posted
Hello everyone. I was just wondering how everyone else deals with the exhaustion that comes from the Lyme? Also those people who get bed ridden, is it from the severe pain or from exhaustion, or something completely different? I recently started my 3rd round of antibiotics about 1 1/2 weeks ago and I am exhausted like I was when I first became infected before they even knew I had it. Any suggestions?
-------------------- "This is the day that the Lord has made, I will rejoice and be glad in it!" Posts: 35 | From Cortland, NY | Registered: Mar 2009
| IP: Logged |
-------------------- "This is the day that the Lord has made, I will rejoice and be glad in it!" Posts: 35 | From Cortland, NY | Registered: Mar 2009
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Yes the fatigue was always my worse symptom. It caused me to have to quit my job. I have spent about 80% of the past 3 years on the sofa because of it. I also had extreme pain; but to me the fatigue always over rode the pain. I just always thought I could deal with the pain if the fatigue would just go away.
So I totally relate to the exhaustion. It is an unexplainable fatigue that you have to experience to understand. No words can fully describe it.
Is this what you mean?
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi Dani,
I am also experiencing alot of fatigue. I am only 5 weeks into treatment, but that has been my worst "herx symptom" so far.
It helps that I only work a couple times a year. I just do the minimum everyday that I have to, to get by.
If I don't feel like cleaning, etc, I don't.
I do exercise but not real hard right now. I do it but take it easy for the time being.
My husband is very supportive and understanding which is a great help too.
I am optimistic by nature, so I try to think of it like this....
I...and you....have suffered for a long time. If this is what I have to do to get better, than I can withstand anything!
Relax, meditate, pray, take a bath or shower, what ever makes you feel better.
Read inspiring stories. Do whatever it takes to keep you inspired and keep your mind off the exhaustion.
My LLMD instructed me to take sublingual B 12, and 10,000 IU of Vit D daily, along with alot of other supps.
I am taking L-theanine and 5-HTP 3 x/day to help with sleep, and sublingual melatonin at bedtime.
I know that alot of these suggestions may not actually improve your exhaustion, but it's just a matter of coping well until you get better.
We learn the most from the hardest times in our lives. Hang in there!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
You probably didn't get any responses because those of us with fatigue, haven't found anything that can help us.
All you can do is try to improve the sleep you get, get the proper amount of vitamins and minerals daily, drink a protien shake (if you are not allergic), try to lift weights, drink a lot of water, complete a detox regimine, lower the sugar/frutcose intake, balance hormones - cortisol levels and thyroid.
And, don't be surprised if lots of other issues go away first. I have been exhausted for 20 years, been treating for 4 months. Nothing has ever helped me at all.......I am like Sutherngrl. I can't work now.
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
| IP: Logged |
posted
I have just started taking all the vits that Dr. B recommends and today I have had more energy than I have had in the last few months.
WHat's this thing about Yeast? When I take abx's I always get a vag. yeast infection, (sorry for the grossness, didn't know how else to say it) I just use an over the counter cream and I am going to go get some Probiotics today, what else should I be doing??
-------------------- "This is the day that the Lord has made, I will rejoice and be glad in it!" Posts: 35 | From Cortland, NY | Registered: Mar 2009
| IP: Logged |
posted
Ask your doctor for Difulcan and Nystain. Diflucan dries up the yeast all over your body and the Nystain tackles the yeast in your stomach/gut. In the past, when I was perscribed a antibiotic I always took Diflucan, that way to avoid a yeast infection (the kind you mentioned above - creams alone don't work). I never knew about probiotics until I began treatment for Lyme. I now swear by them b/c I can take just probiotics and not get a yeast infection. It is pretty amazing. My doctor has me on Diflucan daily as well as Nystain. And on top of that I take probiotics.
Posts: 379 | From Sydney, Australia | Registered: Nov 2008
| IP: Logged |
You can get yeast many ways. One is taking antibiotics. Because the antiboitics kill all the bacteria, Good and Bad.
When the the good bacteria is gone, the yeast (which everyone has) has a chance to take over because the good bacteria can not keep it at bay.
I had systematic yeast. In my blood and stool. Also sinus infections that were fungal, not bacterial.
I had to take diflucan for 5 months. I have not had a yeast infection, or a sinus infection since November (knock on wood.) I take a very good proboitic now.
If you crave sugary foods, bread, or carbs...most likely you have yeast issues. Be careful with creams, your body will become resistant to them!!
I never did take the Nystain, I wonder if it would have helped more or less...I don't know!!
Good luck, Shalome
Posts: 893 | From Florida | Registered: Dec 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
As others have said, your yeast/candida prevention is vital and if that develops it must be actively addressed.
I find that Olive Leaf Extract works the best for me to prevent candida when on abx - in addition to probiotics. I need both.
Also vital are adrenal (endocrine) and liver support measures.
A great deal of the exhaustion comes from the severe load that the liver must carry to both address the toxic infection and also the medicines.
If you think about it, anyone who has liver dysfunction, has severe fatigue. That is often all about the liver's load. Gentle and consistent support is required. Singleton tells you all about that.
What is your level of magnesium and what type are you taking ? Magnesium will help with energy and to relieve pain, too. It is not a stimulant but can help your cells make energy while not being over stimulating to a nervous system that has already been fried by illness.
==============
This book, by an ILADS member LLMD, holds great information about treatments options and support measures:
[ 03-17-2009, 06:02 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Dani,
I see your signature is what appears to be your real name. This poses a huge risk to your security - and even your medical records or insurance cooperation.
Anytime someone wants to search you, everything you write here will be just a google search away. Prospective employers often "google" applicants. I would not put it past insurance co.
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
IV Glutathione is the only thing I can recommend except stimulants. I have Adderall and that is the one and only thing that takes away the fatigue, but I only use it if I need to be somewhere or do something.
My fatigue is overwhelming. Sometimes I feel it is too much effort to breathe. I do everything listed here; take Diflucan, take 40 different supplements a day, you name it.
Join us over at www.lymefriends.com for more support;it's a social networking site.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
posted
Thank you all of you. My doctor did prescribe me diflucan when she gave me my abx's, but I haven't started taking it yet because I hate taking so many medicines, but reading all of your guys's posts I will probably start taking it. I don't want this yeast to take over other areas of my body.
I've never been one to take a lot of medications and now it's like abx's and 100 different supplements, it doesn't seem like it would be good for your body??
Also I have no idea what my Magnesium level is, I didn't know I was supposed to. What do I do about this and what does your magnesium level tell you? I am taking a magnesium supplement though.
Thanks also for the thing about the signature I will change that.
Dani05
-------------------- "This is the day that the Lord has made, I will rejoice and be glad in it!" Posts: 35 | From Cortland, NY | Registered: Mar 2009
| IP: Logged |
I don't like all the meds either, but I will do quite a bit to get better.
Before I had lyme, I had gone all organic, I was eating right, exercising and still felt like crap. I did all the "right" things, but I just couldn't get better.
I will go the antiboitics route and if it doesn't work, I will try to herbal protocols...if I can afford to. I can't work right now.
While taking all the meds, try to do everything you can to keep your body healthy. Now, I will try to take a dose of my own medicine, because my sugar craving is kicking in, and since I am sick it is sooooo easy to be weak....
Shalome
Posts: 893 | From Florida | Registered: Dec 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Dani,
I should have stated it " what dose of magnesium supplement are you taking"
I am glad to see that you are taking one and assume your doctor gave you advice on the dosage. It should help with many symptoms.
-------------------- "This is the day that the Lord has made, I will rejoice and be glad in it!" Posts: 35 | From Cortland, NY | Registered: Mar 2009
| IP: Logged |
I also would say fatigue was my worst symptom. It just made everything else so much worse. It was a constant struggle to stay awake and I felt like I could sleep anymore--in a store, anywhere!
You mention that it is hard to breathe. I also had this. Do you have Babesia? Babesia causes difficulty breathing.
Also, if you are exposed to mold it will make your Lyme symptoms worse. I moved from a moldy house and also went through some treatment--I am about 80% better. Just stay as healthy as you can--you CAN get better!!
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic