BB! -p
Posts: 641 | From So. CA | Registered: May 2008
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posted
Well, I took the first 500mg dose today, and I feel weird. I am calmer than I was before on the other abx, but I feel spacey, lightheaded, and drugged.
I am wondering if I should not take the other pill tonight. Then on wednesday when I am supposed to take it again, I will take 250 in the AM to start.
My doctor likes us to push through herxes, but I think my body has had a bit too much lately.
You all seem to be in favor of going up slowly.
Kathy
-------------------- Severe neurological problems. Probably sick for years. Became chronically sick in Aug 2007. Undiagnosed for another 15 months. Started treatment for lyme and bart Sept. 2008. Improving, but very slowly. Posts: 515 | From washington dc | Registered: Aug 2008
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I am having a hard time right now too. Not because of medicine, but just the general feeling like crap!!
I actually prefer to be alone when herxing. That way I can just lay around and be miserable by myself.
My husband and daughter worry, and that makes me have to try to re-assure them that I am ok, even when I know I am not!
Good luck, and with the medicine, you know you best. If you are feeling like ending it all, I would definitely say......slow down!! Do as much as you can, when you can, and when you feel like that, back off.
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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