posted
I am going to post this in medical section too:
Ok my mom and I are totally p*ssed off!! The local newspaper interviewed us several weeks ago. She was suppose to publish our article the following Tuesday. Well several weeks have went and she never did. Plus she wouldn't answer my moms calls or emails.
So today my mom goes to pick up a paper. And this is what we find...brace yourself people!!
I can't even express how we feel!! It would be too vulgar and I hate those words!!
Anyone know what we can do to fix this? How do we let people know that this is bull? I mean so many people read this today. I don't even know where to begin
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Don't worry, comments will be rolling in. Did you leave a comment yet stating that they interviewed you and your mom and they wrote nothing about your interview?
Hang in there. Lyme and friends will be chiming in soon.
-------------------- aka: Lyme Warrior
In order to do "real" science, you have to have a "real" conversation with nature.
Well Behaved Women Rarely Make History!
"Just Demand your Rights" Posts: 869 | From nor - cal | Registered: Apr 2008
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bettyg
Unregistered
posted
amy, would you copy everything i added to your OTHER post here too? will have folks galore since i copied it here and broke it up for neuros like me/others thx
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Lyme Disease 2008 Total: 45 cases In 2008, Ohio reported 45 cases of Lyme disease to the Centers for Disease Control and Prevention (CDC).
Since 1990, Ohio has reported a total of 932 cases from 83 of 88 counties.
Lyme is the most commonly reported vector-borne disease in the United States with 20,000 cases reported each year. Mid-Atlantic and New England states reported more than 80 percent of the total U.S. cases, mostly in New York, New Jersey and Pennsylvania.
Data from the past 10 years show that almost half of Ohio's cases of Lyme disease had no travel history.
This means people are acquiring Lyme disease in Ohio, despite the fact that the tick responsible for the disease is rarely found here.
The Ohio Department of Health will continue surveillance for this disease and its vector in addition to educating Ohio residents about disease prevention and treatment.
Symptoms of Lyme Disease The first sign of a Lyme disease infection, seen in 60 percent to 80 percent of cases, is the characteristic ``bull's-eye'' rash called erythema migrans (EM). The rash develops at the site of tick attachment and usually appears seven to 14 days after tick exposure. EM rashes must be diagnosed by a doctor.
Other symptoms that may accompany the EM rash include muscle aches, general tiredness, fever, swollen glands, headache and joint pain.
Lyme infections often have long-term, chronic complications, such as arthritis, developing months or even years after infection.
Cause and Treatment Lyme is a bacterial disease caused by Borrelia burgdorferi, a spirochete-type bacterium. In the early stages, Lyme disease is commonly treated with a three-week regimen of antibiotics.
Late-stage disease may require long-term, aggressive antibiotic treatment. Having Lyme disease once does not protect against reinfection and cases of reinfection have been reported.
Ixodes scapularis in Ohio 1987-2008 The Vector of Lyme Disease -
In the eastern United States, Lyme disease is transmitted by the black-legged tick, Ixodes scapularis, also known as the ``deer tick.'' The nymphal ticks are active in late spring and summer when human populations are outdoors and likely to be exposed.
These ticks are found in areas of deciduous forest, especially those with a leaf litter habitat on the ground. The leaf litter provides protection from the elements and when removed, tick populations may be reduced by 70 percent to 100 percent.
I can understand your obvious concern,especially after having been interviewed,and having none of your experiences reported.
I posted a link on LymeNet to some reporting of "patient stories" from the Albany Times/Union this AM.
Perhaps you can forward it to the reporter who agreed to cover your story(ies), and give her a "refresher" course on what constitutes "good journalism".
Joe
Posts: 249 | From Northern NJ | Registered: Jul 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
My on-line letter to the editor. It probably won't get published, so I put it here to inspire others to write. Remember there is strength in numbers! Ann-OH
"Lyme Disease" by Jean Corliss is painfully inaccurate. Had she read the "Ohio Tick-borne Disease Update" from the Zoonoses division of the Ohio Department of Health, she could have had more accurate, up-to-date information about Lyme and other tick-borne diseases in Ohio. http://www.odh.ohio.gov/ASSETS/93BCF91EC59746EFB74B51C4FB517087/tickar.pdf [quote]
"In 2008, Ohio reported 45 cases of Lyme disease to the Centers for Disease Control and Prevention (CDC)."
"Since 1990, Ohio has reported a total of 932 cases from 83 of 88 counties."
[The Centers for Disease Control (CDC) says that Lyme disease is so under-diagnosed and under-reported that the numbers they get every year are only 1/10th of the actual cases.]
"Lyme infections often have long-term, chronic complications, such as arthritis, developing months or even years after infection."
"Late-stage disease may require long-term, aggressive antibiotic treatment. Having Lyme disease once does not protect against reinfection and cases of reinfection have been reported."
posted
Thanks everyone for your support!! I have to run out for an appointment. When I get back I will comment more.
I will also copies the replies I got on the article into this section. They are in medical right now.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I have to give them my full name and address to write a letter to the editor?
Doesn't that seem odd?
I would really like to write a letter to the paper, but I am not comfortable giving this information out because it doesn't seem necessary, and I don't want it sold to third parties.
Do most papers do this? I just think it's so odd!
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Okay, I just gave them my first name, and put in random stuff for the address and phone number, because I do NOT give out my info to those I don't know or trust.
Here is what I put. I decided to just focus on one thing:
"Your recent article about Lyme states that Lyme cannot be passed intrauterine (last sentence in the article).
This is an incorrect fact. Intrauterine transmission of Lyme is documented and has been widely accepted.
Please be more selective with what you choose to publish.
Denial of intrauterine transmission is not only incorrect, but offensive to those treating children affected by this disease.
Thank you for your time."
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
It is standard practice for newspapers to ask for full name and address and phone number of the letter writer. They typically do not publish the addresses and phone numbers. They use this for verification. Sometimes people write letters claiming to be someone else.
Posts: 991 | From California | Registered: Feb 2006
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bettyg
Unregistered
posted
quote:Originally posted by jblral:
It is standard practice for newspapers to ask for full name and address and phone number of the letter writer. They typically do not publish the addresses and phone numbers.
They use this for verification. Sometimes people write letters claiming to be someone else.
i'm a perfect example of what joe said in his last sentence .... IMPOSTERS like the jerk who impersonated gary wormser, md, who attacked ME in conn. lyme bill article by IDSA dr. nevel or whatever his name was ... can't remember!
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bettyg
Unregistered
posted
NO COMMENTS SHOWING NOW!!
no place to even send them too ... THEY STOPPED THEM!
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thx
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