I'm scared/upset because now I'm worried that I need to start over with a new doc.
Even though only one doc from the practice caused the problem, my trust is broken.
I'm going to take the weekend to "decompress" and try to think clearly next week about how to proceed.
The worst part was that I was examined and even giving a cognitive test AFTER I was broken down into tears and dismissed by the one doctor.
That is not sitting well with me at all. I didn't want that doctor in the same room let alone to examine me, but I was so scared of losing my treatment that I went along with the appointment, examine, and testing.
Can you really take a neurocog test while crying?
To make matters worse, when I got home I broke my sugar-free diet, so now I feel guilty on top of it all!
Thanks for listening, it was a really awful day for me.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
don't be so hard on yourself....it was a tough day for you...
tomorrow's another day....
you can get back on track with a new doc and sugar-free diet tomorrow..
let yourself just be today....
you have every right to feel let down and discouraged...but tomorrow...
get your strength and confidence up and get to gettin better...
mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
| IP: Logged |
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Sorry Wonko
That is such a horrible experience. I am glad you have other drs. to help you and you can avoid this one.
Don't feel guilty about cheatin gon the diet! we have all done it at one time or another and feeling guilty is only going to make you feel worse.
I know any time a doctor gives me any kind of disrespect about my diagnosis, it increases my distrust of all doctors in general.
I dont like feeling bitter or victimized. May I suggest you write a letter to the practice doctors, letting them know what happened, and how it affected you?
This doctor has probably had complaints before.
If my trashman treated me like that, I would fire him.
I am deeply sorry how badly you were treated. It hurts that you were direspected, and he sent a message that he did not care. Not attributes I would consider professional.
I hope you feel better soon. That "doctor" should be ashamed. XOXO
Posts: 261 | From Piedmont | Registered: May 2008
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i had a horrible degrading experience with a llmd many years ago. betty, lymetutu, and others know of whom i speak. he was walking nightmare.
it took awhile but i finally found a wonderful doc.
bad docs are out there but overall i think the llmd's are a pretty good bunch. right now, it's all the others who treat me like a social piranha.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
I've got to wonder why he behaved this way on his own, knowing the rest of the practice would not endorse or support his actions.
Apparently this man is a cruel evil person who got pleasure out of hurting you, knowing that you are ill and weak and would not stand up to him.
He examined you AFTER he demeaned you. A normal person would feel awful about hurting you so much. They would have said what they had to say right before you were done so they could exit quickly and avoid feeling guilty.
By hurting you first, this sick masochist got to watch you cry and suffer from his humiliation.
Please realize this has nothing to do with you. He just had an opportunity to feel powerful at your expense and took it.
He's on the same level as a wife beater and child abuser. These types always act like Mr. Nice Guy but are actually cowards.
That practice really needs to get rid of him, so as not to expose any other patients to his cruelty.
If you go there again and happen to see him, be sure to hold your head up and look him right in eye with a mean look on your face. I bet it will scare him!
Please don't let this dispicable creep impact your self esteem. You are doing all you can to get well, but he will always be a sicko.
Hugs and strength sent your way!
Jan
-------------------- 3 Strains Mycoplasma and Chlymedia 2001. After treatment fine for all 2004. Major symptoms since 2005. Diag Aug 2008 Lyme. 400 mg/d doxy 500 2/d Ceftin Posts: 164 | From Texas | Registered: Jun 2008
| IP: Logged |
quote:Originally posted by randibear: [QB] i had a horrible degrading experience with a llmd many years ago. betty, lymetutu, and others know of whom i speak. he was walking nightmare.
True!! and I would not call HIM a true LLMD either. I haven't recommended him in YEARS.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
bettyg
Unregistered
posted
to clarify this dr. was a SHE making things worse in my opinion ... a woman treating a woman this way!
IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I'm so sorry that you've had this awful experience.
You wrote: I'm still feeling extremely upset/confused about what happened.
Without more details, it's hard to know if this is an appropriate action but on the surface of it, I would be inclined to contact the office and ask to discuss the situation with someone who is in charge to find out why this happened.
