posted
I have been on the meds for 1 week and 1 day or is it 1 week and 1 day?
I feel worse with each & every day!!! Is that normal?
I only remember ever having a tick on me being when I was 19 or 20 some where around there. I'm 31 nowI have have hospitalizing migrains since I was 20.
I could go on with all the issues but u all know them.
Any how I'm having ha hard time dealing with "treatment" and I m bearly being treated!!
I have found a few Drs. and I have a few appts coming up but untill then the "treatment" is just 100 mg 2x per day doxy. LOL
Any how I having a hard time dealing my whole body hurts, my joints, my arms my legs my head my neck my back my hips my head my head my head my fingers.
I can't sleep but I'm so tiered all I want to do is sleep. I sleep all day and Im awach all night.
I still go to work but I work on my feet & every step is like a knife stabing in so part of my body.
I want to cry but it hurts.
I have to be strong.
My Husband lost his job in Jan (on my B-Day) by the way.
My kidneys are failing becoue of bad stone due to my addrenal gland not working right that started 4 years ago.
When I told the dr to to test 4 other things she told me the kidney thing was genetic
Im 31 I have 2 kids great kids boys both. The dr. wants both of my boys to be tested they might have it also.
I'm poor becouse I didn't go to collage right after high school. I took a few years off....
When I tryed to go back my brain didn't work the same.
I failed out becouse I started having stones and migrains by know one could fix me there was nothing wrong with me.
It was all In my head.
Now I finally have a job I love and I don't think I'm going to be able to keep it....
My head hurts.
I can't make it go away I can't sleep
Got to tell you I would give up if it wern't 4 my boys.
I have to teach them to be strong
I wish the people closest to me could have even an bit of compassion instead
I hear about how hard there lives r
You know how they have more money then they know what 2 do with & how their bigest health issue is they r haveing a hard time having a baby
Know 1 eles I know has any health issues other then the baby thing
Ok so what it comes down 2 Is Im angry & sad. I didn't do anything wrong I shouldn't be sick
I hate that people have a hard time reading I don't hit entter alot.
I hate that I can't spell to save my life (never could)but I still hate it and it is worse now.
I hate that I'm one of those people that can't read understand if I don't hit enter alot.
I'm depressed.
I want to die
I don't want to be sick
I was happy 2 find out I had Lyme (until I found out what that ment) I though ya I have Lyme now I can take some pills and get better
I just fell like I'm going to die . But I won't b that lucky!!
Ill have to be turchered
I know It gets worse before it gets better blablabla la lalalalala
OK so now It is your turn
Your turn to vent or maybe cheer me up.
I got to tell you letting this all out where the whole world could read it is liberating
Posts: 9 | From lansdale pa | Registered: Aug 2009
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posted
I'm sorry you feel so bad. I'm in a similar situation-- been sick a long time and just started clarithromycin and plaquenil.
It is all very sad and frustrating. My doctor and family keep reminding me how important it is to try to stop being angry.
Easier said than done, but I know they're right.
I'm not sure I can cheer you up, but you are certainly not alone!!
-------------------- Kirsten, NH
+Lyme 2000, 10 days abx RA, sero- 2002 Heart murmur 2006 Narcolepsy 2008 current: LLMD since 8/09 Posts: 11 | From NH | Registered: Aug 2009
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Without my two young children (who tested positive too for Lyme)
I wouldn't be here doing okay.
I couldn't work for over two years.
Off meds now, but symptoms are slowly creeping back.
I've been where you are.
Had just lost my house to Katrina (4 years ago yesterday)
Then got so sick. Couldn't walk, couldn't talk.
Me...a Speech Pathologist who couldn't get a whole sentence out.
No "blablabla's", but wishing to send you some hope.
Prayers of hope and comfort coming your way.
I treated for over 2.5 years to get where I am.
More to go.
Family issues here too.
Only my Mom has taken the time to really listen and learn.
No one else and I have a nurse in the family.
Anger was one emotion I didn't have.
I didn't have the energy.
My children kept me going...I had to for them.
This is the right place to vent and the right place for support.
BTW, the first five weeks on doxy were like a scene from a horror movie.
Be kind to yourself. Watch your diet.
Rest when you can. If you get to feeling too sick,
Call your LLMD and let them know.
Herxing isn't fun.
My LLMD doesn't advocate pushing through bad ones.
Drink lots of water too.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I don't have any words of wisdom but I just wanted to tell you things will get better. It took two straight years of treatment for me to start to feel better.
I would not be here either if I didn't have my children. I got sick when I was pregnant with my first child and he will be 24 on Monday. My kids are both adults now and I was so sick that I barely remember their childhoods.
My kids turned out to be very caring, self-sufficient adults because of my illness and I thank God now that I didn't end my life years ago.
I was sick a looong time before I started treatment so it's taking me longer to get well.
You are not alone. We all understand what you are going through. Feel free to "vent" here anytime you feel like it!
JoAnne
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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