posted
Reading all the stories is heartbreaking. People not feeling normal or living their lives like they should.
Is there any research/breakthroughs?
If we can put a man on the moon then why cant they figure this damn disease out?
Sory about the rant.
Posts: 23 | From washington state | Registered: Feb 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey mindy...
You said.. "If we can put a man on the moon then why cant they figure this damn disease out?"
Well, you are close.
When I have had enough "stuff"... one of MY favorite lines is...
If we can put a man on the moon, why can't we put them ALL on the moon?
The research money has mostly been going to the IDSA and their "out-to-lunch bunch" for the past 30 years.
Or, to the group of ding dongs I tenderly refer to as...
The Bumsterre Butt Kissers.
They control the research funding, the results of the research, the blood tests (patents), the vaccine research money and patents...
And last but not least... The IDSA's "INSURANCE FRIENDLY" Treatment Guidelines.
Get rid of the IDSA Butt Kisser Society... and you've won part of the battle.
Bust up the insurance industries practices... and you've made more headway.
Make people who go to medical school lose their licenses when they disobey their oath to "First Do No Harm"...
And another break through.
If you want to do something to help...
Go to the activism section at Lyme Net to find out how to send a letter (already written up for ease of use) to your Congressman.
Because if the Almighty Himself doesn't step in soon to clean this mess up... the next in line we need to approach are the Congressmen.
We'll skip the doctors who THINK they are the ALMIGHTY...
Because that is why we are in the shape we are in now.
We need to support the Lyme disease bill, which takes the power out of the hands of of the IDSA ONLY... and let's REAL SCIENCE in the front door.
And the 100 million for research funding is REALLY needed.
So skeeeeee daddleeeee little one ... if you will... over to the activism section ... and drop an email to your Congressman, in support of the bill ... and asking them to cosponsor it....
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
In my opinion, and based on posts here, the new things that really are working well are a threat to the big pharmaceutical companies.
(No disrespect meant to people getting well on antibiotics, just looking at what else is working.)
Big pharma has been well known to buy out research that poses risk to their profits.
They have been known to buy out companies selling products that work, then shut them down.
They have been known to start unfounded lawsuits against individuals and companies to bankrupt them.
Even Universities with big research projects have been known to sell out their research, to finance a new wing.
Doctors practicing anything new that works, or trying to put together research, get it from all sides - IDSA, Big Pharma, and Insurance companies.
Breakthroughs are out there, and are working, but the propaganda against them is often severe, and again, richly financed.
Family and friends will read the propaganda, and make you feel like a fool for trying something not endorsed by Pharma, IDSA, and Insurance.
Unless breakthroughs are Big Pharma, you won't find them widely published. And Pharma isn't going to publish them. They are in the business of making money off illness, not curing disease.
Case in point: You can get Penicillin G for your pet pig for about $10. a month at the same dosage at a human would need for lyme treatment with Bicillin at about $500. a month.
Antibiotic made by the same parent company, the only difference is that the vet kind has preservatives. Penicillin is not expensive, but Bicillin shots are costly.
Penicillin is effective against the spirochete, and now prices are up and supply is down. Wonder why?
You may have to look outside the old US of A for good up and coming research. Most of it is going to be German, as that is the European hotbed of lyme. Good luck translating.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I knew I should have taken German in college.
As for the losses of the Big Pharmaceuticals, I can remember when I was working in human services, we were required to go through an HIV/AIDS Awareness training.
The guy doing the training said there is already an effective vaccine against HIV/AIDS,
But we'll never see it because whoever came up with it won't put it on the market.
Because doing so would mean they'd have to reveal what was in it, which would mean other companies could make their own vaccines.
Since this person or group doesn't want to share the revenues, the rest of the world has to suffer.
Now, I don't know if that's really true or if it's just a story, but it really wouldn't surprise me.
Some people or companies are just so greedy that it's sickening.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
maybe if obama or somebody got it, other than bush, it would get immediate attention.
like pelosi....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
When everyone sitting on the new panel is suffering from lyme and coinfections, then it will be taken seriously. If our own family members cant understand us, how do we expect Drs who have been taught otherwise to understand this disease.
OR
When we walk around bald, or with rashes everyone can see, or something that visibly makes us look sick, then maybe we will get some attention because it would be harder to ignore then. It is hard to get public attention when we all look so healthy.
posted
A second generation Lyme vaccine, based upon the Osp A antigen, has been developed and will be entering clinical trials sometime this year.
It has been genetically re-engineered to reduce the incident of autoimmunity that was a problem with the first generation Lymerix vaccine.
It is not designed to cure a existing infection, but may prevent future re-infections for Borrelia only - not for any of the co-infections.
Even if this vaccine is successful, tick bites will still be dangerous because of the co-infections.
Some old studies have shown that the original Lymerix vaccine did help some patients to become more resistant to their pre-existing Borrelia infection.
Another second generation Borrelia vaccine is now under development at the University of Richmond Virginia.
That vaccine type, based upon the Osp C antigen, may in fact be able to cure an exiting infection rather than just prevent any new infection. We shall see.
Godspeed.
Posts: 45 | From upstate NY | Registered: Sep 2007
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
1: Hum Vaccin. 2007 Nov-Dec;3(6):281-9. Epub 2007 Jul 2.Click here to read Links An octavalent lyme disease vaccine induces antibodies that recognize all incorporated OspC type-specific sequences. Earnhart CG, Marconi RT.
Department of Microbiology and Immunology, Virginia Commonwealth University, Richmond, Virginia, USA.
Lyme disease is the most common vector-borne disease in North America and Europe and, if untreated, has significant arthritic, cardiac, dermatological and neurological sequelae. There is no currently available human Lyme disease vaccine. Outer surface protein C, because of its antigenicity, protective ability, and expression characteristics has emerged as a promising second generation vaccine candidate; however, significant sequence heterogeneity has impeded its development. Analyses of OspC sequences have revealed the existence of stable phylogenetic clusters or types, and that the type-defining sequence variation occurs within defined domains of the protein. Recent data indicating that immunodominant, and potentially protective OspC epitopes are located in these hypervariable regions has allowed development of a tetravalent, epitope-based, chimeric vaccine. In this report, we have extended that previously described tetravalent construct to include four additional OspC types. We demonstrate that the construct is highly immunogenic, and elicits type-specific antibodies that recognize each of the eight incorporated OspC type-specific epitopes. Antibody raised to the octavalent construct readily binds to the surface of strains expressing each component OspC type, indicating that the incorporated epitopes are presented on the surface of intact cells. In addition, the construct elicits antibody isotypes associated with complement-dependent bactericidal activity. These results represent an important step forward in the design of a broadly protective polyvalent OspC-based Lyme disease vaccine.
Posts: 2276 | From united states | Registered: Jun 2004
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