In addition, you should be offered the visit at no charge since you got nothing toward furthering your treatment out of this appointment not to mention that you lost time from work.
I know the emotional trauma was worse than everything else but still, the least they can do is offer to forgo charging you for the experience.
Take care, Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
Thanks all for the support and ideas for what I should do from here. I need to recover from the experience and make some tough decisions.
I do feel personally attacked, as the whole situation could have been avoided.
Since I sometimes see another doctor there anyway, if this particular doctor has such a problem with me, they could have simply seen to it that my care be transferred over to the other doc.
There was no need to confront/humiliate me and make it personal. The dr. also told me that the feelings about me had been building, making me wonder why on earth I was even scheduled to see them in the first place?
We wait months for these appointments. If the dr. knew they had a problem with me, they should have rescheduled me with a colleague.
I was given a partial refund for the appt. without asking. However, I was charged full price for a neurocog test through which I was crying. I even asked the doc if I should really be taking it given my emotional state and they insisted (more bullying?).
No one went over the results of it with me, I was just given a printout of my score...and the bill!
Like many, I saw a lot of docs/specialists before getting to my LLMD, and while some were less than great to me, this was the all-time worst experience that I've ever had with a doctor.
Thanks again for "listening" and I'll probably be posting in "seeking a doctor" soon for some new names!
I came back and edited this to use only gender-neutral pronouns.
[ 07-20-2009, 02:34 PM: Message edited by: Wonko ]
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Sent you a private message.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
| IP: Logged |
This happened to my daughter. She went to the ER with terrible stomach pain - sharp stabbing that would not stop. Really scared.
She told the ER doctor she was on abx for Lyme as part of the "what medications are you on?". He told her there were doctors out there that just wanted to take her money and that she didn't have Lyme.
He said she was harming her own health and made problems for doctors like him in the ER. He was very agitated and determined to make her stop treatment.
I offered to send him information in the mail. He said he would not read it. He works full time in the ER for a major hospital here. Says he had been there for many years. Very dangerous man to have in the ER.
Turns out she had a duodenal ulcer. Probably from the doxy abx. So she took a "break" from the abx under the supervision of her LLMD and treated the ulcer.
Got well and continues abx treatment - because she has Lyme. But it was a tramatic visit to the ER and unnecessary bad treatment by the doctor. Something that stays with you for a lifetime. -p
Posts: 641 | From So. CA | Registered: May 2008
| IP: Logged |
bettyg
Unregistered
posted
quote:Originally posted by Wonko:
I was given a partial refund for the appt. without asking.
However, I was charged full price for a neurocog test through which I was crying.
I even asked the doc if I should really be taking it given my emotional state and she insisted (more bullying?).
No one went over the results of it with me, I was just given a printout of my score...and the bill!
TO ALL:
using wonko's above statement; dr. insisted on giving me this NEUROCOG TEST....
REMEMBER ... NO ONE CAN FORCE US TO TAKE ANYTHING!
that's where we put our foot down; REFUSE TO TAKE IT, AND WALK OUT!
wonko, i'm so sorry for you, and NOT trying to make you feel worse; but this was a good example of what is ACCEPTABLE AND NON-ACCEPTABLE.
no doubt which this case was!! bettyg xox
IP: Logged |
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
So very sorry to hear about this Wonko.
I went through my LLMD's 'protocol' and am 'cured'.
Any symptoms I have now is 'Morgellons'.
Which blows because now I can't even attempt to get disability.
Can't find anyone near me willing to treat me either and don't have the money anyways.
Don't give up hope though, I haven't.
Just because they're LLMD's doesn't make them infallable.
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6145 | From Columbus, GA | Registered: Jul 2004
| IP: Logged |
quote:Originally posted by bettyg: to clarify this dr. was a SHE making things worse in my opinion ... a woman treating a woman this way!
I know this office. In my opinion, it was inappropriate to use Wonko's PM info to confirm the gender of this doctor.
