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» LymeNet Flash » Questions and Discussion » General Support » Should I get tested?

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Author Topic: Should I get tested?
JJJ77
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Hi everyone. I just wanted to post with my

situation to see what some of you think. I was

bit by a tick last July in Illinois. Didn't seem

to have any problems until November. My right

arm went numb and then three weeks later visual

disturbances. MRI showed a single lesion on my

spinal cord. Neuro said that it currently does

not fit the profile for MS so I am on watch for

MS. I was never tested for Lyme Disease. My arm

is not quite as numb as it was and my vision

better. I guess my question is... Do these

symptoms seem like those

that should be tested for Lyme? It was four

months before I showed any symptoms. Just trying

to get some of your thoughts since you all have

knowledge of the illness. Thanks!

Posts: 18 | From columbus ohio | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
bettyg
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yes, i'd suggest getting a western blot igm and igg blood test drawn and sent only to

IGENEX, CALIF. see my newbie package links for DETAILED instructions for igenex! it's $200 perpay!

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dmc
Frequent Contributor (1K+ posts)
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Do get to a Lyme Literate Doctor (LLMD)...stay away from the Cleveland Clinic.

You need the proper test done by a lab that specializes in Tick diseases.

There are other diseases a tick carries.

To help you: download/print out the green booklet from http://www.lymepa.org
The last pages have the symptoms the diseases can cause.

Posts: 2675 | From ct, usa | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Robin123
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Hi and welcome - I did not have any symptoms until three months after the bite. So yes, you can have symptoms occurring later.

It's real important that you go to someone who's experienced in treating Lyme, like the doctors connected with ILADS.

You will not get the right tests and answers from those who do not specialize in Lyme diagnosis/treatment.

You can post in the SeekingADoctor section here ad receive referrals to LLMDs in your area.

In the meantime, you can start studying the info about Lyme and how it's diagnosed/treated.

Btw, many of us have visual disturbances. I have personally found alleviation of almost all my eye symptoms from drinking mangosteen juice, an anti-inflammatory juice.

There are lots of brands; I drink the Ultra mangosteen one, with 70 minerals added. If you try any mangosteen juice, go slowly and drink a lot of water also.

Posts: 13171 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
JJJ77
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I have done some research but the one question I

can't seem to get answered is...Does the

severity of the tick bite have any

relevance? I was able to pull the tick off and

there was just a little red dot where it was?

Truthfully, I didn't think anything of it at the

time.

Posts: 18 | From columbus ohio | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
JJJ77
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I am sorry for being rude. I didn't even

say...THANK YOU ALL for

the information!!!

Posts: 18 | From columbus ohio | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Geneal
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Most of us never saw the tick that got us.

It helps to have seen the tick, but

Based on a known tick attachment with

Possible signs/symptoms of Lyme disease

It would be best to find a LLMD in your area.

Hugs,

Geneal

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Lymetoo
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The bite has nothing to do with how ill you become. Symptoms showing up months later is very common.

The spirochetes take over your immune system and then you begin to crash.

Please do not stop until you get a Western Blot thru Igenex. Ask for test #188 and 189. Like bettyg said, it will cost around $200. Worth every penny to save your life!!!

Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
JJJ77
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I just read that steroids are no good if you

have Lyme. I am not convinced I have Lyme yet

but was given IV steroids and an oral taper!! I

am officially starting to freak out:(

Posts: 18 | From columbus ohio | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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-

Are you off the steroids now? Don't ever stop steroids cold turkey whatever you do.

When you call for the LLMD appointment, be sure to tell them.

No need to freak out, just do the best you can to take care of yourself and the LLMD will guide you from there.


-

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Robin123
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The presentation of the tick bite varies from bull's eye rash, to some reaction, to nothing at all.

The first one means Lyme for sure, the second is in the gray area, and many people, including myself, had no reaction to a tick bite, yet we contract Lyme too.

It's best if you don't do steroids, as it weakens the immune system.

As Keebler said, don't freak out - just keep educating yourself here and see a Lyme-treating doctor soon.

Posts: 13171 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
JJJ77
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Thank you all so much!! I am going to a LLMD April 14th!!

This Dr uses Igenex and the test will be done that day! I will keep you posted.

Thanks again for all of the support!!

Posts: 18 | From columbus ohio | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
   

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