Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I know, (or think I know) there are 12 of them.
I can only think of four names of people on the panel and I don't know if its okay to put their names in this post or not so I won't.
So... could someone please tell me where I can go to find out the names of all the people? I went to the IDSA website and unless I am missing something I can't find names.
It's just a curiosity question, but I feel so "out of the loop" when I read things about the IDSA guidelines, etc. and I am trying desperately to get up to speed as a newly clinical-diagnosed Lyme patient.
Thanks and please pardon my ignorance. I just started reading "The Baker's Dozen" which is what got me to wondering just who these "bad guys (girls?) are. Maybe the author covers this later in the book.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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shazdancer
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Member # 1436
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Thank you shazdancer. That is exactly what I was looking for.
If you don't mind, I have another question.
Will the panel listed at the idsociety.org be the ones considering whether or not to revise the guidelines?
And, the people listed as authors at the uchicago website are the ones who wrote the 2006 guidelines?
Thanks for helping me to understand.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
An easy to read list of bad boys and girls here too. Authors and the Ad-hoc Committee both.
A Critical Appraisal of "Chronic Lyme Disease"
Henry M. Feder, Jr., M.D.,
Barbara J.B. Johnson, Ph.D.,
Susan O'Connell, M.D.,
Eugene D. Shapiro, M.D.,
Allen C. Steere, M.D.,
Gary P. Wormser, M.D.,
and the Ad Hoc International Lyme Disease Group
The following members of the Ad Hoc International Lyme Disease Group were also authors:
Gundersen Lutheran Medical Foundation, La Crosse, WI -- W.A. Agger;
National Microbiology Laboratory, Health Canada, Winnipeg, MB, Canada -- H. Artsob;
Johns Hopkins Medical Institutions, Baltimore -- P. Auwaerter, J.S. Dumler;
St. Luke's Hospital, Duluth, MN -- J.S. Bakken;
Yale University School of Medicine, New Haven, CT -- L.K. Bockenstedt, J. Green;
New York Medical College, Valhalla -- R.J. Dattwyler, J. Munoz, R.B. Nadelman, I. Schwartz;
Danbury Hospital, Danbury, CT -- T. Draper;
Johns Hopkins Medical Institutions, Crofton, MD -- E. McSweegan;
Atlantic Neuroscience Institute, Summit, NJ, and the New York University School of Medicine, New York -- J.J. Halperin;
Boston University School of Medicine and Boston Medical Center, Boston -- M.S. Klempner;
University of Connecticut School of Medicine and Connecticut Children's Medical Center, Farmington -- P.J. Krause;
Centers for Disease Control and Prevention, Fort Collins, CO -- P. Mead; University of British Columbia, Vancouver, Canada -- M. Morshed;
University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, Piscataway -- R. Porwancher;
University of Connecticut Health Center, Farmington -- J.D. Radolf; Maine Medical Center, Portland, ME -- R.P. Smith, Jr.;
Schneider Children's Hospital at North Shore, Manhasset, NY -- S. Sood;
Washington Hospital Center and Georgetown University Medical Center, Washington, DC -- A. Weinstein;
Wadsworth Center, New York State Department of Health, Albany -- S.J. Wong;
and Connecticut Children's Medical Center, University of Connecticut, Hartford -- L. Zemel.
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Thank you Tincup for enlightening me.
I knew the IDSA was bad, but since I'm new to Lyme I'm trying to figure out not only myself but also comprehend the ins and outs of these wretched people who I blame for keeping me sick for so long.
I follow your posts and threads and am grateful for all that you do here on Lymenet.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
What about all these patients that the IDSA owns on Lyme? they control everything like they are Lyme Gods. it's really disgusting but because we are a capitalist country they are a bunch of crooks and thieves. this is one time we need them to be taking down for what they really are by our government, because people are suffering.
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Leelee, you have it exactly right. The panel will decide whether or not to keep the 2006 IDSA guidelines as they are, revise them, or toss them altogether.
The panel will look over written testimony (the deadline for that is this month), and will invite people to present at a public hearing sometime later this year.
Hope that helps you.
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
And so you know...
Tincup's additional list is from a 2007 article written after the CT Attorney General had begun his investigation. The guidelines authors made a concerted effort to be everywhere with their spin in favor of their guidelines. The authors and their friends wrote this article, "A Critical Appraisal of Chronic Lyme Disease," which can be found at:
posted
Has anyone sent a copy of Cure Unknown to all the panelist and a copy of under our skin.
Just a thought.
Posts: 92 | From Virginia | Registered: Jan 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
shazdancer, that's a huge help! Thanks!
LLYME, I don't know if the panelists were sent copies of the book or UOS, but in another thread started by bettyg (I think) PJ Langhoff sent each of them a copy of her book "The Baker's Dozen".
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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bettyg
Unregistered
posted
lee, that is right; pj sent her baker's dozen, entire book is about IDSA and has refuted things galore they said with over 1,000 links of accurtate info plus 7-10 page letter citing many of those links.
that's when they extended the deadline vs. april 3 ...
i have pam's book but only have read 10-20 pages tops since i celebrated every day last week, and i need to read my new van OWNER'S manual as my car was 17 yrs. old, and i can't figure out all these WHATAMACALLITS?
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