posted
As time goes by i keep spacing these out further and further...but it does seem that many of you are looking for guideposts so i will continue to do this until i am symptom free.
So if you are new here i will tell you what i have learned in the past 2 months or what was reinforced: that healing in a non-linear process.
Through my first 9 months of treatment i had some ups and downs but had regained enough strength to run a 5k in May and again in June...
and through June i was 90% better but not well...the few symptoms i had were troubling(anxiety, insomnia, brain fog).
So we changed meds to better penentrate and what a wild ride it has been since. i have herxed harder than ever almost 40 of the last 50 days. New symptoms(tight hands, hypoglycemic, panic attacks, head pressure), old ones coming back but underneath it all my mind is getting clearer.
i had to back off my running and lifting because i have been so weak and that has been demoralizing..but i did it once and i will do it again .....and working has been torturous.
On the flip side the few days i had that were good were while i was on vacation(thanks God)....seeing the ocean reminds me of the beauty in this world and all that we are fighting for. Of course it doesn't hurt if your kids are swimming in it.
Today things have lifted after my third 9-10 day episode in the past 2 months...so i haven't exactly been my positive self on here the past few months. in fact many of you saw my rant as to whether my doctor knew what she was doing. And she did....it's just that this major step backwards is not what i anticipated...and i'm gueessing we will continue this pattern.
but whatever ...take your best shot Lyme because i am never going down.
so for anyone new....you will get knocked to the mat but you will get up again and if you can't then we will help you. i am positive as ever that i am beating this thing.
As always thanks for all of your support.
My/Our Journey continues to help others...3 friends sent to LLMD all diagnosed early after wrong info/tx by PCP. One was child. Small price to pay..don't you think? okay ..hard to agree fully with that but you know what i mean. I just don't believe in coincedences anymore.
One of the NJ doctors told my friend she has seen more cases this year than she has on the previous 3 years combined. Makes sense with such a wet spring/summer.
Keep The Faith,
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
as always, enjoyed your post Dave. Keep your very excellent attitide it is what is helping you as well.
Best, Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Thanks Dave for updating! I, for one was wondering how the new meds were treating you.
Kids in the ocean...no better motivation.
Keep going Dave...the silver lining is in reach. I have been off antibiotics for a month tomorrow and I am feeling pretty darn good.
I am looking forward to enjoying vacation with my family. Last year I had some "strange" things happening to me which I found out was lyme and co., which of coure kept me from having a great time.
Not this year...
Posts: 193 | From New Jersey | Registered: Oct 2008
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-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Thank-you Dave for the update...I'd been wondering how you were doing as I'd read your post a few weeks ago about the anxiety.
Keep up the good work and positive thoughts...that will get you far! Glad you had a good vacation. I did too 2 weeks ago, not feeling so hot lately, but it was nice to have some energy for a while, gives you a taste of what 'normal' people get to experience every day and take for granted.
I'm a bit behind, I'm only at 8.5 months or ~34 weeks in, yet your experience sounds a lot like mine.
One day I'll be doing much better, exercising and working longer days, then a change in medication (or sometimes just a good 'ol "mystery factor") and I'm back on my butt, crawling and very symptomatic.
On my bad days, I try to think of my good days as proof that I can get better. On my good days, I try to burn the feeling into my memory so I can recall it on the bad days.
And while it's useful to sum up treatment once in awhile, I try to not think of how long I've been sick/in treatment or how much longer it will take: Measuring those durations can be really depressing!
Keep up the good work and best of luck to you.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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Thanks...if we are both experincing things in a similar way ....means we are both heading in the right direction.
you think like i do...truthfully i don't dwell on the time nor do i project to much. i am getting tired though which means a good day will come soon and keep me going.
hard to believe i went from shuffling to running three miles back to just walking....
you keep up the good work as well.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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