posted
Jake will be admitted to the hospital tomorrow at 7:30 am. His surgery is scheduled for 9:30 am and he is having a monitor inserted in his brain next to his VP shunt.
He will be having his intracranial pressure monitored. They will set his shunt at different settings to see how he responds. They will also be monitoring his changes in pressure doing different activities.
The neurosurgeon said to plan for a 5 day stay. He will be in ICU because the regular rooms don't have the monitoring equipment.
Jake has Lyme (+ co-infections)and pseudo-tumor cerebri. His headache did decrease after the shunt, but it's still very bad.
Can you please keep Jake in your prayers?
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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bettyg
Unregistered
posted
peggy,
you betcha; i'll put jake in my prayers for tomorrow's surgery and his 5 day stay there!!
may the surgeon get a good night's sleep and his skillful hands work their magic on your dear son jake!
later after this is all done and the stress level is DOWN, could you explain this to me/others who aren't familiar with the terminology? NO RUSH!! hugs/kisses to all
pseudo-tumor cerebri. His headache did decrease after the shunt, but it's still very bad.
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Tracy9
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Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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kgg
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posted
Will be praying for Jake and You!
Hugs, Karen
Posts: 1687 | From Maine | Registered: Jun 2004
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hshbmom
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posted
Praying for Jake & you now!
Please keep us posted pab.
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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posted
Prayers for Jake and your family.
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Will be glad to pray for Jake.
Bless you for asking.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Jake's surgery went well. He has a wire sticking out of his head that connects to the machine recording his intracranial pressures.
He was doing OK yesterday. Today the headache is worse. His neurosurgeon has not been in to see him this morning.
Thank you for your prayers.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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joalo
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posted
You are both in my prayers.
JoAnne
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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feelfit
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posted
Please keep us posted Pab.
Posts: 3975 | From usa | Registered: Aug 2007
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posted
So sorry Jake has had so much to endure. Praying for both of you and looking forward to the next update.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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Pinelady
Frequent Contributor (5K+ posts)
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posted
So sorry. Praying for you all.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Jake is still in the hospital and he is doing OK. For now, all they are doing is recording/monitoring his intracranial pressure. The neurosurgeon said he would adjust the pressure on Jake's shunt and see how he reacts to that.
I will update if anything changes.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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posted
Jake came home from the hospital this afternoon. Thanks for the prayers!
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
From Mayo Clinic website:
Pseudotumor cerebri (SOO-doh-too-mur SER-uh-bry) occurs when the pressure inside your skull (intracranial pressure) increases for no obvious reason.
Symptoms mimic those of a brain tumor, but no tumor is present.
Pseudotumor cerebri can occur in children and adults, but it's most common in obese women of childbearing age.
When no underlying cause for the increased intracranial pressure can be discovered, pseudotumor cerebri may also be called idiopathic intracranial hypertension.
The increased intracranial pressure associated with pseudotumor cerebri can cause swelling of the optic nerve and result in vision loss.
Medications often can reduce this pressure, but in some cases, surgery is necessary.
Posts: 9931 | From Maryland | Registered: Dec 2007
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