As Wonko followed up:
"I was intentionally not using any gender-specific pronouns..."
Posts: 819 | From East Coast | Registered: Apr 2009
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i'd like to refer to them as "it"...in some cases it fits...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
bettyg
Unregistered
posted
kitty, you are allowed your opinion; i'm allowed my opinion since folks email me daily by pm asking about these llmds. taking up more of MY time and energy...
since we have M/F drs., it IS necessary to distinguish between them.
I appreciate you trying to keep the gender "neutral" in this instance.
Has anyone from the office followed up with you?
Hang in there, Kitty
Posts: 819 | From East Coast | Registered: Apr 2009
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I too think the gender of this doc should have been kept private in a PM. And here is the reason....
Some people and some doctors just don't have good repores with each other; it happens all the time; while others have great experiences with them and are cured by them.
I had a very hard time when one or 2 persons on LN claimed a negative experience with my doc when I had just started going there. My doctor has cured many people that I know, but just 1 or 2 people that didn't care for him/her smeared his/her name on LN. That is wrong in my opinion, especially when a doctor is willing to put there life on the line for us.
Also I have been seeing this doc for 14 months now and he/she is brillant and very helpful and caring. They are the perfect fit for me and my situation.
I think any and all doctors that are willing to try and help those of us with LD should not be put down just because a couple of people found that they didn't appreciate their protocol or their demeaner. We are all different and some of us click with a doctor while others may not.
Someone along the way is always going to have a bad experience with a doctor. That doesn't mean everyone will. What might be a bad experience for some, might be a saving grace for another.
This is why I think it is wrong to put down any doctor that is willing to treat LD.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
I never intended to identify the LLMD's gender, and I'm sorry that it has become an issue on this thread.
My original post was not gender-specific, and I edited my later post to also be gender-neutral.
I don't think that I can edit other people's posts, but I would appreciate it if anyone who did mention the gender of the LLMD would come back and remove those details.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
bettyg
Unregistered
posted
wonko and kitty,
i stand by my comments above.
wonko, since you started this thread, i suggest YOU delete the entire thing since you were complaining about this dr. all replies will be gone then too.
just click on pencil, 3rd box to right of your 1st post go to top left side and click delete post; gone forever!
IP: Logged |
posted
I think it is really unfortunate that I was looking for support but instead have been labeled a complainer.
I thought that removing details about the doctor would make everyone happy.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
| IP: Logged |
posted
I don't know if I really want to get in the middle of this, but-
Wonko- you are not a complainer. You had a terrible time at your appointment, and you came here for support. You had every right to make your post.
You were very respectful to the practice, and even to the doctor in question. Also- I could be wrong- but it seemed you weren't looking to complain about the doctor, so much as about the entire situation and experience.
As for the whole gender-specific debate...
If this had been a post asking for feedback on a certain doctor, a gender would have been necessary, so that readers could know which doctor was being discussed.
That being said- Wonko purposefully avoided mentioning gender, or names. PMs are called "private" for a reason- I feel everyone should always ask the permission of the sender before making that information public.
This is just my opinion, and as people obviously feel strongly on this, perhpas we should either establish some rules, or start a new thread to debate this.
That way, we can save threads like this for actual support.
Wonko- let us know how things go. I know that everyone here is wishing you well. And NEVER worry about complaining!
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I did not intend for it to sound like that I meant Wonko was a complainer. I apologize if it came across that way.
This is a support group and there is no better place to say what you need to say and get it off your shoulders.
Please Wonko, don't feel that you can't do that!
I actually wasn't talking about you in my reply, but others that sometimes are very quick to ridicule doctors that some of us couldn't do without. My reply was not directed at you.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
![[shake]](graemlins/shake.gif)
![[Big Grin]](biggrin.gif)
![[group hug]](graemlins/grouphug.gif)
mtree![[toilet]](graemlins/toilet.gif)
![[tsk]](graemlins/tsk.gif)
![[puke]](graemlins/puke.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic