posted
Seriously . Right now no one interested in lyme. It is an easy disease with trivial cure (my pharmacy dispences doxy for FREE) . Insurance companies dont want , IDSA docs dont want . - they fight it at every step.
Now all we have is patients and few docs .this is marginal and carries little power unless the patients hit critical mass (and I bet many of people with lyme are bundled under cfs/fibro/ms/als/alzheimers etc). So no one cares and will never care .
If big pharma could be convinced that there are many more of us, that there is profit to be made I bet they could do a lot for our cause. they seem be only entity with enough power which would be interested in treating lyme (as it brings $$$ for meds). They could sponsor double blind clinical trials for long term treatments ,new abx , new ,more effective tests.
Posts: 856 | From MA | Registered: Jul 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sorry to say...
Big pharma will make more $$ with the IDSA guidelines.
Antibiotics on the market are fairly cheap, comparatively speaking.... and those that aren't now, will be.... sooner or later... when the patents run out.
However, if we have fibromyalgia, restless leg syndrome, chronic fatigue, heart problems, eye problems, neuro problems, joint problems, bladder problems, stomach problems, etc..
It is more advantageous for them to "piece-meal" our treatment out by treating the individual symptoms one at a time. ... with the more drugs used, the better.
And it would take about 20 years and lots of investment money for a new antibiotic to be put on the market.
As for your comment, no one cares and never will... well...
Many do care.. but the ones who do care are also sick and have sick families... and/or they have been treated and are now trying to catch up with the life that was on hold.
In my opinion.. we all need to work together to help ourselves and our families.
I wish I had a better looking scenario for you.... but that's it.
posted
new, second generation, Lyme vaccines are now under development by big pharma that can offer some hope, although they will not offer protection from the many co-infections that exist:
What is really needed to motivate the medical system are medical malpratice lawsuits.
IDSA was motivated to hold a new Lyme disease guideline review to satisfy a lawsuit, not because they care about any patient.
Uhhh its IDSA who drives LLMDs underground with lawsuits and makes hard to get proper treatment, not the other way around .
AG in CT didnt use medical malpractice against IDSA , he used anti-monopoly laws
Remove malpractice BS -you will see IDSA power crumble and fade really fast.
quote: One day the legal profession will wake up and make a case.
Lawyers and laws are the source of the most problems in US healthcare. we need less of them not more!
Posts: 856 | From MA | Registered: Jul 2009
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