13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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We are doing well - except that he is going through a growth spurt and will not let me rest!
Thank you so much Randibear!
You guys are all unbelievable... I will keep you all posted.
Btw - he tested negative on all of his Clongen TBD tests! Cross fingers that it stays that way!
Posts: 588 | From Rhode Island | Registered: Jun 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
OMG that is the MOST wonderful news ever...YAY for all your proactive actions, your LLD and Dr Jones!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Luvdogs-
Thank God for that most wonderful news!!!!!!!! I couldn't be any happier for you.
xoxoxoxoxo, thelma
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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bettyg
Unregistered
posted
sarah,
congrats on liam being negative for lyme!! what a relief for you on top of everything else going on ... will pray that things stay that way for you.
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I was too sick to make it there this weekend so I hope to get there on Wednesday, after new LLD appt on Tuesday where I hope to get at long last, an order for IV Rocpehin.
Hopefully I'll get there Wednesday night!!! I miss them!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
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Member # 7521
posted
Not sure what my plan is; David may come here to spend a few days with us as early as tomorrow. I was hoping to convince Sara to come as well, but not so promising.
So we'll see......but I promise to get tons of pics of the little guy up on Lymefriends really soon!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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bettyg
Unregistered
posted
tracy, thanks for update! david will be bringing LIAM to your home?
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posted
Liam is staying home with mom.... I promise to come visit soon though!
Posts: 588 | From Rhode Island | Registered: Jun 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
liam is a lucky lad, luvs-lady..
picklester
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Back at Sara's and holding Liam now.....they are doing great. Despite the fact that Liam is one month old he could easily pass for a three monther.
Sara is doing well, catching up more on rest...loves all the gifts she has gotten.
Liam is adorable and very, very alert and responsive. It is really amazing for a one month old baby!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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what a relief for you on top of everything else going on ... will pray that things stay that way for you.
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