posted
I would go for the LL psychiatrist if possible!!!
He/she will confirm your sanity, I'm sure!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks Lymetoo...
Im gonna try my hardest... but it's comp!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I would say that it is critical that you see a LL one. They will interpret your symptoms properly and support your diagnosis.
An ordinary one will not and will try to peg you into a mental illness dx, if they can. Find an LL psychiatrist and have your LLMD demand that you see a psychiatrist that specializes in Lyme.
Don't let them bamboozle you. They know nothing about Lyme.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Should you request to see the LL Psychiatrist ?
YES. YES. YES.
But first call his office and see how that can be done. He may have done this for others and there may be just the right way to request this or the magic code.'
If he can't, ask him for his suggestions.
It might work out just by matter of distance. If you get tired from driving - or being a passenger - after so many minutes, it matters.
You might also consider having someone drive you - and if that person can't travel half-way across the state, the closer one is best.
Also - if you have any special needs that his office can provide that the other cannot, that might help.
When a friend of mine was required to see a psych. she requested someone familiar with CFS (we have no LL experts in my state). She could lie down, take rest breaks while he did some paperwork . . .
she took her lunch and snacks (they had a fridge) . . . she was there for most of the day. The second time, he actually had to do a house call as my friend could no longer go out.
Find out how long this will take and do what you need to take care of your needs.
If you are sound or light sensitive, they need to be able to accommodate that, too.
You would NOT want to tell comp that he is LL. That may shoot your chances.
have you gone to my newbie package links yet? look thru table of contents there for this:
DISINISSUES WEB SITE .. they cover things like this, and check out their FILES!
it's NOT a board like this, but join and send a note to MODERATOR, who reads it and EDITS EACH ONE to her content, and then posts it to 2,000 board members.
WISDOM GALORE ON THIS SITE; workers comp and ssdi, ssi discussed galore.
i too would suggest calling the ll person of YOUR choice to see if they could do this or not!
you'll be fighting galore with workers comp on everything; it's worse than ssdi !! good luck.
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks for the replys guys!... Bettyg got your PM thanks!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Thanks keebler and mtree!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I would agree, best to see a LL doctor.
My guess is that they have an agenda in making you go 1/2 State away to see a specific doctor. Probably someone that they can count on to provide the opinion that they want.
I would investigate the doctor, looking for information about his relationship with them. What is the focus of his practice etc?
If you can't see a psychiatrist of your choice, make them give you one closer to where you live.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Be very careful here.
There is a big duck study from the Robert Wood Johnson Center that came out recently. They mentioned gathering more data from other Lyme patients... and their final reports on Lyme tend to be worse than poop.
Another study also just came out with the same implications.
They already are saying we are either lazy, had problems before Lyme, and/or this has nothing to do with Lyme and we don't have Lyme... nor do we need antibiotics. (MY wording there)
You are right.. you ARE getting set-up. There is a rash of it going around.
And most likely your doctors will be set-up too for treating you for Lyme.
So please be VERY careful.
I THINK they HAVE to provide transportation to and from... so do inquire and MAKE them do it.
Also.. make them accommodate ALL of your disabilities. It's the law but they will never offer to.
If you get sick traveling.. I believe (states are different) they must come to you. Make them.
If you need a wheelchair because walking through long buildings from parking areas is too much... make them provide you one.
If you can't see all the forms they want filled out.. let them know they must provide large print or someone to read them to you... and you must be given xtra time to have a lawyer read over them.
If lights (florescent) bother you.. tell them they must do tests where there are none and must accommodate you.
If your energy is limited, they must break down the sessions to no more than an hour each if that is all you are good for.
Your regular doctors accommodate you.. and by law they must too.
Give them written notice now of your situation.
AND... watch the consent forms. Some are reading that anyone can have your records... yes, anyone. And once you get to the appointment... if you don't sign them they won't see you and then you are non-compliant also. So get them in advance BEFORE you agree to go.
If they've ever made you send in something twice... they are sloppy with their record keeping and your medical records.... a violation of your privacy rights.
They are targeting neuro/psych people eating up insurance money and putting out studies to make us appear nuts rather than sick with Lyme.
When you add to their collection of "subjects"... it hurts us all.
