posted
i just got my denial letter from disability and it states that my condition is not severe enough to be disabling. this is 3rd time denied.
first of all the condition stated on the letter is culture negative endocarditis!!!
man i want to scream-no wonder i don't have a problem with the endocarditis?
they sawed my chest open and put a peice of metal in it and got rid of the infection!!!!
what about what caused the heart infection-of course they can't think beyond that-i deal with so many symptoms everyday like high fevers and chronic pain, who am i kidding you all know how we feel everyday. i have tested positive for lyme in cardios eyes.
i don't have a choice and have to go to work because of circumstances.
i thought when i had the open heart i would be a shoe in-even all my docs said i would be.
they say they have never seen anyone sick as i am, and they have seen people not near as bad get disability.
i need to go to cardio bad where i live to be monitored-i have been having chest pain and scary heart palpitations and so hoped i would get the disability to get medicaid-otherwise i can't get medicaid.
and i can't get proper lyme treatment without income, so workworld here i come!!!
this scares the ever living daylights out of me because i am so freakin sick!!!
how can our country give trillions of dollars away to other countries and not help their people in great need???
it is so easy for other people to get medicaid and i can't, even though i have no assets, not even a dollar to my name.
i have lost everything, and last night i was so ready to give up-my phone rang off the hook last night to make sure i didn't do something stupid.
everyone knew how devastated i was, and are so outraged!!!
please i need input on what i should do about disability, and i need prayers because i am really scaring myself with thoughts going through my head
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
astriapage,
I'm very sorry that you were denied when you are so sick.
I can't help you with disability, but I will pray for you.
Do you have a counselor you can call for support?
How about a crisis center you can go to?
At the very least call your Dr and tell them you are not coping well due to this denial and ask for mental health help.
I understand your total disbelief and frustration.
I will pray for you often.
Take care and keep us updated.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
My wife's ex-boyfriend had disability for a brain aneurism. He was perfectly fine and dealt drugs, he could just drop dead any minute.
Weird how the world works. I hope it works out for you.
Posts: 743 | From New York | Registered: Apr 2009
| IP: Logged |
LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
I am so sorry. What else did you put on the SS application. LIst as many symptoms as possible, and meds that you're on. It's hard to work if you're on drugs that you can't drive on.
There is a campground here on the island and they hired me on the spot, but it is working 12 hours a day!
How in the world I could do this I don't know? Well I called my family and they are not allowing me to do this.
I tried and now everyone is pitching a fit-my heart condition is a major setback.
They told me to keep collecting cans like I have done for the past 2 weeks which is enough for me to buy my medicine.
I have a roof over my head and hopefully will continue to.
I need to be able to see a doc though, bad. Today I can't move my right leg because of pain in my back and abdomen?
I had a lawyer, but I am trying to figure out why they had the endocarditis listed when I also had told them I ran high fevers, pain, fatigue, metntal ability loss, nausea, vomitting you name it I got it.
They knew all of this and I have spent weeks in the hospital for all these symptoms and they got these records!
I am going to hire a new lawyer-I just don't know who to go to, because my last one was so lame!!!!
I need all of the support and help I can get with this one.
It makes me feel good though that a company hired me on the spot-I was even up front about my open heart surgery,
but not how sick I am everyday. Even in the interview I was hit with pain so bad I was gritting my teeth so it would not show in my face.
Thanks Guys
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
| IP: Logged |
bettyg
Unregistered
posted
astria, i'm so sorry for you!
but i'm very confused too...
you mentioned if you started working, would you have to give up YOUR DISABILITY BENEFITS? WHICH ONES ARE YOU TALKING ABOUT.
were you turned down for SSDI, disability insurance work benefits or LTD, long term disability, etc.
i couldnt keep up with you on your post.
thanks; i'd try again, but remember it's NOT ANY OF OUR ILLNESSES/SYMPTOMS ....
IT'S THIS...WHY YOU "PHYSICALLY" CAN NOT WORK!!
0-2 hrs., 2-4, 4 - 6, and 6-8 hrs. doing the following:
your supportive drs. answering this Q/A about the above based on how you ARE TODAY; not the day you last worked!
this q/a showing all the above, and found now on MINOUCAT'S support post on disability ... is how you will win your SSDI claims.
IP: Logged |
bettyg
Unregistered
posted
also, what step were you denied on ssdi?
have you had face to face admin law judge hearing??
IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
astriapage - I would get a reference for a lawyer from people that have used one and like them. If you have a local lyme support group you could call the leader and see if she can ask her group (or he/she might just know of someone).
If you dont have a local lyme group there may be a local ms, cfs, fibro,lupus group you could ask.
It is SSDI that I was denied for-I figured once I got a job, and the government saw my social had been run through on tax forms and I was working, then I would forfeight the benefits.
Does anyone know if this is true?
I don't currently have a doctor right now treating me except for my cardio who oversees my PT/INR checks for my mechanical valve, but he does not want to treat the Lyme.
So I don't have alot of documentation on my condition.
And I don't have the funds to see a doc either so I am in a very tough position.
That is why I was devastated when I did not get disability, and I can't get medicaid without it.
Thanks for all replies!
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
| IP: Logged |
bettyg
Unregistered
posted
astria, read the FAQ of TICKET TO WORK SS PROGRAM
astria, so you had you admin law JUDGE hearing where you spoke to them, and this was your 3rd denial? still not straight on that one yet ok.
IP: Logged |
I can't express myself very well and forget alot-thanks for your patience with me today.
It has to be my second time because I have not been in front of the judge yet.
