LymeNet Flash: Take this important Lyme survey

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»	LymeNet Flash » Questions and Discussion » General Support » Take this important Lyme survey

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Topic: Take this important Lyme survey

jblral
LymeNet Contributor
Member # 8836

posted

Here's an email from Lorraine Johnson, CEO of the California Lyme Disease Association:

"I am doing a survey to support the speech I will be giving at the IDSA review hearing on July 30th. Please distribute the survey far and wide to anyone you think might be interested in responding. Below is my blog posting on this. Thanks.
Lorraine

Listen up! Speak out and be heard! Help CALDA represent your views to the IDSA!

The Infectious Diseases Society of America's new Lyme disease guidelines review panel will hold a one day hearing on July 30. This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated. Of the 18 speakers selected to testify, two are patient advocates, including me. The testimony will be aired live on the internet on July 30 so stay tuned. STAND UP AND BE COUNTED CALDA is conducting a survey of individual Lyme experiences to give you a chance to have input. Results of the survey will be included in my testimony to the IDSA panel.

To participate in this survey,
Click Here
http://www.lymepolicywonk.org/

Your responses will be treated with confidence and at all times data will presented in such a way that your identity cannot be connected with specific published data. This survey should take 5-8 minutes. Note that once you start the survey, you will need to fully complete it. (You can not save it and return to it later.)

Lorraine Johnson, JD, MBA"

Posts: 991 | From California | Registered: Feb 2006 | IP: Logged |

Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020

posted

Done! And it was easy! Made me feel good, too!
Ann - OH

--------------------
www.ldbullseye.com

Posts: 5705 | From Ohio | Registered: Jan 2002 | IP: Logged |

liesandmorelies
LymeNet Contributor
Member # 15323

posted

Thank you! This was easy to do. I hope something good comes from this.

--------------------
aka: Lyme Warrior

In order to do "real" science, you have to have a "real" conversation with nature.

Well Behaved Women Rarely Make History!

"Just Demand your Rights"

Posts: 869 | From nor - cal | Registered: Apr 2008 | IP: Logged |

jblral
LymeNet Contributor
Member # 8836

posted

And forward this info to any other Lyme lists you may be on.

Posts: 991 | From California | Registered: Feb 2006 | IP: Logged |

gridmonster
LymeNet Contributor
Member # 19280

posted

Done.

Posts: 135 | From Orlando, Florida | Registered: Feb 2009 | IP: Logged |

bettyg
Unregistered

posted

let's send her THOUSANDS of replies esp. since the conn. lyme bill was signed TODAY!! [Smile]

thx xox

IP: Logged |

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