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» LymeNet Flash » Questions and Discussion » General Support » Hello. I'm new here (undiagnosed) need support

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Author Topic: Hello. I'm new here (undiagnosed) need support
mindyandy420
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Hello,
I am new here. I have been undiagnosed with some sort of strange...whatever. Ever since my son was born 1 1/2 ago. I was under terrible stress and things went south from there.
I used to be smart...now I forget everything.
Here are my sx:
Forgetfullness (brain fog)
Hard time articulating
Strange numbness/tingling sensations (comes and goes)
Some weakness (some days better than others)
Eye floaters
Muscle twitches
Aches/pains
Stiffness

*I just dont feel normal anymore.
I have been to dr after dr. I keep getting the your normal its all in your head speel.
I've had MRI's, thyroid tests, EMG's, etc. all normal....
Thinking back now I remember when I was about 8 years old. I got a bug bite that swelled up and it was a red dot and very itchy. I did not feel well after I got that...but then things got better...until recently. I remember the bug bite because everybody that saw it said wow I have never seen a bug bite like that before.
I live and have always lived in Washington state on the western side. I don't know how come ticks are here.

Thanks for listening

Posts: 23 | From washington state | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Peedie
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Do you have deer?

Hi mandyandy! I certainly would get tested by a LLMD (Lyme Literate Medical Doctor). Lyme and or co-infections resulting from a bite from an infected tick can very well be the source of your illness.

You should check out "Medical Questions" for a thread "How many people had a Huge Life Event/trauma...." posted there yesterday by -verynew2lyme.

Many people have had Lyme and even had subtle symptoms, but it was a major event, surgery, trauma (physical or emotional), or even childbirth that brought Lyme Disease symptoms out.

Also - go to "seeking a doctor" to find a LLMD to visit. Regular MDs don't know how to diagnose and treat this disease.

Good Luck
-peedie

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aklnwlf
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Hi there MindyAndy and welcome to Lymenet!!!

I'd start in the Medical forum and go to the Newbie Link posted by Treepatrol.

Also go to the Seeking Doctor forum and start a new post to find an LLMD close to you to get you started on your journey to wellness.

I hope that you find this site as informative and helpful as I have.

Good luck!!!

[hi]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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bettyg
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mindy, breaking this up for us neuro folks who can not read or comprehend as you typed it; please do this in future so we may help you ok! [Smile] [group hug] [kiss]


quote:
Originally posted by mindyandy420:

Hello, I am new here.

I have been undiagnosed with some sort of strange...whatever. Ever since my son was born 1 1/2 ago. *******************************

I was under terrible stress and things went south from there.

I used to be smart...now I forget everything.

Here are my sx:

Forgetfullness (brain fog)
Hard time articulating
Strange numbness/tingling sensations (comes and goes)

Some weakness (some days better than others)
Eye floaters
Muscle twitches
Aches/pains
Stiffness


*I just dont feel normal anymore.

I have been to dr after dr. I keep getting the your normal its all in your head speel.


I've had MRI's, thyroid tests, EMG's, etc. all normal....

Thinking back now I remember when I was about 8 years old. I got a bug bite that swelled up and it was a red dot and very itchy.


I did not feel well after I got that...but then things got better...until recently.

I remember the bug bite because everybody that saw it said wow I have never seen a bug bite like that before.


I live and have always lived in Washington state on the western side. I don't know how come ticks are here.

Thanks for listening

mindy, i sent you wash. state llmds already; so you are covered there.

how is your son? he may have gotten CONGENITAL lyme! please read over the kids lyme symptoms below ok! thanks! [Smile] best wishes he is NOT infected.


``CHILDREN'S'' LYME SYMPTOMS compiled by Geneal 6-07
From ``GENEAL'' June 2007

I have been doing some research regarding Lyme and signs/symptoms in small children.

I know many of you have small children that you may be concerned about.
I believe my youngest child (4yrs old) may have gotten this disease from me.

For All Children

-dizziness
-neck pain and stiffness in almost 90%
-sore throats
-swollen lymph nodes
-excessive thirst,
-Chest pains in at least 70%, some have palpatations
-Sense of air hunger or shortness of breath, dry cough

-abdominal pain in about 50%, can mimic acute appendicitis
-sometimes vomiting, heartburn
-rashes that come and go, malar rashes, new psoriasis

-migratory arthralgias, joing pain in 50% to 100%
-myalgias in over 80%, back ache, morning stiffness, pain at rest, muscle weakness

-frequent illnessses, dark circles under their eyes
-intermittent red, hot pinnae of ears
-sleep disturbance in over 80%

-Neurological symptoms are protean and can appear AT ANY TIME during the course of infection
*hypersensitivity of skin, scalp and hair
*Hypersensitivity to noise, light, smell
*Alterations of taste
*poor balance and coordination
*Uncharacteristic behavior outbursts, mood disturbances, depression
*social withdrawal
*New onset phobias
*Oppositional behaviors
*Obsessive compulsive disorders
*Deterioration in school performance in over 90%
*Difficulty with concentration and attention in school with easily distractibility as well as "brain fog" in over 80%
*New onset of ADD

*When measured with formal neuropsychiatric testing, children demonstrate defects in auditory and visual sequential processing

Less Commonly:

*Movement disorders-spaticity, ataxia, motor or vocal tics
*Cranial neuropathies, e.g. Bell's Palsy or optic nerve neuritis
*Peripheral neuropathies-numbness and tingling, distal parathesias, subtle weakness

Pre-Schoolers and toddlers

- Modd swings, sudden emotional outbursts
- Irritabiity
- Personality changes
- Regression of motor and social skills (developmental milestones)
- Changes in play behavior, tire easily, less active

- Trouble falling asleep, frequent awakenings
- Nightmares, new phobias, recurrence of seperation anxiety
- Diaper rash unresponsive to normal treatment
- Frequent URI's, ear and throat infections, bronchitis, pneumonia

Congenital Lyme Disease

* Infants can be infected with Borrelia transpacentally in any stage of pregnancy and/or via mother's breast milk.

* The co-infections: Babesia, Bartonella, Mycoplasma and perhaps even the Ehrilichias can be transmitted transpacentally to the developing fetus.

* Gestational Borreliosis can be associated with repeated miscarriages, fetal death in utero, still births, hydrocephalus, cardiovascual anomalies,

intrauterine growth retardation, neonatal respiratory distress, and maternal toxemia of pregnancy.

* Infants either infected congenitally or from breast milk can have

- Floppiness with poor muscle tone
- Irritability
- Frequent fevers and illness early in life
- Joint sensitivities and body pain
- Skin sensitivity
- Gastro esophageal reflux
- Developmental delays
-Learning disabilities and psychiatric problems

Infants infected congentially can have

-Small windpipes (tracheomalacia)
- Eye problems (cataracts)
- Heart defects

* Infants bitten very early in life will have many of the same symptoms
- loss and decline in developmental milestones.

I found this to be a pretty inclusive list of signs/symptoms for small children, infants, and those suspected of congenital Lyme.

Sadly, my two children do exhibit many of these symptoms and both have positive bands for Lyme via Igenex diagnostic lab in PALO ALTO, CALIFORNIA. Geneal, 2007

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map1131
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Mindy, welcome. I've seen it posted here many times since '99, pregnancy setting off some unknown illness.

Pregnancy, car accidents, surgery, divorce, life, etc, sometimes are stressful events. We just don't realize how stressful life can be until we become ill.

You know your body. If you know that something is not right, then it's not right. Don't worry about the people that think it's all mental.

This illness is mental, but it is also emotionally, physically and spiritualy draining. You've done yourself a service by finding this site.

You'll find out that you're not crazy, but quite possibly have a illness called lyme & company.

Feeling crazy is acceptable here. lol

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

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mindyandy420
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Thank you everybody.

I remember very vividly when I got my "bug bite" and it was red and huge like I had posted before everybody saying how they have never seen anything like that before.

After my bite...I dont remember how much longer but I remember waking up one morning to go to school and I couldnt move....

My muscles were soooo sore and I hurt so bad that my mom had to carry me to the bathtub. They soaked me a warm tub and I was able to get up and walk after that. Still sore.

I never knew why I felt that way....Its all coming together now....

Posts: 23 | From washington state | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
mindyandy420
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I just went on the lyme association website and looked at the lyme bites...THAT IS WHAT MINE LOOKED LIKE.

I also looked at the bartella(sp) marks and I have them. They come and go..

I'm getting scared

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Geneal
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I know that we can alleviate your fear of Lyme and the unknown.

However, it is far better to know and begin to treat

Than be misdiagnosed and lead a life of misery, pain and

Thinking that you are losing your mind.

Please post in Seeking a Doctor with your state and city.

That way someone can direct you to a Tick Borne Expert in your area.

Take a deep breath.

We are all here for you.

Hugs,

Geneal

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Lymetoo
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If you had the bullseye rash, then you have Lyme FOR SURE. If the rash ever comes back, be sure to get a pic of it.


Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

BARTONELLA SYMPTOMS

GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen
involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients
with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected
by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches,
Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may
develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the
head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause
subcutaneous nodules, with some bone involvement possible. The nodules may show some
hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch
Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud's Oculoglandular Syndrome,
and Papilledema.
BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,
Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.
Possible lab findings: The following may show up during standard testing:
Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes.
X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal
reaction. Cardiomegaly may show up on a chest X-Ray.

Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies
strongly suggestive of lymphoma do occur.
Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the
parenchyma.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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Mindy.. If you know how to cut and paste, you might want to copy what you posted here and post it again over in Medical Questions.

People would like to meet you and give you advice!!!

few come to General

--------------------
--Lymetutu--
Opinions, not medical advice!

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Tracy9
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Join us on www.lymefriends.com. You can't have too much support; lots of us are there as well. It is a social networking site and you'll find lots of support there.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
   

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