13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
erika,
my heart is very sad for you right now .... the loss of the love of your life when caring for your little one and going thru lyme treatment.
one suggestion, is to post on our GRETA post; let her hear 1st hand what it feels like to be left due to lyme disease complications, etc.
just hit enter so we have paragraphs that are broken up ok; those of us who have SUBSCRIBED TO COMMENTS, are sent EACH one after it is posted!
you/family are in my thoughts and prayers.
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posted
Erika, I am so sorry this happened. I can only imagine how diificult it must be to handle all this and Lyme. You are in my prayers tonight. Soleil
Posts: 236 | From Washington | Registered: Jul 2008
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
The stress of these damn diseases is too much for most to endure. So sorry that you are going thru this. hugs..lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Erika,
So sorry. Please let us know that you are ok.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
Erika,
Although you might actually be happy about this (your post does hold some mystery) . . .
I'm sorry to hear of the pain you are experiencing (or should I say happy to hear you are ready to move on in health?).
Whichever it is, is there a good LL therapist with whom you can work though all the emotions you are feeling? And, if at all possible would your husband also go to counseling either with you or alone? (But I assume you've already discussed that.)
Also, know that this still may work out - or not. But life will go on. You can be happy again. Really.
Oh, and regarding practical matters, get a good attorney. You deserve respect in how this matter is managed every step of the way and you need to have some legal and financial advice.
posted
Thanks Everyone! I'm sorry that my post may seem like I was happy. I was trying to express how angry I am by thanking Lyme. I meant it sadly and angrily. I wanted to Thank Lyme for taking everything I had away.
Happy, not at all. Very sad and hurt. I appreciate everyones support I am OK for now. I have my moments where I'm so mad I cry and cry an dcry, then I have moments where I think it must be meant to be....
Maybe he'll realize I am fighting the biggest fight of my life and will come around. I don't know. Thanks for all the prayers and well wishes.
Son's blog born at 24 weeks. Posts: 356 | From massachusetts | Registered: Jan 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I am also so sorry that you are going through this. I will pray for you.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Do you have friends and family to support you? I know you have small children; we are close enough to become "phone friends" and we have little lYmie get togethers when we feel up to it.
Very worried about you and concerned that you have help!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Try to take this time to take care of you and your babies.
Sending you prayers of support.
I know how devestated you must be...
Remember that Lyme doesn't define you...neither does your husband.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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I'm sorry for dropping all my problems here. I feel like thats all I do. I just felt like I had no where else to turn, and you guys are always so supportive.
I thank all for the advice, prayers words of wisdom. I am going to focus 100% on getting well and taking care of my kids. That is my goal now. He is already starting to realize he may have made a mistake.
We'll see what happens.
I keep telling myself that I have to just focus on me and get better because my children need me. I have a teenager (i know I'm too young to have a teenager) a 5 year old and a 2 year old with many of his own medical complications. Although getting better "knock on wood" and I need to be on this earth and healthy to care for them!
I will push forward and fight this disease with all I have. My family means too much to me to give up now.
You all should be so proud of yourselves for the help you give other people. People like me who you don't even know. You guys spend time helping people fight and get better and you all should be commended for that!
Son's blog born at 24 weeks. Posts: 356 | From massachusetts | Registered: Jan 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
My heart breaks for you. But you are strong. Really, really strong. You have already proven that by taking hold of your disease and helping your family at the same time.
I am praying for you and sending you all the positive energy I have in me. I hope everything works out the way you want it to.
You deserve respect and dignity. We are all here for you.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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bettyg
Unregistered
posted
deaffromlyme,
you are more than welcome.
how about starting a new post in support....something like this as we have/had many of you going thru this when instead of reinventing the wheel, you can share info on what has helped you, etc. thru this all.
subject: how many of you are separated or divorced; support group needed to help us cope...
posted
Sorry, Lyme stinks but at least you have friends that understand here. Hope things turn around for you and i will keep you in my prayers too.
Posts: 128 | From web | Registered: Dec 2008
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
So sad to hear. Don't know what to say healing Lyme and your heart takes time. You & your children are in my thoughts. Sending prayers too.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
Sending prayers of strength and healing your way.
Also sending prayers your husband's way, tath maybe he'll come around and reconsider.
Be strong--I know that seems hard if not impossible right now, but I know you have it in you!
Just try to focus on your health and your kids right now.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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I must personally thank each and everyone of you for your prayers and support... It worked!
He came home. We have allot to work on but it seems he may have realized I am just sick and tired of being sick and tired and that fighting this disease is not easy.
He wants to help me and be there for me. Hopefully this remains true. I can't fight this alone. I never know what each day will be like. Some days good others not so good and on the not so good I need help and support.
Son's blog born at 24 weeks. Posts: 356 | From massachusetts | Registered: Jan 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
DeafFromLyme,
I am wishing good things for you, your husband and your children. This disease has to be the hardest road we could ever walk.
I am glad your husband is now there to support you.
We are all here for you. Always.
Leelee
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
Hi, So happy to hear this. I thought this would happen. Men get overwhelmed and want to fix everythng. He must feel very helpless in the fact that he can't fix this for you. Not sure if he has gone with you to your Dr. appt's but I have heard that Dr. D can be very good with talking to husbands about this. Best of luck to you guys!
Take Care, Ann
-------------------- If you keep doing nothing...nothing changes!
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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Son's blog born at 24 weeks. Posts: 356 | From massachusetts | Registered: Jan 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Erika, Please please feel free to call us; we are only about 25 minutes away and my husband is a great phone buddy. He would be happy to talk to or meet with your husband to discuss how hard this all is, I think some support and hearing from someone who understands might really make a difference.
Email my hubby at [email protected]. I hope your husband will be willing to talk. When we get over the slump we are in we also have weekly get togethers for the lymies in the area.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
Erika,
So sorry to hear about this. Another family torn because of this disease....
Hang in there and fight the fight! It may be a tough time right now, but maybe he will realize he has left a good person.
My thoughts and prayers are with you...
You will win the war!
-------------------- Diagnosed CDC + 6/2007
Quest: + IGG Bands 18,23,39,41,58,66 and 93.
Quest: + IGM Bands 23,39
Quest: + Bartonella (B.Henselea & B. Quintana),+ Babesia, and + Mycoplasma and Lyme-Induced Addisons Disease
+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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bettyg
Unregistered
posted
erika, happy he returned and you 2 can work things out, and yes, show him the UOS dvd 1-2 times more until he GETS IT! xox
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