posted
Hi, I wrote to Jill on the Real housewives of NY. I said I was going to do this awhile ago and finally did. Hey what can I saw I am sick in bed every weekend so this is what I do...lol One person at a time right!
Here is what I wrote:(I'm assuming it is ok to mention the Dr's in "Under our skin" as their names are in the movie?
Hi, I noticed on this episode that they were talking about Jill doing an event for her daughter's arthritis. This was a red flag to me. Children with arthritis can mean Lyme disease. NY has the highest incidence of Lyme disease in the country. Please get a 2nd opinion from Dr. H in NY. For more information go to http://www.lymenet.org. The current test are inaccurate you have to see a LLMD for proper diagnosis. If not treated properly Lyme disease can lead to permanent disability and death.
Sincerely, Ann Ehlers
Write in guys...These people have a show...alot of money and hold charity events so could be huge!
'' Lyme disease is growing at four times the rate of AIDS and is quickly becoming our nation's most misdiagnosed and fastest-growing infectious disease. Educating the public and physicians regarding the disease and the progression of treatment is essential.''
Edited to correct URL to lymenet.org Lou B
[ 03-29-2009, 09:12 PM: Message edited by: Lou B ]
-------------------- If you keep doing nothing...nothing changes!
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi Ann,
I am glad you wrote to her too.
I wrote to her a couple months ago via her "Ask Jill" column in the Hamptons online magazine.
Hopefully if she hears this more than once, she will start to question it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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TF
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posted
I don't think it's OK to name the doctor. It is against the LymeNet rules. Change to his initial only, OK?
Posts: 9931 | From Maryland | Registered: Dec 2007
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Leelee
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posted
She's my favorite of the NYC bunch. I wish they would address this issue on their show. Surely it has touched someone they know and possibly her daughter.
Like you said lakes, these ladies do charity work so it would be great if they would get involved with Lyme too.
I just tried to write to her too, but my brain isn't working. I couldn't think what to say or ask of her. I'd appreciate suggestions. Maybe tomorrow I can think of the words.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
That's great - Jill has such a big mouth - she would be a great spokesperson for us!
I will write in too, and mention she's my favorite housewife - I have a feeling she'll like to hear that
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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posted
Uh oh - the link to write her is "page not found" and I can't find another link.
BTW, Jill's step son also has arthritis as well as Ramona's daughter - they all vacation in the Hamptoms
-------------------- "We must be willing to get rid of the life we've planned, so as to have the life that is waiting for us" - e.m. forster Posts: 921 | From PA | Registered: Jan 2004
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Leelee
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Member # 19112
posted
quote:Originally posted by Larkspur: Uh oh - the link to write her is "page not found" and I can't find another link.
Dekrator had a great idea. She said above that she wrote to Jill via the Hampton newspaper and the Ask Jill column.
I googled Hamptom Newspaper Ask Jill and found a place on the website where one could send an email to Jill.
Hope that helps.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Leelee
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posted
Hi lakes, I think so. Let me look in a few minutes. I'll get back to you.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
Once you get to this site scroll down past her photo and there's a paragraph that explains how to e-mail her.
I am editing this to add that I just followed the link I gave you and a strange message came up saying something I don't understand about no authorization needed and it may be a trick. (??)
So, the best way to find her might be to do what I did initially. Google "Hamptoms magazine ask Jill". That will take you directly to her page at the magazine.
Good luck!
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
I just sent her an email with my family's brief story and asked her to use her celebrity to help advocate for Lyme.
I remember the episode two years ago when the arthritis was mentioned. My husband and I said "Lyme" aimultaneously.
Posts: 79 | From Rhode Island | Registered: Jun 2008
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posted
And now the other little girl, who is it, Avery, has arthritis in her heel. Hmmm.
Posts: 636 | From Saratoga County, NY | Registered: Apr 2008
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posted
hmm, the [email protected] didn't work. I will have to look into this some more. I think I am going to start a letter writing campaign on a monthly basis.
I think if they meaning, Erin Brockovich, Oprah, Dr. Oz, Reps, schools, tv shows ect. Only get a letter once it is easy to brush it to the side but if they are getting them month after month it will be harder to ignore.
Keep writing guys! One person at a time is my motto. Also, my friend said it won't change in our lifetime, we are in our 30's. I don't buy into that. My thought is it has too!
Take Care, Ann
-------------------- If you keep doing nothing...nothing changes!
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