posted
After all negative results from LabCorp on last month's bloodwork....
(though LabCorp gave me a weak positive in 2000)
my LLMD's office called me with the news from my most recent bloodwork from IGeneX.....
which was Positive!!!!!!!!
And, although my LLMD cannot accurately determine how long I've had Lyme, he concurs that it has been "for a very long time".....
I am THRILLED. I am VALIDATED. I am herxing like h*ll from my doxy and feel like CRAP but I'm RELIEVED.
I am also SCARED TO DEATH, but... take one day at a time.
I am also now LETTING GO of all of what I call my "wasted years": the dozens of diagnoses that I was given, and never had,
The hundreds of treatments and meds that I was given for them,
And the docs that either were ignorant of Lyme, undereducated or uneducated about it, or had their practice guidelines dictated by IDSA.
As long as those guidelines are in place and imposed, things will not change.
After all, as much as I am upset at my previous docs, these guidelines protect them ---- at the expense of the patient.
Just today I mentioned my Lyme diagnosis to my aunt's orthopedist, a very respected practitioner.
And he basically said "gee, that's a shame... I mean all you have to do is to look for that bullseye rash..."
In comparison, my LLMD was very quick to point out how sick I really was, despite the negative tests and the various rashes I had.
He also pointed out to me how he needed to be careful with my treatment --- as a too strong herx reaction in my case could in the best case make me stop the ABX, in the worst case kill me.
I feel like I should send his name to the Vatican for sainthood!
SO -- to anyone out there who has been sick a very long time, and has gone thru gobs of drs and been told you have this and that, and you're still sick or getting worse with Lyme-symptoms...
Do it: find yourself an ILIADS LLMD, and have faith.
-------------------- The Bite: July 1995 Next 13 years: Treated for things I didn't have Symptom total: 45 1 faint Lyme IgM May 2000 5 More negative tests IGeneX says YES! 3/16/09 Finally feel human: 2012 Posts: 120 | From Plainsboro NJ | Registered: Feb 2007
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
MissMari,
I am so happy for you, that you now have validation of your illness.
All of us here understand that!!
I had a fibromyalgia diagnosis for 21 years, before I discovered, through my own research that I had lyme.
I had my Igenex western blot before I saw a LLMD, so I researched how to interpret it, and along with my symptoms and history, I knew I had found my answer too.
Of course the Dr's all told me it was negative and I didn't have lyme. So typical.
I am glad you found a good LLMD. Mine is awesome also. I'm only 5 weeks into treatment.
I like to think that there is a reason that we suffered for years. Now we will be good advocates, and will be able to help others.
All the best to you in your treatment and recovery!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
That's great news! I know how it feels to be sick for years and years with no clear diagnosis.
Could you please post this in Medical where more people will see it!? Thanks!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Gosh, that's wonderful news! The answer, the validation, the treatment, all of it.
At my first LLMD visit today he asked me how many doctors in the last couple of years I had seen looking for help. I said "about 15".
Since I started searching for an answer many years ago, I would conservatively guess about 40.
It is all so sad. Just so terribly, horribly sad.
I am happy for you and wish you all the best.
Leelee
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
bettyg
Unregistered
posted
mari, mari, quite contrary ...
NOT ANYMORE; WELCOME TO OUR LYME/CO-INFECTION CLUB!!
yes, i had 40-50 other diagnosis/symptoms too for 34.5 yrs. best wishes for starting the road to REMISSION!
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic