I lived in Colorado for a year back in 2000, and since returning to the UK I have suffered from certain neurological intermittent issues such as slurred speech, dizzyness / disorientation, word-finding problems - I have since had it diagnosed as a peculiar type of migraine.
More recently, I have been presenting a whole myriad of problems that are really starting to concern me.
18 months ago, I started getting pains and discomfort around the inside edge of my shoulder blades. I thought it to be muscle strain.
Then, 14months ago, I started getting severe clicks in my hip joints, with considerable pain.
Shortly after, my shoulder joints started clicking and aching.
Then other joints joined on the bandwagon - always with clicks when moved, and aching - jaw joint, neck joint, wrists, ankles, knees - although knees where not too agrivated.
At this time (14months ago) I started inquiring with the doctor - had tests for arthritis and all arthritic/inflamatory indicators came back showing normal. I was also tested for low testosterone, which also came back normal.
More recently (just after Christmas), and of special concern to me, my chest has started causing me a lot of pain. Generally, I will be sat down (due to my aching joints lol - sorry - don't know if humour allowed), and completely out of the blue I will have a momentary pain on the left side of my chest, just at the bottom of my diaphram, and will have an instantaneous surge of adrenalin - I will involuntarily sit up and breathe in - some shock. Afterwards, generally shakey and tired. I also feel like I need to cough to clear my airways (even though technically clear) and feel breathless (though unlike after exercise - more sense of not having enough oxygen). I then get dull aches on the top part of my left chest area, just above my nipple, and can feel tender.
My doctor thinks it could be Bornholm Disease, but really doesn't seem to fit at all with my other systemic symptoms.
I insisted on being tested for Lyme Disease after hearing a report on the news of a woman who had similar symptoms to mine (though I can not remember ever being bitten or any bite marks / bulls eyes). My doctor reluctantly put me in for a test, 'Borrelia C6 Peptide EIA' and my results were negative.
I'm totally clutching at straws, and my doctor doesn't know what to tell me apart from prescribing anti inflamatory tablets.
Anyone got any advice? Do my symptoms fit with Lyme? Any contacts in the UK that I might try (did try googleing but nothing substantial came up for the UK).
Bit desperate, though trying to smile! Thanks! John
[ 03-07-2009, 02:02 PM: Message edited by: John Fin ]
Posts: 9 | From England | Registered: Mar 2009
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posted
Ps. forgot to mention pain in lower back (normally quite bad); and pain/stiffness on both thumb joints (bit weird, noramlly happens at the same time).
Posts: 9 | From England | Registered: Mar 2009
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bettyg
Unregistered
posted
john posted in medical too, and i answered there...
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Hi John,
Yeah, sure sound like Lyme and coinfections.
I've had a lot of similar symptoms.
Now, I won't see an actual LLMD till this coming Friday, but I've been through the ringer with tons of other docs and all the tests you can imagine (including Lyme tests).
Since everything comes back normal, I'm branded a mental case who just needs some antidepressants and a life.
It's quite frustrating, to say the least.
Hope you can find some help here.
As for self-diagnosing, hey, a lot of us have had to do that here.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Come join us also on www.lymefriends.com. A lot of us hang out over there as well, it's more of a social networking site, and a great adjunct to Lymenet.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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