posted
Ok, so I am going to whine here, sorry all but I can't hold it in any longer!
I am so tired of :
-not being able to articulate -not being able to ever feel rested -not being able to breathe -being generally frustrated -getting "lost" while grocery shopping -my lack of coordination -my lack of organization -my lack of patience -the feeling that this will never, ever get better -being on antibiotics ALL THE TIME -having to explain to people why I am still on antibiotics
Anyone else?
oh and to everyone on here, thanks for listening, sharing, etc.
Good to not be alone in this, you give me some peace, insight and some hope.
Posts: 59 | From stratford, CT | Registered: Feb 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I'm sad to say that I've kind of assimilated all of those things
Into my life....and that it just feels part of my routine now.
I try to count my blessings where I can.
Good breathing day, good nights sleep, no pain, etc.
I don't explain to anyone anymore about my antibiotics unless they ask.
I do however, continue to share that I have Lyme disease.
The frustration at inabilities will decrease as you start to feel better.
Then you learn to compensate for things or situations.
It does get better.
Hang in there. Sending you positive thoughts and prayers.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I'm right there with you.
I'm not diagnosed with anything yet (except anxiety/panic disorder and the "need to get a life" syndrome), but I feel crappy most of the time, and I'm tired of my life beiing run by this damn disease.
I'm having a really bad day today, feeling like I did the two times I went to the ER, plus I'm 10x the klutz I usually am for soome reason.
But it's good to know that someone else out there knows how I'm feeling and what I'm going through, even though I don't believe anyone here understands.
Hang in there, sweetie. Things have got to get better!
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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bettyg
Unregistered
posted
normal; what's that? haven't been that way since age 21, 39 years ago! uffda
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posted
The last time I was normal was when I was eight. I was bit at age nine...
To be honest I am a little nervous to fine out what normal is?? Once I start feeling better and go back to "my old self" as I have been told... I think I'll be playing Barbies again!
Thats what I was doing the last time I was normal!
But on a serious note, yes I am with you ... I am so sick of being sick, not leaving the house due to no energy, ANXIETY, the list is endless... I do want all the bad things Lyme is doing to subside, so I can lead a "normal" life!
posted
Yeah, I guess I don't know what "normal" is either.
Maybe we are normal and everyone else is not?
Just Joking!
Posts: 59 | From stratford, CT | Registered: Feb 2008
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
quote:Originally posted by DeafFromLyme: The last time I was normal was when I was eight. I was bit at age nine...
To be honest I am a little nervous to fine out what normal is?? Once I start feeling better and go back to "my old self" as I have been told... I think I'll be playing Barbies again!
Thats what I was doing the last time I was normal!
me too..on the playing with barbies! i have been sick since i was 10.
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I just wish I could get up and cook a meal, or do something normal.
Today, the last day of my kids school vacation week, it wasn't too cold out and the hugest fluffiest snowflakes were coming down, they looked the size of snowballs to me.
How I wished I had the energy and ability to go get my son off the XBox game he has been playing every single second of his entire vacation week and take him outside for a walk in this really cool snowfall.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Ditto Tracy
"I Can't" are the hardest words that I have ever uttered....
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Yes, especially when you have to say it over and over again to your children.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi there,
I don't know how long you've been in treatment but for me after 3 years I started to feel better.
Hang in there. There's light at the end of the tunnel. Might not ever get back to 100% but you can get better.
Right now I'm working on the periphreal damage that was done from Lyme such as low energy, weight gain, emotional fallout, etc.
Best of luck to you in your journey to wellness!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yes, every minute of every day I think about this. I get saddened to think of all the things I can't do with my young daughter now. So hard to deal with. She deserves more. It's truly a terrible illness.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Yeah, you know what's sad?
I had my son at a second hand store a while back and found this awesome Dinosaur Monopoly game for $3.
Of course I bought it for him, but you know what thought crept into my head as I picked it up?
"If I buy this for him I'm going to have to play it with him. And I don't have the energy to do that."
It really SUCKS when you haven't got the energy to play a board game.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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She deserves more. It's truly a terrible illness.
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