Oh.. and by making you go to an appointment on their schedule... so they know where you are... they have the ability to film you secretly to try to "catch" you bending, lifting, doing anything they can turn around into being as if you are able to work...
Or say you are faking and took their $$$... allowing you to get nailed for fraud.
Yeah.. a bunch of nice idiots patients have to deal with, no doubt.
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Tincup:
You hit some very major points that I have been trying to tell my adjuster.
She will not listen to my needs. First of all I have very bad panic attacks traveling far distances in a vehicle. Like hospital-bound panic attacks.
Second I'm really sick at this point in my treatment. I have asked her to find a closer Pyschiatrist, but she won't work with me.
I also asked her to see if she could scheldule an earlier appointment, like 8:00am instead of 3:30pm because my anxiety gets worse through the day.
I think they are trying to set me up. I have already demanded transportation and that took FOREVER! I wish I could have the doc come to my house, I never thought that they were able to do that.
It seems as though I am trying my hardest to work with them, but they won't work with me.
To add to the saga, I have a very respectable lawyer, one of the best in the state, and I called his office in rage telling him the situation about how I wont be able to make it because of my Anxiety and Illness and he told me I HAVE TO GO!!!!
Im stuck...If I don't go they will drop me and I will lose all of my benefits.
I can see them sitting there laughing..knowing I can't make the trip(they are well aware of my panic attacks and use them against me).
They always try to send me far and push my buttons.. to see if I'll flip out, then they can drop me. Its a game......
Out of the blue they are sending me for an evaluation? I was told it was because I have been on Comp for so long and its standard procedure.
I already see a psychologist who I am very comfortable with and my I.D. doc writes all my anxiety meds.Does this sound fishy to you? PLEASE HELP!!!
I've tried to talk my adjuster into finding a closer doc but she told me ALL the patients see this guy. AHHHHH!!!
posted
It's so disgusting if you go to a psychiatrist then they could say ohh the psychiatrist said you are crazy and depressed that's why your sick? I just got a bad feeling about this. I hope all goes well for you but these comps are just like all the rest they don't want to have to pay.
Posts: 128 | From web | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Krenolds,
the doctor who went to my friend's house was only a couple miles away. It was not their first appointment, though.
Under most circumstances, it would not be done but if your safety is of concern, they may have a home-team for assessment, but your atty seems to close that door for you.
You know, just as lyme creates all sorts of symptoms, anxiety, alone, is one that can be better understood by the establishment.
If you get help, that is what matters, regardless of the label.
We all know that when we can address all the facets of lyme, the anxiety can diminish. It just takes some time.
kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I am very concerned about this... If I lose Comp. I lose treatment. If I lose treatment. I lose hope... and so on.....
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Kreynolds,
I too have a workmen's comp pending. It took 10 years for the guy who wrote Nature's Noir and was in the film UOS to get workmens' comp and then they did not reimburse him for all the trips he took to the doc.
My claim has been pending since 2001.
I too found I really did not have a choice of doctor's to see.
Looking back, I was still looking for answers when I saw the psych.
The others who came down sick at work when I did also had negative reports from the psych they saw.
I felt I did not really get across to her who badly I was feeling. I was still at the stage that I did not realize I looked fine on the outside and the doctor's really could not tell just how poorly I was doing.
But, bottom line is I know the others at work were doing a better job at getting things across to the docs and they still got negative write ups.
It is just one of the hoops you have to jump through.
It is good workmen's comp is providing for you at this time.
I do hope it continues for you.
The last time workmen's comp sent me to a doctor, they provided the transportation via a new company in town that drove me.
I was able to recline in a gurney and able to take my power chair.
I had direct contact with the person making the appt.
I did send in 3 names of possible lyme literate MD"s but still had to see the ID at a major medical center that was known not to help lyme patients.
The psych they had me see said I was a malinger or somethin like that.
And that I laid on the floor during the interview...not because I could not sit up...but because I was faking it.
This was before I had the power chair.
She was late to the appointment and I also had to lie down outside her door as I waited for her to arrive in the hallway. Very humbling.
This was in the days when I still thought you went to the medical field for help.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Tincup:
They have been mailed!!! wonder if it will cause a stir for the good??? Thanks Again!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
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