posted
On Monday from 11:00 am - Noon EST the Diane Rehm show will have a live broadcast about the lyme controversy with Pamela Weintraub, Dr. Samuel Shor, internist and assoc. clinical professor at George Washington University and Phillip Baker, director of American Lyme Disease ***. and former project officer of lyme studies at National Institute of Allergies and Infectious diseases.
The show airs on many NPR stations and Sirius satallite radio. look up the Diane Rehm Show for stations. Her site also offers podcasts.
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Keebler
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The time may vary. I got a notice saying 10 ET. It may not be on all NPR stations, though, but it may be accessible through NPR's web site to listen to file audio after the program.
EDIT: According to Marc On the Media the WAMU site is wrong, the show will air at 10:00 am EST NOT 11:00am
[ 04-19-2009, 08:50 PM: Message edited by: LLYME ]
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Keebler
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there may have been a typo somewhere along the line - I would think her website is correct, though. thanks for posting that.
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This was on my state's lyme network bulletin board:
ON THE MARC MEDIA ANNOUNCEMENT
On the Marc Media is pleased to announce that NPR'S, The Diane Rehm Show will be discussing the Lyme disease controversy and UNDER OUR SKIN, an eye-opening film investigates the untold story of Lyme disease, an emerging epidemic larger than AIDS.
Diane Rehm will also be discussing Pamela Weintraub’s book, Cure Unknown, Inside the Lyme Epidemic.
This is a huge opportunity to educate the masses about the seriousness of Lyme disease.
The Diane Rehm show, which has been on the air for 25 years, has more than 1.7 million listeners each week and has become one of public broadcasting’s most-listened-to programs.
The Lyme Show will air Monday, April 20, 2009 at 10 a.m. ET.
To find out where you can listen to the show, click here:
quote:Originally posted by adamm: Phail Baker?! Well, let's hope he gets ripped to shreds and accused of treason...
That is not going to convince anyone who is not familiar with the issue. Hopefully they diplomatically dissect his reasoning to show it's flaws.
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Keebler
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Yeah, it would be so great if some ILADS LLMDs were on the show, too.
quote:Originally posted by Keebler: Yeah, it would be so great if some ILADS LLMDs were on the show, too.
There is, Dr. Samuel Shor, He is a ILADS, LLMD, treating physician. I will not say much more then that because of the sensitivity of talking about doctors, but do not worry, he is very good.
This interview is stacked three to one, three people who believe in chronic Lyme to one person who I do not think believes in chronic Lyme, Dr. Philip Baker.
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Keebler
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I hate to be negative but the interview was kind of a mess. I do not think anyone not familiar with all the background of the controversy will have any idea what was going on. It as very disjointed conversation jumping all over the place.
But on a positive note hopefully some people listening have some idea of the controversy going on or maybe someone suffering undiagnosed will be able to get properly diagnosed.
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randibear
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i posted my response in medical, but basically i agree with you llyme. it was obvious she didn't believe in lyme and it showed.
while the intent of the program was excellent and i applaud the participants, i didn't care for her presentation.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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quote:Originally posted by randibear: i posted my response in medical, but basically i agree with you llyme. it was obvious she didn't believe in lyme and it showed.
I would not say she does not believe in Lyme, she is suffering from chronic illness herself. She seemed overwhelmed and confused by it all.
I just think she did little or no research before the interview. She had no introduction to the discussion, no background on the controversy, no explanation of what acute and chronic lyme is, did not ask the proper questions on the difference between acute and chronic lyme, no explanation of the two groups (IDSA & ILADS), no numbers on how many people are sick, did not ask what all the symptoms are.
This is the problem we are dealing with most people who are not sick with Lyme are completely overwhelmed by the complexity of this disease when you try and explain it to them.
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bettyg
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i've never listened to diane before and i didn't know about her voice problem either.
i think diane did OUTSTANDING JOB! she kept everyone on subject instead of any long, drawn-out rambling like phil started a couple of times.
she was quick to say she didn't understand and kept asking for user-friendly language she could understand.
PAM, KATHY FOWLER, & DR. SHOR did a wonderful job and expanding on things. i listened to it live, but my connection kept going OFF so i would have to keep hitting play to hear it.
tonight i listened to all 49:50 minutes of it again, and heard what was missed earlier.
phil was the perfect DUCK! diane had great questions for all, and SHE DID HER HOMEWORK.
if anyone has an email address i can write a thank you too, i'd appreciate it. big thanks xox
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When I try to talk to people about lyme, it is a puzzle knowing where to start and stop. A person could talk about it for days and not say everything. So, expectations that this could all fit into an hour-long program are unrealistic
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I can't even talk to friends of 30 years about this disease and seem to get through.
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lymie_in_md
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All exposure we get about lyme to others is a plus. I liked the broadcast a great deal. I think Diane did her homework, I think she had some very specific points and she tried to have the participants stick to them. The points are what it is and what is the controversy. I think it rang pretty clear from Dr. Baker, he doesn't feel we know enough and people should just suffer.
I think the best way to describe lyme for others, it is like having fibromyalgia only the symptoms are from a bacteria called lyme transmitted from a tick, and can vary in severity. Best not to over complicate or make it dramatic for others. They at least understand fibromyalgia without having to go into too much detail.
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Tincup
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Ann-OH
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For people who would like to hear the show, it is available on Pam's website: www.cureunknown.com
I, too, wish the show had been more organized, but I thought Pam and the good doctor -and the wonderful people who called and e-mailed!- out-shone Phil Baker. Someone should have asked him about the "good-old-boy" network that runs the ALDF. He tagged himself some more NIH money, which is probably why he heads the ALDF.
posted
Good news, I think the plug of the movie under our skin during the interview did help awareness. Take a look at Google search volume for the term "under our skin"
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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