I just spoke to a friend and her sister went in front of the judge and got it right after that.
Does it help to go in front of the judge-my lawyer said they are backed up on hearing cases so it will take a year and a half to get in?
This is why I said I can't wait that long?
Thanks again BettyG-man this is what scares me about going to work-I am so stupied-man I have lost so many IQ points since I got sick!
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
| IP: Logged |
I certainly don't understand the random way people can and cannot get SSDI.
My sister-in-laws friend was married to a man who gets SSDI because he was a herion user.
Talk about screwed up. Please hang in there and we will all pray for you. Believe in miracles.
Somehow, someway, you'll get the help you need. Your angel is on his way to God to tell him you need Him.....Believe it. I know your upset and I'm sending you Hope and Love and of course, Prayers. <<<Hugs>>> Posts: 145 | From Paris, Tn. | Registered: Dec 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Astria,
Social Security is approved or disapproved on the way that they expect their questions to be answered.
YOur lawyer should know this criteria. I can't remember the name right now, but SS uses a list to base it's opinion.
Your doctor needs to address each question on this list and answer in detail the things that you are not able to do. Additionally, they want to know if recovery is expected, your doctor should answer this as well.
I found the "list" in a medical school library and had my doctor answer step by step. No lawyer, approved 1st time around.
I remember the word now it is: Social Security Disability Criteria. Ask your lawyer about it.
It sucks when you are really disabled, as you are, and it comes down to "words".
Good luck, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
bettyg
Unregistered
posted
feelfit, can you find more info on SS disability criteria?
i did a google of that phrase; almost 2 million sites!!!
astria, then you still have a chance; you can also speed thigns up by having a VIDEO conference vs. 1 on 1 in the same room aljudge hearing!
so you still have a chance before it would go to appeals court, and things there don't get even looked at for 2.5 - 3 yrs. now due to backlog!!
astria, welcome to neuro fog; we all understand well.
spend time reading MINOUCAT'S disability info at top of SUPPORT; most of my stuff and conniemc's IMPORTANT FORMS TO COMPLETE are there!!
IP: Logged |
posted
Thanks All and BettyG for your great replies!
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
BettyG actually it was a manual called: SOCIAL SECURITY DISABILITY GUIDELINES. I have all of this info in files but it is in MI and I'm stuck in FL. for a few more months.
Gosh, I wish that I had the info here to help out Disturbed and Ocean too.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Sounds like you are between a rock and hard place so to speak.
I wrote several representatives for my state and explained my situation.
About 6 months later, I got a telephone call from one of the reps I wrote asking me if I had been approved yet.
I said no. And the next week I received a call from the SS office to come in for an appt.
I received a check shortly after that.
I know how difficult it is to find a good attorney.
Mine is still asking me for the funds for getting me SSI although I did all the work with feeling out forms and contacting the rep.
Even the SS person said that she was sorry I had an attorney because he was of no help.
I think what helped me was my lyme doc. He did a good job of filling out the forms for his part.
The camp job sounds good. It would be worth giving it a try.
I know i would prefer to be working if I could.
I would think it would be easier than collecting cans as far as movement wise.
But, we are all different with this.
I also don't know what the camp job activities will be.
One last thought. There was an attorney who spoke on getting SSDI on a chat for lyme a long time ago.
I am trying to recall the name of the guy who has the Saturday night lyme chat.
All I can recall is lymeaudio came up on the URL when I clicked on it.
If I think of his name and web site I will let you know.
I think he would recall the name of the attorney.
The attorney also helped no matter what state you were in.
I haven't been on the saturday night lyme chat in years as that way of communicating is too much for me.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
posted
My family is adament that I don't do this job-it consists of me working 7 days in a row to start off with to put me through a test to see how strong I am.
Manager is marine-so very tough, but extremely nice.
Then it is working 12 hour shifts and everyone knows I can't do this-I have to have a nap everyday and spend most days resting and laying down.
Collecting cans is for 3 hours a day on Mondays only-yes it is physical but it is for a short while and I come home and do nothing for the rest of the day.
Doing this though is hard on my body, and I am now having bad back problems, so I don't know if I will do it again or not.
I am going to look for a true part time job where I can work 4-6 hours a day-I think I can handle that I hope.
Man I am sick-very sick, and noone wants me to go to work, I just feel it is necessary to get funds to go to doctor-right now I am simpy existing.
The manager at campground was highly disappointed, but after I told him doc who did open heart surgery would not write release for me to work 12 hour days-he was fine and said thanks for being honest.
Please pray for me I can find part time job, and pain in back and abdomen will get better-doc said sounds like pinced nerve.
Thanks everyone
Posts: 303 | From Jekyll Island, GA | Registered: Sep 2008
| IP: Logged |
bettyg
Unregistered
posted
quote:Originally posted by feelfit:
BettyG actually it was a manual called: SOCIAL SECURITY DISABILITY GUIDELINES. I have all of this info in files but it is in MI and I'm stuck in FL. for a few more months.
Gosh, I wish that I had the info here to help out Disturbed and Ocean too.
Feelfit
is this it?
NOLO'S GUIDE TO SOCIAL SECURITY DISABILITY 536 Pages Getting & Keeping Your Benefits David A. Morton, III, M.D. Nolo Press - 2nd Edition, 2003
please go to top of SUPPORT and click on minoucat's DISABILITY info; extensive info and she organized it well. believe most of my stuff is incorporated in it .
IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
No, but that is a good source. I don't think that you will find this online. I found it in a medical library on a medical campus.
I wish that i had my files here!!!!! I copied it all.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic